Journal of Medical Ethics:medethics-2020-106760 (forthcoming)
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The field of clinical bioethics strongly advocates for the use of advance directives to promote patient autonomy, particularly at the end of life. This paper reports a study of clinical bioethicists’ perceptions of the professional consensus about advance directives, as well as their personal advance care planning practices. We find that clinical bioethicists are often sceptical about the value of advance directives, and their personal choices about advance directives often deviate from what clinical ethicists acknowledge to be their profession’s recommendations. Moreover, our respondents identified a pluralistic set of justifications for completing treatment directives and designating surrogates, even while the consensus view focuses on patient autonomy. Our results suggest important revisions to academic discussion and public-facing advocacy about advance care planning.
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DOI | 10.1136/medethics-2020-106760 |
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References found in this work BETA
Enough: The Failure of the Living Will.Angela Fagerlin & Carl E. Schneider - 2004 - Hastings Center Report 34 (2):30-42.
Capacity for Preferences: Respecting Patients with Compromised Decision‐Making.Jason Adam Wasserman & Mark Christopher Navin - 2018 - Hastings Center Report 48 (3):31-39.
The Near-Failure of Advance Directives: Why They Should Not Be Abandoned Altogether, but Their Role Radically Reconsidered.Marta Spranzi & Véronique Fournier - 2016 - Medicine, Health Care and Philosophy 19 (4):563-568.
Hope for the Future: Achieving the Original Intent of Advance Directives.Susan E. Hickman, Bernard J. Hammes, Alvin H. Moss & Susan W. Tolle - 2005 - Hastings Center Report 35 (6):s26-s30.
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