In order to ensure an adequate and ongoing protection of individuals participating in scientific research, the impacts of new biomedical technologies, such as Next Generation Sequencing , need to be assessed. In this light, a necessary reexamination of the ethical and legal structures framing research could lead to requisite changes in informed consent modalities. This would have implications for Institutional Review Boards , who bear the responsibility of guaranteeing that participants are verifiably informed, and in sufficient detail, to understand the (...) reality of genetic research as it is practiced now. Current literature allowed the identification of key emergent themes related to the consent process when NGS was used in a research setting. (shrink)

I was an undergraduate studying bioethics in Toronto during the SARS pandemic in what seem like, in retrospect, much simpler times. Now, living in Texas, I'm finishing my PhD degree in the medical humanities. This current pandemic has provided me with an education in trust, scientific expertise, provider burnout, and social justice. It has invigorated my research examining how moral tensions in the therapeutic relationship are heightened when physicians write about patient care. Still, the inevitable comparisons, not just with being (...) in school back then but also with student life before the pandemic, bring... (shrink)

This paper argues that the newspaper Notre Journal enshrined the importance of narrative in the revolutionary psychiatry of its founder and editor, Frantz Fanon. Anchoring my analysis in the interdisciplinarity of the medical humanities, I demonstrate how care at Hôpital Blida-Joinville in colonial Algeria was mediated by the written word. I examine Fanon’s physician writing and editorial texts detailing the use of narrative approaches in the clinic. As an object of care, Notre Journal’s promotion of psychic healing, social actions, and (...) engaged professional practice shaped the interactions and experiences of patients and staff. Printed and distributed to the wider institution, the newspaper created community—during an oppressive French Occupation and at the outset of the War of Independence—in addition to nurturing creativity, curiosity, solidarity, and accountability. Still, Fanon would come to recognize the limits of narrative methods amidst cultural oral traditions, illiteracy, and divergent attitudes about narrating the self. (shrink)

In the United States, the federal Individuals with Disabilities Education Act specifies that students with disabilities should be educated in the “least restrictive environment,” yet little is known about how successfully schools have been able to apply appropriate supports, practices and resources so that all students benefit from inclusion. Using a quasi-experimental method and a longitudinal data-set provided by the Florida Department of Education that spans an eight-year panel from 2001 through 2009, this paper analyses the relationship between the density (...) and diversity of peers with special educational needs and general education students’ absence rates in grades three through eight. Results show that a one standard deviation increase in the measure of special education peers is associated with an increase in general education students’ absences of.03 to.43 more days per year, depending on the empirical specification chosen. This represents as much as a five percent increase in the a... (shrink)

This book examines the contemporary biopolitical significance of an emerging global market for oocytes. Reproductive cells specific to biological females, oocytes are increasingly circulated far and wide between social locations. Given the new possibilities for their use, management, and exchange, Waldby employs a feminist perspective to examine the gendered experiences that yield a highly personal valuation of oocytes. Drawing on Raymond Williams's "structures of feeling", she aims to give qualitative texture to the affective dimensions of human eggs and the complex (...) ways in which these intersect with the lives of women.New technical developments have rendered oocytes more profitable because they can... (shrink)