Social contract theory and just decision making: Lessons from genetic testing for the BRCA mutations
Kennedy Institute of Ethics Journal 14 (2):115-142 (2004)
: Decisions about funding health services are crucial to controlling costs in health care insurance plans, yet they encounter serious challenges from intellectual property protection—e.g., patents—of health care services. Using Myriad Genetics' commercial genetic susceptibility test for hereditary breast cancer (BRCA testing) in the context of the Canadian health insurance system as a case study, this paper applies concepts from social contract theory to help develop more just and rational approaches to health care decision making. Specifically, Daniels's and Sabin's "accountability for reasonableness" is compared to broader notions of public consultation, demonstrating that expert assessments in specific decisions must be transparent and accountable and supplemented by public consultation
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
References found in this work BETA
No references found.
Citations of this work BETA
Principles Versus Procedures in Making Health Care Coverage Decisions: Addressing Inevitable Conflicts.Lindsay M. Sabik & Reidar K. Lie - 2008 - Theoretical Medicine and Bioethics 29 (2):73-85.
Challenges for Corporate Ethics in Marketing Genetic Tests.Bryn Williams-Jones & Vural Ozdemir - 2007 - Journal of Business Ethics 77 (1):33 - 44.
Challenges for Corporate Ethics in Marketing Genetic Tests.Bryn Williams-Jones & Vural Ozdemir - 2007 - Journal of Business Ethics 77 (1):33-44.
Similar books and articles
Patients or Customers: Ethical Limits of Market Economy in Health Care.Friedrich Heubel - 2000 - Journal of Medicine and Philosophy 25 (2):240 – 253.
The Use of Genetic Test Information in Insurance: The Argument From Indistinguishability Reconsidered.V. Launis - 2000 - Science and Engineering Ethics 6 (3):299-310.
Improving the Population's Health: The Affordable Care Act and the Importance of Integration.Lorian E. Hardcastle, Katherine L. Record, Peter D. Jacobson & Lawrence O. Gostin - 2011 - Journal of Law, Medicine & Ethics 39 (3):317-327.
Key Concepts in Health Care Priority Setting.Rogeer Hoedemaekers & Wim Dekkers - 2003 - Health Care Analysis 11 (4):309-323.
Genetics and the Interpersonal Elaboration of Ethics.Michael Parker - 2001 - Theoretical Medicine and Bioethics 22 (5):451-459.
Problematic Notions in Dutch Health Care Package Decisions.Rogeer Hoedemaekers & Wija Oortwijn - 2003 - Health Care Analysis 11 (4):287-294.
Genetic Tests in the Insurance System: Criteria for a Moral Evaluation.Felix Thiele - 2003 - Poiesis and Praxis 1 (3):185-195.
Polymorphism-Screening: Genetic Testing for Predisposition—Guidance for Technology Assessment. [REVIEW]Claudia Wild - 2008 - Poiesis and Praxis 5 (1):1-14.
Decision Making in Health Care: Theory, Psychology, and Applications.Gretchen B. Chapman & Frank A. Sonnenberg (eds.) - 2000 - Cambridge University Press.
Direct to Confusion: Lessons Learned From Marketing Brca Testing.Ellen Matloff & Arthur Caplan - 2008 - American Journal of Bioethics 8 (6):5 – 8.
Added to index2009-01-28
Total downloads53 ( #98,100 of 2,163,870 )
Recent downloads (6 months)1 ( #348,100 of 2,163,870 )
How can I increase my downloads?