Privacy and property in the biobank context

HEC Forum 22 (3):211-224 (2010)
Abstract
A research biobank is a collection of personal health and lifestyle information, including genetic samples of yet unknown but possibly large information potential about the participant. For the participants, the risk of taking part is not bodily harm but infringements of their privacy and the harmful consequences such infringements might have. But what do we mean by privacy? Which harms are we talking about? To address such questions we need to get a grip on what privacy is all about and aim for a fruitful perspective on the issues of property and privacy rights in the context of biobanking. This paper argues that the limits and handling of private matters is determined in specific social relations. The crucial point is thus to determine which information and activities are or are not the legitimate concern of others. Privacy and property rights should be seen as balanced by duties, that is as inherently relational interests extending into the public sphere, rather than to see these rights as the control of an object—for instance the participant’s biobank material
Keywords Privacy  Biobanking  Genetic samples  DNA
Categories (categorize this paper)
DOI 10.1007/s10730-010-9138-1
Options
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history
Request removal from index
Download options
Our Archive


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 27,178
Through your library
References found in this work BETA
Privacy, Morality, and the Law.W. A. Parent - 1983 - Philosophy and Public Affairs 12 (4):269-288.
Personal Autonomy and Informed Consent.Lars Øystein Ursin - 2009 - Medicine, Health Care and Philosophy 12 (1):17-24.
Defining Privacy.Adam Moore - 2008 - Journal of Social Philosophy 39 (3):411-428.
Biobank Research and the Right to Privacy.Lars Øystein Ursin - 2008 - Theoretical Medicine and Bioethics 29 (4):267-285.

View all 6 references / Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles

Monthly downloads

Added to index

2010-11-17

Total downloads

27 ( #188,224 of 2,163,731 )

Recent downloads (6 months)

1 ( #348,100 of 2,163,731 )

How can I increase my downloads?

My notes
Sign in to use this feature


Discussion
Order:
There  are no threads in this forum
Nothing in this forum yet.

Other forums