Abstract
Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/1073110519840481
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 58,321
Through your library

References found in this work BETA

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Openness in the Social Sciences: Sharing Data.Joan E. Sieber - 1991 - Ethics and Behavior 1 (2):69 – 86.
What Should Be the Data Sharing Policy of Cognitive Science?Mark A. Pitt & Yun Tang - 2013 - Topics in Cognitive Science 5 (1):214-221.
Classificatory Theory in Data-Intensive Science: The Case of Open Biomedical Ontologies.Sabina Leonelli - 2012 - International Studies in the Philosophy of Science 26 (1):47 - 65.

Analytics

Added to PP index
2019-04-18

Total views
8 ( #952,340 of 2,419,785 )

Recent downloads (6 months)
1 ( #542,712 of 2,419,785 )

How can I increase my downloads?

Downloads

My notes