Journal of Law, Medicine and Ethics 48 (S1):159-166 (2020)

Susan Wolf
University of North Carolina, Chapel Hill
Participant-driven research is a burgeoning domain of research innovation, often facilitated by mobile technologies. Return of results and data are common hallmarks, grounded in transparency and data democracy. PDR has much to teach traditional research about these practices and successful engagement. Recommendations calling for new state laws governing research with mHealth modalities common in PDR and federal creation of review mechanisms, threaten to stifle valuable participant-driven innovation, including in return of results.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/1073110520917042
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 55,873
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

View all 13 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

The Return of Results of Deceased Research Participants.Anne Marie Tassé - 2011 - Journal of Law, Medicine and Ethics 39 (4):621-630.


Added to PP index

Total views
5 ( #1,129,867 of 2,401,778 )

Recent downloads (6 months)
2 ( #361,744 of 2,401,778 )

How can I increase my downloads?


My notes