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Ainsley J. Newson [30]Ainsley Newson [10]Ainsley Janelle Newson [2]
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Ainsley Newson
University of Sydney
  1.  28
    Reconceptualizing Autonomy for Bioethics.Lisa Dive & Ainsley J. Newson - 2018 - Kennedy Institute of Ethics Journal 28 (2):171-203.
    The concept of autonomy plays a central role in bioethics,1 but there is no consensus as to how we should understand it beyond a general notion of self-determination. The conception of autonomy deployed in applied ethics2 can have crucial ramifications when it is applied in real-world scenarios, so it is important to be clear. However, this clarity is often lacking when autonomy is discussed in the bioethics literature. In this paper we outline three different conceptions of autonomy, and argue that (...)
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  2.  30
    Clinical Ethics Consultation in Europe: A Comparative and Ethical Review of the Role of Patients.Véronique Fournier, Eirini Rari, Reidun Førde, Gerald Neitzke, Renzo Pegoraro & Ainsley J. Newson - 2009 - Clinical Ethics 4 (3):131-138.
    Clinical ethics has developed significantly in Europe over the past 15 years and remains an evolving process. While sharing our experiences in different European settings, we were surprised to discover marked differences in our practice, especially regarding the position and role of patients. In this paper, we describe these differences, such as patient access to and participation or representation in ethics consults. We propose reasons to explain these differences, hypothesizing that they relate to the historic and sociocultural context of implementation (...)
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  3.  45
    Should Non-Invasiveness Change Informed Consent Procedures for Prenatal Diagnosis?Zuzana Deans & Ainsley J. Newson - 2011 - Health Care Analysis 19 (2):122-132.
    Empirical evidence suggests that some health professionals believe consent procedures for the emerging technology of non-invasive prenatal diagnosis (NIPD) should become less rigorous than those currently used for invasive prenatal testing. In this paper, we consider the importance of informed consent and informed choice procedures for protecting autonomy in those prenatal tests which will give rise to a definitive result. We consider whether there is anything special about NIPD that could sanction a change to consent procedures for prenatal diagnosis or (...)
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  4.  59
    The Role of Patients in European Clinical Ethics Consultation.Ainsley J. Newson, Gerald Neitzke & Stella Reiter-Theil - 2009 - Clinical Ethics 4 (3):109-110.
  5.  21
    The Role of Patients in Clinical Ethics Support: A Snapshot of Practices and Attitudes in the United Kingdom.Ainsley J. Newson - 2009 - Clinical Ethics 4 (3):139-145.
    Clinical ethics committees (CECs) in the United Kingdom (UK) have developed significantly over the past 15 years. The issue of access to and participation in clinical ethics consultation by patients and family members has, however, gone largely unrecognized. There are various dimensions to this kind of contact, including patient notification, consent and participation. This study reports the first specific investigation of patient contact with UK CECs. A questionnaire study was carried out with representatives from UK CECs. Results suggest that patient (...)
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  6.  9
    “Who is Watching the Watchdog?”: Ethical Perspectives of Sharing Health-Related Data for Precision Medicine in Singapore.Tamra Lysaght, Angela Ballantyne, Vicki Xafis, Serene Ong, Gerald Owen Schaefer, Jeffrey Min Than Ling, Ainsley J. Newson, Ing Wei Khor & E. Shyong Tai - 2020 - BMC Medical Ethics 21 (1):1-11.
    Background We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data sharing are under-represented in prior attitudinal research. Methods We conducted seven focus groups with 62 participants in Singapore from May to July 2019. They were conducted in three languages and analysed with qualitative content and thematic analysis. Results Four (...)
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  7.  41
    Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?Angela Ballantyne, Ainsley Newson, Florencia Luna & Richard Ashcroft - 2009 - American Journal of Bioethics 9 (8):48-56.
    This target article considers the ethical implications of providing prenatal diagnosis (PND) and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential harms derive from the provision of PND in the absence of legal and safe abortion (...)
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  8.  44
    For Your Interest? The Ethical Acceptability of Using Non‐Invasive Prenatal Testing to Test ‘Purely for Information’.Zuzana Deans, Angus J. Clarke & Ainsley J. Newson - 2015 - Bioethics 29 (1):19-25.
    Non-invasive prenatal testing is an emerging form of prenatal genetic testing that provides information about the genetic constitution of a foetus without the risk of pregnancy loss as a direct result of the test procedure. As with other prenatal tests, information from NIPT can help to make a decision about termination of pregnancy, plan contingencies for birth or prepare parents to raise a child with a genetic condition. NIPT can also be used by women and couples to test purely ‘for (...)
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  9.  8
    Technical Categories and Ethical Justifications: Why Cwik’s Approach is the Wrong Way Around for Categorizing Germ-Line Gene Editing.Anthony Wrigley & Ainsley J. Newson - 2020 - American Journal of Bioethics 20 (8):27-29.
    Volume 20, Issue 8, August 2020, Page 27-29.
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  10. Population Screening.Ainsley J. Newson & A. Dawson - forthcoming - Public Health Ethics. Key Concepts and Issues in Policy and Practice:118--42.
     
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  11.  18
    Rethinking Pediatric Ethics Consultations.Henry Kilham, David Isaacs, Ian Kerridge & Ainsley Newson - 2015 - American Journal of Bioethics 15 (5):26-28.
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  12.  50
    Behavioural Genetics: Why Eugenic Selection is Preferable to Enhancement.Julian Savulescu, Melanie Hemsley, Ainsley Newson & Bennett Foddy - 2006 - Journal of Applied Philosophy 23 (2):157-171.
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  13.  4
    Ethical Considerations for Choosing Between Possible Models for Using NIPD for Aneuploidy Detection.Zuzana Deans & Ainsley Janelle Newson - 2012 - Journal of Medical Ethics 38 (10):614-618.
    Recent scientific advances mean the widespread introduction of non-invasive prenatal diagnosis (NIPD) for chromosomal aneuploidies may be close at hand, raising the question of how NIPD should be introduced as part of antenatal care pathways for pregnant women. In this paper, the authors examine the ethical implications of three hypothetical models for using NIPD for aneuploidy in state-funded healthcare systems and assess which model is ethically preferable. In comparing the models, the authors consider their respective timings; how each model would (...)
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  14.  4
    The Perils of a Broad Approach to Public Interest in Health Data Research: A Response to Ballantyne and Schaefer.Norah Grewal & Ainsley J. Newson - 2021 - Journal of Medical Ethics 47 (8):580-582.
    The law often calls on the concept of public interest for assistance. Privacy law makes use of this concept in several ways, including to justify consent waivers for secondary research on health information. Because the law sees information privacy as a means for individuals to control their personal information, consent can only be set aside in special circumstances. Ballantyne and Schaefer argue that only public interest, and only a broad conception of public interest, can do the special ‘normative justificatory work’ (...)
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  15.  20
    Whither Authenticity?Ainsley J. Newson & Richard E. Ashcroft - 2005 - American Journal of Bioethics 5 (3):53 – 55.
  16.  35
    Communication of Genetic Information Within Families: The Case for Familial Comity. [REVIEW]Angela Davey, Ainsley Newson & Peter O’Leary - 2006 - Journal of Bioethical Inquiry 3 (3):161-166.
    Advances in genetic technologies raise a multitude of ethical issues, some of which give rise to novel dilemmas for medical practice. One of the most controversial problems arising in clinical genetics is that of confidentiality and who may disclose genetic health information. This paper considers the question of when it is appropriate for health professionals to disclose clinically significant genetic information without patient consent. Existing ethical principles offer little guidance in relation to this issue. We build on suggestions that genetic (...)
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  17.  19
    Should Parental Refusals of Newborn Screening Be Respected?Newson Ainsley - 2006 - Cambridge Quarterly of Healthcare Ethics 15 (2):135-146.
    For over four decades, knowledge that symptoms of some inherited diseases can be prevented or reduced via early detection and treatment in newborns has underpinned state-funded screening programs in most developed countries. Conditions for which newborn screening is now a recognized preventative public health initiative include phenylketonuria, congenital hypothyroidism, and, more recently, cystic fibrosis and sickle cell disorder. The use of tandem mass spectrometry to detect conditions such as amino-acidopathies and fatty-acid oxidation defects is also becoming increasingly prevalent. a.
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  18.  51
    Clinical Ethics Committee Case 6: Our Patient Wishes to Take an Unlisted Drug Even Though We're Not Sure of His Diagnosis.Ainsley J. Newson - 2009 - Clinical Ethics 4 (2):59-63.
  19.  12
    Clinical Genetics and the Problem with Unqualified Confidentiality.Rony E. Duncan & Ainsley J. Newson - 2006 - American Journal of Bioethics 6 (2):41 – 43.
  20.  7
    Clinical Ethics Committee Case 9: Should We Inform Our Patient About Animal Products in His Medicine?Ainsley J. Newson - 2010 - Clinical Ethics 5 (1):7-12.
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  21.  57
    The Nature and Significance of Behavioural Genetic Information.Ainsley Newson - 2004 - Theoretical Medicine and Bioethics 25 (2):89-111.
    In light of the human genome project, establishing the genetic aetiology of complex human diseases has become a research priority within Western medicine. However, in addition to the identification of disease genes, numerous research projects are also being undertaken to identify genes contributing to the development of human behavioural characteristics, such as cognitive ability and criminal tendency. The permissibility of this research is obviously controversial: will society benefit from this research, or will it adversely affect our conceptions of ourselves and (...)
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  22.  18
    Response to Open Peer Commentaries on “Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?”.Angela Ballantyne, Ainsley Newson, Florencia Luna & Richard Ashcroft - 2009 - American Journal of Bioethics 9 (8):6-7.
    This target article considers the ethical implications of providing prenatal diagnosis and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential harms derive from the provision of PND in the absence of legal and safe abortion for (...)
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  23.  74
    Synthetic Biology for Human Health: Issues for Ethical Discussion and Policy‐Making.Nikola Biller‐Andorno, Ruud Meulen & Ainsley Newson - 2013 - Bioethics 27 (8).
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  24. Synthetic Biology for Human Health: Issues for Ethical Discussion and Policy-Making.Nikola Biller-Andorno, Ruud ter Meulen & Ainsley Newson - 2013 - Bioethics 27 (8):ii-iii.
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  25.  3
    Ethics of Reproductive Genetic Carrier Screening: From the Clinic to the Population.Lisa Dive & Ainsley J. Newson - forthcoming - Public Health Ethics:phab017.
    Reproductive genetic carrier screening is increasingly being offered more widely, including to people with no family history or otherwise elevated chance of having a baby with a genetic condition. There are valid reasons to reject a prevention-focused public health ethics approach to such screening programs. Rejecting the prevention paradigm in this context has led to an emphasis on more individually-focused values of freedom of choice and fostering reproductive autonomy in RCS. We argue, however, that population-wide RCS has sufficient features in (...)
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  26.  10
    Obligations and Preferences in Knowing and Not Knowing: The Importance of Context.Lisa Dive & Ainsley Janelle Newson - 2020 - Journal of Medical Ethics 46 (5):306-307.
    In healthcare broadly, and especially in genetic medicine, there is an ongoing debate about whether patients have a right not to know information about their own health. The extensive literature on this topic is characterised by a range of different understandings of what it means to have a RNTK,1–9 and how this purported right relates to patient autonomy. Ben Davies considers whether obligations not to place avoidable burdens on a publicly funded healthcare system might form the basis for an obligation (...)
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  27.  6
    Reproductive Carrier Screening: Responding to the Eugenics Critique.Lisa Dive & Ainsley J. Newson - forthcoming - Journal of Medical Ethics:medethics-2021-107343.
    Reproductive genetic carrier screening, when offered to anyone regardless of their family history or ancestry, has been subject to the critique that it is a form of eugenics. Eugenics describes a range of practices that seek to use the science of heredity to improve the genetic composition of a population group. The term is associated with a range of unethical programmes that were taken up in various countries during the 20th century. Contemporary practice in medical genetics has, understandably, distanced itself (...)
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  28.  4
    Disclosure to Genetic Relatives Without Consent – Australian Genetic Professionals’ Awareness of the Health Privacy Law.Jane Fleming, Ainsley J. Newson, Kate Dunlop, Kristine Barlow-Stewart & Natalia Meggiolaro - 2020 - BMC Medical Ethics 21 (1):1-10.
    BackgroundWhen a genetic mutation is identified in a family member, internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choosing not to communicate the information or failing to communicate the information despite intention to do so, respectively. The ethical obligations to prevent harm to at-risk relatives and promote the duty of care by genetic health professionals is in conflict with Privacy laws (...)
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  29.  5
    Clinical Ethics Committee Case 7: Our Young Patient is in Heart Failure but has Multiple Co-Morbidities. How Can We Best Care for Him and His Family?Ainsley J. Newson - 2009 - Clinical Ethics 4 (3):111-115.
  30.  20
    Clinical Ethics Committee Case 16: A Request From an Accident and Emergency Department - Should We Give Our Patient a Blood Transfusion?Ainsley J. Newson - 2011 - Clinical Ethics 6 (4):154-158.
  31.  6
    Clinical Ethics Committee Case 17: A Paramedic Sustains a Bite While Attending a Callout and the Assailant Refuses Testing for HIV or Hepatitis C: What Should We Do?Ainsley J. Newson - 2012 - Clinical Ethics 7 (1):1-6.
  32.  3
    Clinical Ethics Committee Case 10: For the Record: Should Our Patient's Relatives Be Able to Record Her Treatment?Ainsley J. Newson - 2010 - Clinical Ethics 5 (2):57-62.
  33.  8
    Do We Need Ethical Theory to Achieve Quality Critical Engagement in Clinical Ethics?Ainsley J. Newson & Rosalind McDougall - 2016 - American Journal of Bioethics 16 (9):43-45.
  34.  5
    Personal Genomics as an Interactive Web Broadcast.Ainsley J. Newson - 2009 - American Journal of Bioethics 9 (6-7):27-29.
  35.  20
    Should We Undertake Genetic Research on Intelligence?Ainsley Newson & Robert Williamson - 1999 - Bioethics 13 (3-4):327-342.
  36.  7
    Whole Genome Sequencing in Children: Ethics, Choice and Deliberation.Ainsley J. Newson - 2017 - Journal of Medical Ethics 43 (8):540-542.
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  37.  13
    From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.Jacqueline Savard, Chriselle Hickerton, Sylvia A. Metcalfe, Clara Gaff, Anna Middleton & Ainsley J. Newson - 2020 - Ajob Empirical Bioethics 11 (1):63-76.
    Background: Personal genomic testing (PGT) offers individuals genetic information about relationships, wellness, sporting ability, and health. PGT is increasingly accessible online, including in emerging markets such as Australia. Little is known about what consumers expect from these tests and whether their reflections on testing resonate with bioethics concepts such as autonomy. Methods: We report findings from focus groups and semi-structured interviews that explored attitudes to and experiences of PGT. Focus group participants had little experience with PGT, while interview participants had (...)
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  38.  13
    Regulating Risk and the Boundaries of State Conduct: A Relational Perspective on Home Birth in Australia.Jindalae K. Skerman & Ainsley J. Newson - 2016 - American Journal of Bioethics 16 (2):19-21.
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  39.  3
    ‘There is a Lot of Good in Knowing, but There is Also a Lot of Downs’: Public Views on Ethical Considerations in Population Genomic Screening.Amelia K. Smit, Gillian Reyes-Marcelino, Louise Keogh, Anne E. Cust & Ainsley J. Newson - forthcoming - Journal of Medical Ethics:medethics-2019-105934.
    Publics are key stakeholders in population genomic screening and their perspectives on ethical considerations are relevant to programme design and policy making. Using semi-structured interviews, we explored social views and attitudes towards possible future provision of personalised genomic risk information to populations to inform prevention and/or early detection of relevant conditions. Participants were members of the public who had received information on their personal genomic risk of melanoma as part of a research project. The focus of the analysis presented here (...)
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  40.  6
    To Offer or Request? Disclosing Variants of Uncertain Significance in Prenatal Testing.Gabriel Watts & Ainsley J. Newson - forthcoming - Bioethics.
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  41. To Offer or Request? Disclosing Variants of Uncertain Significance in Prenatal Testing.Gabriel Watts & Ainsley J. Newson - forthcoming - Wiley: Bioethics.
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  42.  19
    Scanning the Body, Sequencing the Genome: Dealing with Unsolicited Findings.Roel H. P. Wouters, Candice Cornelis, Ainsley J. Newson, Eline M. Bunnik & Annelien L. Bredenoord - 2017 - Bioethics 31 (9):648-656.
    The introduction of novel diagnostic techniques in clinical domains such as genomics and radiology has led to a rich ethical debate on how to handle unsolicited findings that result from these innovations. Yet while unsolicited findings arise in both genomics and radiology, most of the relevant literature to date has tended to focus on only one of these domains. In this article, we synthesize and critically assess similarities and differences between “scanning the body” and “sequencing the genome” from an ethical (...)
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