Protecting Communities in Pharmacogenetic and Pharmacogenomic Research

Abstract
The existing EELS literature has usefully identified the scope of ethical issues posed by pharmacogenetic and pharmacogenomic research. The time has come for in-depth examination of particular ethical issues. The involvement of racial and ethnic communities in pharmacogenetic and pharmacogenomic research is contentious precisely because it touches upon the science and politics of studying racial and ethnic difference. To date, the ethics literature has not seriously taken account of the fact that such research impinges upon the interests of communities, and that taking such interests seriously requires that we both protect and empower communities in research. We propose a framework that rests upon the recognition that communities are heterogeneous human associations and differing policies are appropriate for differing communities. Community consent and consultation and community consultation alone are neither appropriate nor required for all pharmacogenetic and pharmacogenomic research. Rather, application of these policy protections must take into account particulars of both planned research and the communities involved
Keywords No keywords specified (fix it)
Categories (categorize this paper)
Options
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history
Request removal from index
Translate to english
Download options
Our Archive


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 27,141
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles
Ethical Analysis of Research Partnerships with Communities.Ernest Wallwork - 2008 - Kennedy Institute of Ethics Journal 18 (1):pp. 57-85.
Protecting Communities in Research: Philosophical and Pragmatic Challenges.Charles Weijer - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (4):501-513.
Moral Reasoning and the Review of Research Involving Human Subjects.Lisa Eckenwiler - 2001 - Kennedy Institute of Ethics Journal 11 (1):37-69.

Monthly downloads

Added to index

2010-09-08

Total downloads

4 ( #638,907 of 2,163,620 )

Recent downloads (6 months)

1 ( #348,040 of 2,163,620 )

How can I increase my downloads?

My notes
Sign in to use this feature


Discussion
Order:
There  are no threads in this forum
Nothing in this forum yet.

Other forums