Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy

Journal of Law, Medicine and Ethics 42 (2):220-231 (2014)
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Abstract

Recent advances in next generation sequencing along with high hopes for genomic medicine have inspired interest in genomic research with the newly dead. However, applicable law does not adequately determine ethical or policy responses to such research. In this paper we propose that such research stands at a crossroads between other more established biomedical clinical and research practices. In addressing the ethical and policy issues raised by a particular research project within our institution comparatively with these other practices, we illustrate the moral significance of paying careful heed to where one looks for guidance in responding to ethical questions raised by a novel endeavor

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Rebecca Walker
University of North Carolina, Chapel Hill

References found in this work

Death.Thomas Nagel - 1970 - Noûs 4 (1):73-80.
Nicomachean Ethics.Martin Aristotle & Ostwald - 1911 - New York: Hackett Publishing Company. Edited by C. C. W. Taylor.
Informed Consent and Biobanks.Ellen Wright Clayton - 2005 - Journal of Law, Medicine and Ethics 33 (1):15-21.
Informed Consent and Biobanks.Ellen Wright Clayton - 2005 - Journal of Law, Medicine and Ethics 33 (1):15-21.

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