The existing EELS literature has usefully identified the scope of ethical issues posed by pharmacogenetic and pharmacogenomic research. The time has come for in-depth examination of particular ethical issues. The involvement of racial and ethnic communities in pharmacogenetic and pharmacogenomic research is contentious precisely because it touches upon the science and politics of studying racial and ethnic difference. To date, the ethics literature has not seriously taken account of the fact that such research impinges upon the interests of communities, and that taking such interests seriously requires that we both protect and empower communities in research. We propose a framework that rests upon the recognition that communities are heterogeneous human associations and differing policies are appropriate for differing communities. Community consent and consultation and community consultation alone are neither appropriate nor required for all pharmacogenetic and pharmacogenomic research. Rather, application of these policy protections must take into account particulars of both planned research and the communities involved
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
A Critical Appraisal of Protections for Aboriginal Communities in Biomedical Research.Charles Weijer & James A. Anderson - unknown
Protecting Communities in Research: Current Guidelines and Limits of Extrapolation.Charles Weijer, Gary Goldsand & Ezekiel J. Emanuel - unknown
Protecting Communities in Health Research From Exploitation.Segun Gbadegesin & David Wendler - 2006 - Bioethics 20 (5):248-253.
Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice.Sara Goering, Suzanne Holland & Kelly Fryer-Edwards - 2008 - Hastings Center Report 38 (2):43-53.
Ethical Analysis of Research Partnerships with Communities.Ernest Wallwork - 2008 - Kennedy Institute of Ethics Journal 18 (1):pp. 57-85.
Protecting Communities in Research: Philosophical and Pragmatic Challenges.Charles Weijer - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (4):501-513.
Moral Reasoning and the Review of Research Involving Human Subjects.Lisa Eckenwiler - 2001 - Kennedy Institute of Ethics Journal 11 (1):37-69.
Protecting Communities in Research: From a New Principle to Rational Protections.Ezekiel J. Emanuel & Charles Weijer - unknown
Exploring the Ethics of Long-Term Research Engagement With Communities in Low- and Middle-Income Countries.A. A. Hyder, C. B. Krubiner, G. Bloom & A. Bhuiya - 2012 - Public Health Ethics 5 (3):252-262.
Pharmacogenetics: Ethical Issues and Policy Options.Allen E. Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John A. Robertson & Baruch A. Brody - 2002 - Kennedy Institute of Ethics Journal 12 (1):1-15.
Grappling with Groups: Protecting Collective Interests in Biomedical Research.Richard R. Sharp & Morris W. Foster - 2007 - Journal of Medicine and Philosophy 32 (4):321 – 337.
The Ethics of Conducting Community-Engaged Homelessness Research.Vivien Runnels, Elizabeth Hay, Elyse Sevigny & Paddi O’Hara - 2009 - Journal of Academic Ethics 7 (1-2):57-68.
Working with Concepts: The Role of Community in International Collaborative Biomedical Research.V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux - 2011 - Public Health Ethics 4 (1):26-39.
Added to index2010-09-08
Total downloads4 ( #638,907 of 2,163,620 )
Recent downloads (6 months)1 ( #348,040 of 2,163,620 )
How can I increase my downloads?