Journal of Law, Medicine and Ethics 43 (3):594-609 (2015)

Abstract
Answering important public health questions often requires collection of sensitive information about individuals. For example, our understanding of how HIV is transmitted and how to prevent it only came about with people's willingness to share information about their sexual and drug-using behaviors. Given the scientific need for sensitive, personal information, researchers have a corresponding ethical and legal obligation to maintain the confidentiality of data they collect and typically promise in consent forms to restrict access to it and not to publish identifying data.The interests of others, however, can threaten researchers' promises of confidentiality when legal demands are made to access research data. In some cases, the subject of the litigation is tightly connected to the research questions, and litigants' interest in the data is not surprising. Researchers conducting studies on tobacco or occupational or other chemical exposures, for example, are relatively frequent targets of subpoenas.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1111/jlme.12302
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 65,784
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Police Collection and Access to DNA Samples.Jane Kaye - 2006 - Genomics, Society and Policy 2 (1):16-27.
Genomic Research Data: Open Vs. Restricted Access.David B. Resnik - 2010 - IRB: Ethics & Human Research 32 (1):1.
A Qualitative Study of Women's Views on Medical Confidentiality.G. Jenkins - 2005 - Journal of Medical Ethics 31 (9):499-504.
Confidentiality Revisited.Ke Yu - 2008 - Journal of Academic Ethics 6 (2):161-172.

Analytics

Added to PP index
2015-10-20

Total views
10 ( #883,218 of 2,463,162 )

Recent downloads (6 months)
1 ( #449,391 of 2,463,162 )

How can I increase my downloads?

Downloads

My notes