Journal of Law, Medicine and Ethics 43 (3):552-558 (2015)
Abstract |
Secondary findings for adult-onset diseases in pediatric clinical sequencing can benefit parents or other family members. In the absence of data showing harm, it is ethically reasonable for parents to request such information, because in other types of medical decision-making, they are often given discretion unless their decisions clearly harm the child. Some parents might not want this information because it could distract them from focusing on the child's underlying condition that prompted sequencing. Collecting family impact data may improve future policy determinations
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DOI | 10.1111/jlme.12298 |
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References found in this work BETA
Parental Refusals of Medical Treatment: The Harm Principle as Threshold for State Intervention.Douglas Diekema - 2004 - Theoretical Medicine and Bioethics 25 (4):243-264.
Genetic Dilemmas and the Child's Right to an Open Future.Dena S. Davis - 1997 - Hastings Center Report 27 (2):7-15.
Predicting Our Future: Lessons From Winnie‐the‐Pooh.Benjamin Wilfond - 2012 - Hastings Center Report 42 (4):3-3.
Citations of this work BETA
The Harm Principle Cannot Replace the Best Interest Standard: Problems With Using the Harm Principle for Medical Decision Making for Children.Johan Christiaan Bester - 2018 - American Journal of Bioethics 18 (8):9-19.
“Somatic” Tumor Genomic Profiling and Potential Germline Implications: Ethical Considerations for Children with Cancer.Esther Knapp - 2020 - Journal of Law, Medicine and Ethics 48 (4):778-783.
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