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Annette Rid
University of Zürich
  1.  9
    Standards of Practice in Empirical Bioethics Research: Towards a Consensus.Jonathan Ives, Michael Dunn, Bert Molewijk, Jan Schildmann, Kristine Bærøe, Lucy Frith, Richard Huxtable, Elleke Landeweer, Marcel Mertz, Veerle Provoost, Annette Rid, Sabine Salloch, Mark Sheehan, Daniel Strech, Martine de Vries & Guy Widdershoven - 2018 - BMC Medical Ethics 19 (1):68.
    This paper reports the process and outcome of a consensus finding project, which began with a meeting at the Brocher Foundation in May 2015. The project sought to generate and reach consensus on standards of practice for Empirical Bioethics research. The project involved 16 academics from 5 different European Countries, with a range of disciplinary backgrounds. The consensus process used a modified Delphi approach. Consensus was reached on 15 standards of practice, organised into 6 domains of research practice. Through articulating (...)
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  2.  6
    In Defense of a Social Value Requirement for Clinical Research.David Wendler & Annette Rid - 2017 - Bioethics 31 (2):77-86.
    Many guidelines and commentators endorse the view that clinical research is ethically acceptable only when it has social value, in the sense of collecting data which might be used to improve health. A version of this social value requirement is included in the Declaration of Helsinki and the Nuremberg Code, and is codified in many national research regulations. At the same time, there have been no systematic analyses of why social value is an ethical requirement for clinical research. Recognizing this (...)
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  3.  76
    Justice and Procedure: How Does “Accountability for Reasonableness” Result in Fair Limit-Setting Decisions?Annette Rid - 2009 - Journal of Medical Ethics 35 (1):12-16.
    orman Daniels’ theory of justice and health faces a serious practical problem: his theory can ground the special moral importance of health and allows distinguishing just from unjust health inequalities, but it provides little practical guidance for allocating resources when they are especially scarce. Daniels’ solution to this problem is a fair process that he specifies as "accountability for reasonableness". Daniels claims that accountability for reasonableness makes limit-setting decisions in healthcare not only legitimate, but also fair. This paper assesses the (...)
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  4.  29
    Research Led by Participants: A New Social Contract for a New Kind of Research.E. Vayena, R. Brownsword, S. J. Edwards, B. Greshake, J. P. Kahn, N. Ladher, J. Montgomery, D. O'Connor, O. O'Neill, M. P. Richards, A. Rid, M. Sheehan, P. Wicks & J. Tasioulas - 2016 - Journal of Medical Ethics 42 (4):216-219.
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  5.  89
    Universal Health Coverage, Priority Setting and the Human Right to Health.Benedict Rumbold, Octavio Ferraz, Sarah Hawkes, Rachel Baker, Carleigh Crubiner, Peter Littlejohns, Ole Frithjof Norheim, Thomas Pegram, Annette Rid, Sridhar Venkatapuram, Alex Voorhoeve, Albert Weale, James Wilson, Alicia Ely Yamin & Daniel Wang - 2017 - The Lancet 390 (10095):712-14.
    As health policy-makers around the world seek to make progress towards universal health coverage, they must navigate between two important ethical imperatives: to set national spending priorities fairly and efficiently; and to safeguard the right to health. These imperatives can conflict, leading some to conclude that rights-based approaches present a disruptive influence on health policy, hindering states’ efforts to set priorities fairly and efficiently. Here, we challenge this perception. We argue first that these points of tension stem largely from inadequate (...)
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  6.  15
    Treatment Decision Making for Incapacitated Patients: Is Development and Use of a Patient Preference Predictor Feasible?Annette Rid & David Wendler - 2014 - Journal of Medicine and Philosophy 39 (2):130-152.
    It has recently been proposed to incorporate the use of a “Patient Preference Predictor” (PPP) into the process of making treatment decisions for incapacitated patients. A PPP would predict which treatment option a given incapacitated patient would most likely prefer, based on the individual’s characteristics and information on what treatment preferences are correlated with these characteristics. Including a PPP in the shared decision-making process between clinicians and surrogates has the potential to better realize important ethical goals for making treatment decisions (...)
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  7.  14
    Use of a Patient Preference Predictor to Help Make Medical Decisions for Incapacitated Patients.A. Rid & D. Wendler - 2014 - Journal of Medicine and Philosophy 39 (2):104-129.
    The standard approach to treatment decision making for incapacitated patients often fails to provide treatment consistent with the patient’s preferences and values and places significant stress on surrogate decision makers. These shortcomings provide compelling reason to search for methods to improve current practice. Shared decision making between surrogates and clinicians has important advantages, but it does not provide a way to determine patients’ treatment preferences. Hence, shared decision making leaves families with the stressful challenge of identifying the patient’s preferred treatment (...)
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  8.  9
    Public Reasoning and Health-Care Priority Setting: The Case of NICE.Benedict Rumbold, Albert Weale, Annette Rid, James Wilson & Peter Littlejohns - 2017 - Kennedy Institute of Ethics Journal 27 (1):107-134.
    Health systems that provide for universal patient access through a scheme of prepayments—whether through taxes, social insurance, or a combination of the two—need to make decisions on the scope of coverage that they secure. Such decisions are inherently controversial, implying, as they do, that some patients will receive less than comprehensive health care, or less than complete protection from the financial consequences of ill-heath, even when there is a clinically effective therapy to which they might have access.Controversial decisions of this (...)
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  9.  24
    Would You Sell a Kidney in a Regulated Kidney Market? Results of an Exploratory Study.Annette Rid, Lucas Bachmann, Vincent Wettstein & Nikola Biller-Andorno - 2009 - Journal of Medical Ethics 35 (9):558-564.
    Background: It is often claimed that a regulated kidney market would significantly reduce the kidney shortage, thus saving or improving many lives. Data are lacking, however, on how many people would consider selling a kidney in such a market. -/- Methods: A survey instrument, developed to assess behavioural dispositions to and attitudes about a hypothetical regulated kidney market, was given to Swiss third-year medical students. -/- Results: Respondents’ (n = 178) median age was 23 years. Their socioeconomic status was high (...)
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  10.  4
    Ethics: Would You Sell a Kidney in a Regulated Kidney Market? Results of an Exploratory Study.A. Rid, L. Bachmann, V. Wettstein & N. Biller-Andorno - 2009 - Journal of Medical Ethics 35 (9):558-564.
    Background: It is often claimed that a regulated kidney market would significantly reduce the kidney shortage, thus saving or improving many lives. Data are lacking, however, on how many people would consider selling a kidney in such a market. Methods: A survey instrument, developed to assess behavioural dispositions to and attitudes about a hypothetical regulated kidney market, was given to Swiss third-year medical students. Results: Respondents’ median age was 23 years. Their socioeconomic status was high or middle. 48 considered selling (...)
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  11.  24
    Can We Improve Treatment Decision-Making for Incapacitated Patients?Annette Rid & David Wendler - 2010 - Hastings Center Report 40 (5):36-45.
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  12.  7
    Substantiating the Social Value Requirement for Research: An Introduction.Annette Rid & Seema K. Shah - 2017 - Bioethics 31 (2):72-76.
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  13.  66
    Can Informed Consent to Research Be Adapted to Risk?Danielle Bromwich & Annette Rid - 2015 - Journal of Medical Ethics 41 (7):521-528.
    The current ethical and regulatory framework for research is often charged with burdening investigators and impeding socially valuable research. To address these concerns, a growing number of research ethicists argue that informed consent should be adapted to the risks of research participation. This would require less rigorous consent standards in low-risk research than in high-risk research. However, the current discussion is restricted to cases of research in which the risks of research participation are outweighed by the potential clinical benefits for (...)
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  14.  4
    Do Patients Want Their Families or Their Doctors to Make Treatment Decisions in the Event of Incapacity, and Why?David Wendler, Robert Wesley, Mark Pavlick & Annette Rid - 2016 - Ajob Empirical Bioethics 7 (4):251-259.
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  15.  9
    The Goals of Research During an Epidemic.Annette Rid - 2015 - American Journal of Bioethics 15 (4):47-50.
  16.  4
    Setting Risk Thresholds in Biomedical Research: Lessons From the Debate About Minimal Risk.Annette Rid - 2014 - Monash Bioethics Review 32 (1-2):63-85.
    One of the fundamental ethical concerns about biomedical research is that it frequently exposes participants to risks for the benefit of others. To protect participants’ rights and interests in this context, research regulations and guidelines set out a mix of substantive and procedural requirements for research involving humans. Risk thresholds play an important role in formulating both types of requirements. First, risk thresholds serve to set upper risk limits in certain types of research. Second, risk thresholds serve to demarcate risk (...)
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  17.  12
    The 2008 Declaration of Helsinki - First Among Equals in Research Ethics?Annette Rid & Harald Schmidt - 2010 - Journal of Law, Medicine and Ethics 38 (1):143-148.
    The World Medical Association's Declaration of Helsinki is one of the most important and influential international research ethics documents. Its most recent 2008 version declares unprecedented universal primacy over all existing national or international ethical, legal, or regulatory requirements. This self-proclaimed status as a set of minimal ethical standards raises important questions about the Declaration's appropriate normative status. The present paper argues that the new claim of ethical primacy is problematic and makes the Declaration unnecessarily vulnerable to criticism. Future revisions (...)
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  18.  2
    The 2008 Declaration of Helsinki — First Among Equals in Research Ethics?Annette Rid & Harald Schmidt - 2010 - Journal of Law, Medicine and Ethics 38 (1):143-148.
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  19.  25
    Joachim Boos, Reinhard Merkel, Heiner Raspe, Bettina Schöne-Seifert (Hrsg) (2009) Nutzen und Schaden aus klinischer Forschung am Menschen. Abwägung, Equipoise und normative Grundlagen.Annette Rid - 2010 - Ethik in der Medizin 22 (2):167-168.
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  20.  2
    The Next Wave in Health Care Priority Setting.Annette Rid - 2018 - Hastings Center Report 48 (4):inside front cover-inside front.
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  21.  21
    Kommentar I zum Fall:„Heimlicher Transfer von HIV-Medikamenten nach Afrika “.Tanja Krones, Christine Angelika Rüegg, Huldrych Fritz Günthard, Annette Rid & Verina Wild - 2012 - Ethik in der Medizin 24 (1):59-61.
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  22.  16
    Prisoners as Research Participants: Current Practice and Attitudes in the UK.A. Charles, A. Rid, H. Davies & H. Draper - 2016 - Journal of Medical Ethics 42 (4):246-252.
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  23.  15
    Justice in Action? Introduction to the Minisymposium on Norman Daniels' Just Health: Meeting Health Needs Fairly.A. Rid & N. Biller-Andorno - 2009 - Journal of Medical Ethics 35 (1):1-2.
  24.  10
    A New Method for Making Treatment Decisions for Incapacitated Patients: What Do Patients Think About the Use of a Patient Preference Predictor?David Wendler, Bob Wesley, Mark Pavlick & Annette Rid - 2016 - Journal of Medical Ethics 42 (4):235-241.
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  25.  3
    Individual and Public Interests in Clinical Research During Epidemics: A Reply to Calain.Annette Rid - 2018 - Journal of Medical Ethics 44 (1):11-12.
    In his stimulating target article,1 Philippe Calain discusses how the traditional ethical framework for clinical research was challenged during the 2013–2016 Ebola epidemic in West Africa. One of his key claims is that conventional research ethics did not have the resources to address the ‘profound tension’1, between individual and public interests in clinical research during this epidemic. I agree with this claim, but would like to provide a modified argument in its support. As Calain points out, although a tension between (...)
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  26.  12
    Will a Patient Preference Predictor Improve Treatment Decision Making for Incapacitated Patients?Annette Rid - 2014 - Journal of Medicine and Philosophy 39 (2):99-103.
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  27.  2
    Individual and public interests in clinical research during epidemics: a reply to Calain: In response to: Calain P. The Ebola clinical trials: a precedent for research ethics in disasters.A. Rid - 2017 - Journal of Medical Ethics Recent Issues 44 (1):11-12.
    In his stimulating target article, 1 Philippe Calain discusses how the traditional ethical framework for clinical research was challenged during the 2013–2016 Ebola epidemic in West Africa. One of his key claims is that conventional research ethics did not have the resources to address the ‘profound tension’ 1, between individual and public interests in clinical research during this epidemic. I agree with this claim, but would like to provide a modified argument in its support. As Calain points out, although a (...)
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  28. What is Enough?: Sufficiency, Justice, and Health.Carina Fourie & Annette Rid (eds.) - 2016 - Oxford University Press.
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  29. What is Enough? Sufficiency, Justice, and Health.Carina Fourie & Annette Rid (eds.) - 2016 - Cambridge University Press.
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