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Angela Ballantyne [49]Angela J. Ballantyne [3]
  1. Consent and the ethical duty to participate in health data research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.
    The predominant view is that a study using health data is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some studies the Institutional (...)
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  2. An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the Science, Health and (...)
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  3. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care.Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Joel Michael Reynolds, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Rosemarie Garland-Thomson, Anita Tarzian, Doron Dorfman & Joseph J. Fins - 2020 - Hastings Center Report 50 (3):28-32.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both (...)
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  4.  73
    How to Do Research Fairly in an Unjust World.Angela J. Ballantyne - 2010 - American Journal of Bioethics 10 (6):26-35.
    International research, sponsored by for-profit companies, is regularly criticised as unethical on the grounds that it exploits research subjects in developing countries. Many commentators agree that exploitation occurs when the benefits of cooperative activity are unfairly distributed between the parties. To determine whether international research is exploitative we therefore need an account of fair distribution. Procedural accounts of fair bargaining have been popular solutions to this problem, but I argue that they are insufficient to protect against exploitation. I argue instead (...)
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  5. Public interest in health data research: laying out the conceptual groundwork.Angela Ballantyne & G. Owen Schaefer - 2020 - Journal of Medical Ethics 46 (9):610-616.
    The future of health research will be characterised by three continuing trends: rising demand for health data; increasing impracticability of obtaining specific consent for secondary research; and decreasing capacity to effectively anonymise data. In this context, governments, clinicians and the research community must demonstrate that they can be responsible stewards of health data. IRBs and RECs sit at heart of this process because in many jurisdictions they have the capacity to grant consent waivers when research is judged to be of (...)
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  6.  28
    How should we think about clinical data ownership?Angela Ballantyne - 2020 - Journal of Medical Ethics 46 (5):289-294.
    The concept of ‘ownership’ is increasingly central to debates, in the media, health policy and bioethics, about the appropriate management of clinical data. I argue that the language of ownership acts as a metaphor and reflects multiple concerns about current data use and the disenfranchisement of citizens and collectives in the existing data ecosystem. But exactly which core interests and concerns ownership claims allude to remains opaque. Too often, we jump straight from ‘ownership’ to ‘private property’ and conclude ‘the data (...)
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  7.  48
    Big Data and Public-Private Partnerships in Healthcare and Research: The Application of an Ethics Framework for Big Data in Health and Research.Angela Ballantyne & Cameron Stewart - 2019 - Asian Bioethics Review 11 (3):315-326.
    Public-private partnerships are established to specifically harness the potential of Big Data in healthcare and can include partners working across the data chain—producing health data, analysing data, using research results or creating value from data. This domain paper will illustrate the challenges that arise when partners from the public and private sector collaborate to share, analyse and use biomedical Big Data. We discuss three specific challenges for PPPs: working within the social licence, public antipathy to the commercialisation of public sector (...)
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  8.  40
    Digital contact tracing and exposure notification: ethical guidance for trustworthy pandemic management.Robert Ranisch, Niels Nijsingh, Angela Ballantyne, Anne van Bergen, Alena Buyx, Orsolya Friedrich, Tereza Hendl, Georg Marckmann, Christian Munthe & Verina Wild - 2020 - Ethics and Information Technology 23 (3):285-294.
    There is growing interest in contact tracing apps for pandemic management. It is crucial to consider ethical requirements before, while, and after implementing such apps. In this paper, we illustrate the complexity and multiplicity of the ethical considerations by presenting an ethical framework for a responsible design and implementation of CT apps. Using this framework as a starting point, we briefly highlight the interconnection of social and political contexts, available measures of pandemic management, and a multi-layer assessment of CT apps. (...)
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  9.  32
    Adjusting the focus: A public health ethics approach to data research.Angela Ballantyne - 2019 - Bioethics 33 (3):357-366.
    This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population‐level research and big data because it results in a primary focus on consent (meta‐, broad, dynamic and/or specific consent). Two recent guidelines – the 2016 WMA Declaration of Taipei on ethical considerations regarding health databases and biobanks and the revised CIOMS International ethical guidelines for health‐related research involving humans – both focus on the growing reliance on health data (...)
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  10.  92
    Benefits to research subjects in international trials: Do they reduce exploitation or increase undue inducement?Angela Ballantyne - 2006 - Developing World Bioethics 8 (3):178-191.
    There is an alleged tension between undue inducement and exploitation in research trials. This paper considers claims that increasing the benefits to research subjects enrolled in international, externally-sponsored clinical trials should be avoided on the grounds that it may result in the undue inducement of research subjects. This article contributes to the debate about exploitation versus undue inducement by introducing an analysis of the available empirical research into research participants' motivations and the influence of payments on research subjects' behaviour and (...)
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  11.  42
    Revisiting the equity debate in COVID-19: ICU is no panacea.Angela Ballantyne, Wendy A. Rogers, Vikki Entwistle & Cindy Towns - 2020 - Journal of Medical Ethics 46 (10):641-645.
    Throughout March and April 2020, debate raged about how best to allocate limited intensive care unit resources in the face of a growing COVID-19 pandemic. The debate was dominated by utility-based arguments for saving the most lives or life-years. These arguments were tempered by equity-based concerns that triage based solely on prognosis would exacerbate existing health inequities, leaving disadvantaged patients worse off. Central to this debate was the assumption that ICU admission is a valuable but scarce resource in the pandemic (...)
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  12.  36
    Against the use and publication of contemporary unethical research: the case of Chinese transplant research.Wendy C. Higgins, Wendy A. Rogers, Angela Ballantyne & Wendy Lipworth - 2020 - Journal of Medical Ethics 46 (10):678-684.
    Recent calls for retraction of a large body of Chinese transplant research and of Dr Jiankui He’s gene editing research has led to renewed interest in the question of publication, retraction and use of unethical biomedical research. In Part 1 of this paper, we briefly review the now well-established consequentialist and deontological arguments for and against the use of unethical research. We argue that, while there are potentially compelling justifications for use under some circumstances, these justifications fail when unethical practices (...)
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  13.  39
    Racism in healthcare and bioethics.Agomoni Ganguli-Mitra, Arianne Shahvisi, Angela Ballantyne & Keisha Ray - 2022 - Bioethics 36 (3):233-234.
    Bioethics, Volume 36, Issue 3, Page 233-234, March 2022.
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  14. ‘Fair benefits’ accounts of exploitation require a normative principle of fairness: Response to Gbadegesin and Wendler, and Emanuel et al.Angela Ballantyne - 2008 - Bioethics 22 (4):239–244.
    In 2004 Emanuel et al. published an influential account of exploitation in international research, which has become known as the 'fair benefits account'. In this paper I argue that the thin definition of fairness presented by Emanuel et al, and subsequently endorsed by Gbadegesin and Wendler, does not provide a notion of fairness that is adequately robust to support a fair benefits account of exploitation. The authors present a procedural notion of fairness – the fair distribution of the benefits of (...)
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  15.  34
    “Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore.Tamra Lysaght, Angela Ballantyne, Vicki Xafis, Serene Ong, Gerald Owen Schaefer, Jeffrey Min Than Ling, Ainsley J. Newson, Ing Wei Khor & E. Shyong Tai - 2020 - BMC Medical Ethics 21 (1):1-11.
    Background We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data sharing are under-represented in prior attitudinal research. Methods We conducted seven focus groups with 62 participants in Singapore from May to July 2019. They were conducted in three languages and analysed with qualitative content and thematic analysis. Results Four (...)
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  16.  21
    Hiv international clinical research: Exploitation and risk.Angela Ballantyne - 2005 - Bioethics 19 (5-6):476-491.
    This paper aims to show that to reduce the level of exploitation present in (some) international clinical trials, research sponsors must aim to provide both an ex-ante expected gain in utility and a fair ex-post distribution of benefits for research subjects. I suggest the following principles of fair risk distribution in international research as the basis of a normative definition of fairness: (a) Persons should not be forced (by circumstance) to gamble in order to achieve or protect basic goods; (b) (...)
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  17.  39
    Gender and trust in medicine: Vulnerabilities, abuses, and remedies.Wendy Rogers & Angela Ballantyne - 2008 - International Journal of Feminist Approaches to Bioethics 1 (1):48-66.
    Trust is taken to be one of the foundational values in the doctor-patient relationship, facilitating access to the benefits of health care and providing a guarantee against possible harms. Despite this foundational role, some doctors betray the trust of their patients. Trusting involves granting discretionary powers and makes the truster vulnerable to the trustee. Patients trust medical practitioners to act with goodwill and to act competently. Some patients carry pre-existing vulnerabilities, for reasons such as gender, poverty, age, ethnicity, or disability, (...)
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  18.  19
    Perceptions of ‘Precision’ and ‘Personalised’ Medicine in Singapore and Associated Ethical Issues.Serene Ong, Jeffrey Ling, Angela Ballantyne, Tamra Lysaght & Vicki Xafis - 2021 - Asian Bioethics Review 13 (2):179-194.
    Governments are investing in precision medicine with the aim of improving healthcare through the use of genomic analyses and data analytics to develop tailored treatment approaches for individual patients. The success of PM is contingent upon clear public communications that engender trust and secure the social licence to collect and share large population-wide data sets because specific consent for each data re-use is impractical. Variation in the terminology used by different programmes used to describe PM may hinder clear communication and (...)
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  19.  60
    Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?Angela Ballantyne, Ainsley Newson, Florencia Luna & Richard Ashcroft - 2009 - American Journal of Bioethics 9 (8):48-56.
    This target article considers the ethical implications of providing prenatal diagnosis (PND) and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential harms derive from the provision of PND in the absence of legal and safe abortion (...)
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  20.  26
    Ethics of digital contact tracing wearables.G. Owen Schaefer & Angela Ballantyne - 2022 - Journal of Medical Ethics 48 (9):611-615.
    The success of digital COVID-19 contact tracing requires a strategy that successfully addresses the digital divide—inequitable access to technology such as smartphones. Lack of access both undermines the degree of social benefit achieved by the use of tracing apps, and exacerbates existing social and health inequities because those who lack access are likely to already be disadvantaged. Recently, Singapore has introduced portable tracing wearables (with the same functionality as a contact tracing app) to address the equity gap and promote public (...)
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  21.  29
    Sharing precision medicine data with private industry: Outcomes of a citizens’ jury in Singapore.Angela Ballantyne, Tamra Lysaght, Hui Jin Toh, Serene Ong, Andrew Lau, G. Owen Schaefer, Vicki Xafis, E. Shyong Tai, Ainsley J. Newson, Stacy Carter, Chris Degeling & Annette Braunack-Mayer - 2022 - Big Data and Society 9 (1).
    Precision medicine is an emerging approach to treatment and disease prevention that relies on linkages between very large datasets of health information that is shared amongst researchers and health professionals. While studies suggest broad support for sharing precision medicine data with researchers at publicly funded institutions, there is reluctance to share health information with private industry for research and development. As the private sector is likely to play an important role in generating public benefits from precision medicine initiatives, it is (...)
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  22.  46
    Patient participation in clinical ethics support services – Patient-centered care, justice and cultural competence.Angela J. Ballantyne, Elizabeth Dai & Ben Gray - 2017 - Clinical Ethics 12 (1):11-18.
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  23.  20
    In defence of a broad approach to public interest in health data research.Angela Ballantyne & G. Owen Schaefer - 2021 - Journal of Medical Ethics 47 (8):583-584.
    In their response to ‘Public interest in health data research: laying out the conceptual groundwork’, Grewal and Newson critique us for inattention to the law and putting forward an impracticably broad conceptual understanding of public interest. While we agree more work is needed to generate a workable framework for Institutional Review Boards/Research Ethics Committees, we would contend that this should be grounded on a broad conception of public interest. This broadness facilitates regulatory agility, and is already reflected by some current (...)
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  24.  25
    Data and tissue research without patient consent: A qualitative study of the views of research ethics committees in New Zealand.Angela Ballantyne & Andrew Moore - 2018 - AJOB Empirical Bioethics 9 (3):143-153.
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  25.  10
    When is sex-specific research appropriate?Wendy Rogers & Angela Ballantyne - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):36-57.
    Inclusion in research is a question of both scientific validity of research results and just distribution of the benefits of medical research within a community. Therefore, inappropriate exclusions from research can be regulated as a matter of science or a matter of ethics. In this paper we examine the definitions of appropriate/fair inclusion in the Australian and U.S. regulatory systems and discuss the processes for interpreting and implementing these normative standards. In the second part of the paper, we present original (...)
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  26.  34
    Exploitation in Cross-Border Reproductive Care.Angela Ballantyne - 2014 - International Journal of Feminist Approaches to Bioethics 7 (2):75-99.
    Concerns about exploitation pervade the literature on commercial cross-border reproductive care, particularly egg selling and surrogacy. But what constitutes exploitation, and what moral weight does it have? I consider the relationship between vulnerability, limited choice, consent, and mutually advantageous exploitation. To elucidate the difference between limited choice and consent, I draw on an account of relational autonomy. In the absence of a normative principle of fair distribution, it is unclear whether the providers of reproductive goods and services are treated fairly (...)
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  27.  19
    The experiences of pregnant women in an interventional clinical trial: Research In Pregnancy Ethics study.Angela Ballantyne, Susan Pullon, Lindsay Macdonald, Christine Barthow, Kristen Wickens & Julian Crane - 2017 - Bioethics 31 (6):476-483.
    There is increasing global pressure to ensure that pregnant women are responsibly and safely included in clinical research in order to improve the evidence base that underpins healthcare delivery during pregnancy. One supposed barrier to inclusion is the assumption that pregnant women will be reluctant to participate in research. There is however very little empirical research investigating the views of pregnant women. Their perspective on the benefits, burdens and risks of research is a crucial component to ensuring effective recruitment. The (...)
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  28.  27
    Pregnancy and the Culture of Extreme Risk Aversion.Angela Ballantyne, Colin Gavaghan, John McMillan & Sue Pullon - 2016 - American Journal of Bioethics 16 (2):21-23.
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  29. Gender inequalities in health research : An australian perspective.Belinda Bennett, Isabel Karpin, Angela Ballantyne & Wendy Rogers - 2008 - In Michael D. A. Freeman (ed.), Law and bioethics / edited by Michael Freeman. New York: Oxford University Press.
  30. Is sex-selective abortion morally justified and should it be prohibited?Wendy Rogers, Angela Ballantyne & Heather Draper - 2007 - Bioethics 21 (9):520–524.
    ABSTRACT In this paper we argue that sex‐selective abortion (SSA) cannot be morally justified and that it should be prohibited. We present two main arguments against SSA. First, we present reasons why the decision for a woman to seek SSA in cultures with strong son‐preference cannot be regarded as autonomous on either a narrow or a broad account of autonomy. Second, we identify serious harms associated with SSA including perpetuation of discrimination against women, disruption to social and familial networks, and (...)
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  31.  41
    Wanted—egg donors for research: A research ethics approach to donor recruitment and compensation.Angela Ballantyne & Sheryl de Lacey - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):145-164.
    As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...)
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  32.  18
    From protectionism to inclusion: A New Zealand perspective on health‐related research involving adults incapable of giving informed consent.Alison Douglass & Angela Ballantyne - 2018 - Bioethics 33 (3):384-392.
    The revision of the Council of International Organizations of Medical Sciences (CIOMS) International ethical guidelines for health‐related research (2016) heralds a paradigm shift from the ‘protectionist’ policies that emerged following historical research atrocities of the 20th century, towards a more nuanced and inclusive approach to research participation. Adopting this modified approach will enable countries to secure the benefits of research for individuals and for society as a whole, while at the same time minimizing the potential for exploitation and research‐related harms. (...)
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  33.  5
    Clinical Research Involving Pregnant Women.Françoise Baylis & Angela Ballantyne (eds.) - 2016 - Cham: Imprint: Springer.
    This book discusses 'how' to respectfully and responsibly include pregnant women in clinical research. In sharp contrast, the existing literature predominantly focuses on the reasons 'why' the inclusion of pregnant women in clinical research is necessary - viz., to develop effective treatments for women during pregnancy, to promote fetal safety, to reduce harm to women and fetuses from suboptimal care, and to allow access to the benefits of research participation. This book supports the shift to a new default position, whereby (...)
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  34.  5
    Blowing the whistle on mixed gender hospital rooms in Australia and New Zealand: a human rights issue.Cindy Towns & Angela Ballantyne - forthcoming - Journal of Medical Ethics.
    The practice of placing men and women in the same hospital room (mixed gender rooms) has been prohibited in the UK National Health Service for over a decade. However, recent research demonstrates that the practice is common and increasing in a major New Zealand public hospital. Reports and complaints show that the practice also occurs in Australia. We argue that mixed gender rooms violate the fundamental human rights of personal security and dignity. The high rates of cognitive impairment, sensory impairment (...)
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  35.  49
    Wanted—Egg Donors for Research: A Research Ethics Approach to Donor Recruitment and Compensation.Angela Ballantyne & Sheryl de Lacey - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):145 - 164.
    As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...)
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  36.  14
    Wanted—egg donors for research: A research ethics approach to donor recruitment and compensation.Angela Ballantyne & Sheryl de Lacey - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):145-164.
    As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of “just participant selection” requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...)
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  37.  29
    Taxonomy of justifications for consent waivers: When and why are public views relevant?Angela Ballantyne & G. Owen Schaefer - 2019 - Journal of Medical Ethics 45 (5):353-354.
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  38.  2
    Can P4 Support Family Involvement and Best Interests in Surrogate Decision-Making?Angela Ballantyne & Rochelle Style - 2024 - American Journal of Bioethics 24 (7):56-58.
    Earp et al. (2024) sketch a thought-provoking potential use of generative AI to enhance supported decision-making for adults who have lost capacity/competence to make their own medical decisions. T...
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  39.  31
    Humans and Hybrids.Angela Ballantyne - 2004 - Essays in Philosophy 5 (2):363-374.
    This paper uses the advent of human-animal hybrids, created though somatic cell nuclear transfer experiments in America and Australia, as a tool to deconstruct and challenge the dualistic belief that humans are morally distinct and superior to animals. The view that moral value corresponds to species membership creates a scientific and cultural environment that prohibits or restricts human embryo experimentation whilst permitting the extensive use of animals for research. The dualistic premise therefore motivates the creation of human-animal hybrids for research (...)
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  40.  17
    Introduction.Angela Ballantyne, Belinda Bennett, Isabel Karpin & Wendy Rogers - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):1-4.
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  41.  17
    In Favor of a No-Consent/Opt-Out Model of Research With Clinical Samples.Angela Ballantyne - 2015 - American Journal of Bioethics 15 (9):65-67.
  42.  6
    IAB Presidential address: “Searching for Justice”.Angela Ballantyne - 2017 - Bioethics 31 (8):570-574.
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  43.  15
    Pregnant Women Can Finally Expect Better.Angela Ballantyne - 2019 - Hastings Center Report 49 (1):10-11.
    A decade of advocacy for the inclusion of pregnant women in the clinical research agenda is starting to pay off. In September, the United States Task Force on Research Specific to Pregnant Women and Lactating Women issued its advice to the secretary of Health and Human Services on addressing gaps in knowledge and research on safe and effective therapies for pregnant women and lactating women. The task force is pushing for major reforms. If its recommendations are taken up, we can (...)
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  44.  29
    Research ethics revised: The new CIOMS guidelines and the World Medical Association Declaration of Helsinki in context.Angela Ballantyne & Stefan Eriksson - 2019 - Bioethics 33 (3):310-311.
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  45.  30
    Response to Open Peer Commentaries on “Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?”.Angela Ballantyne, Ainsley Newson, Florencia Luna & Richard Ashcroft - 2009 - American Journal of Bioethics 9 (8):6-7.
    This target article considers the ethical implications of providing prenatal diagnosis and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential harms derive from the provision of PND in the absence of legal and safe abortion for (...)
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  46.  51
    Response to Open Peer Commentaries on “How to Do Research Fairly in an Unjust World”.Angela J. Ballantyne - 2010 - American Journal of Bioethics 10 (6):4-6.
    (2010). Response to Open Peer Commentaries on “How to Do Research Fairly in an Unjust World”. The American Journal of Bioethics: Vol. 10, No. 6, pp. W4-W6.
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  47.  20
    To What Extent Are Calls for Greater Minority Representation in COVID Vaccine Research Ethically Justified?Angela Ballantyne & Agomoni Ganguli-Mitra - 2021 - American Journal of Bioethics 21 (2):99-101.
    In this commentary, we take up Yearby’s call for racism-sensitive research and apply this to the discourse regarding race and diversity in COVID vaccine research. We consider whether efforts...
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  48. Under What Conditions is Clinical Research in Developing Countries Exploitative? A Framework for Assessing Exploitation in Mutually Advantageous Transactions.Angela Ballantyne - 2006 - Advances in Bioethics 9:209-244.
     
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  49.  15
    Donor-funded research: permissible, not perfect.Mike King & Angela Ballantyne - 2019 - Journal of Medical Ethics 45 (1):36-40.
    Donor-funded research is research funded by private donors in exchange for research-related benefits, such as trial participation or access to the trial intervention. This has been pejoratively referred to as ‘pay to play’ research, and criticised as unethical. We outline three models of donor-funded research, and argue for their permissibility on the grounds of personal liberty, their capacity to facilitate otherwise unfunded health research and their consistency with current ethical standards for research. We defend this argument against objections that donor-funded (...)
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  50.  13
    Religious Perspectives on Precision Medicine in Singapore.Tamra Lysaght, Zhixia Tan, You Guang Shi, Swami Samachittananda, Sarabjeet Singh, Roland Chia, Raza Zaidi, Malminderjit Singh, Hung Yong Tay, Chitra Sankaran, Serene Ai Kiang Ong, Angela Ballantyne & Hui Jin Toh - 2021 - Asian Bioethics Review 13 (4):473-483.
    Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health (...)
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