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  1. The Obligation to Participate in Biomedical Research.G. Owen Schaefer, Ezekiel J. Emanuel & Alan Wertheimer - 2009 - Journal of the American Medical Association 302 (1):67-72.
    The current prevailing view is that participation in biomedical research is above and beyond the call of duty. While some commentators have offered reasons against this, we propose a novel public goods argument for an obligation to participate in biomedical research. Biomedical knowledge is a public good, available to any individual even if that individual does not contribute to it. Participation in research is a critical way to support an important public good. Consequently, all have a duty to participate. The (...)
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  • Public Attitudes Towards the Use of Primary Care Patient Record Data in Medical Research Without Consent: A Qualitative Study.M. R. Robling - 2004 - Journal of Medical Ethics 30 (1):104-109.
    Objectives: Recent legislative changes within the United Kingdom have stimulated professional debate about access to patient data within research. However, there is currently little awareness of public views about such research. The authors sought to explore attitudes of the public, and their lay representatives, towards the use of primary care medical record data for research when patient consent was not being sought.Methods: 49 members of the public and four non-medical members of local community health councils in South Wales, UK gave (...)
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  • Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives.Sara Chandros Hull, Karen Glanz, Alana Steffen & Benjamin S. Wilfond - forthcoming - IRB: Ethics & Human Research.
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