Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

Journal of Law, Medicine and Ethics 43 (3):440-463 (2015)
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Abstract

Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death

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Susan Wolf
University of North Carolina, Chapel Hill