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  1.  10
    Dying as an issue of public concern: cultural scripts on palliative care in Sweden.Axel Agren, Ann-Charlotte Nedlund, Elisabet Cedersund & Barbro Krevers - 2021 - Medicine, Health Care and Philosophy 24 (4):507-516.
    In Sweden, palliative care has, over the past decades, been object to policies and guidelines with focus on how to achieve “good palliative care”. The aim of this study has been to analyse how experts make sense of the development and the current state of palliative care. Departing from this aim, focus has been on identifying how personal experiences of ‘the self’ are intertwined with culturally available meta-level concepts and how experts contribute to construct new scripts on palliative care. Twelve (...)
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  2.  11
    Policy Narratives on Palliative Care in Sweden 1974–2018.Axel Ågren, Barbro Krevers, Elisabet Cedersund & Ann-Charlotte Nedlund - 2023 - Health Care Analysis 31 (2):99-113.
    In Sweden, efforts to govern end-of-life care through policies have been ongoing since the 1970s. The aim of this study is to analyse how policy narratives on palliative care in Sweden have been formulated and have changed over time since the 1970s up to 2018. We have analysed 65 different policy-documents. After having analysed the empirical material, three policy episodes were identified. In Episode 1, focus was on the need for norms, standards and a psychological end-of-life care with the main (...)
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  3.  8
    Nurses’ priority-setting for older nursing home residents during COVID-19.My Eklund Saksberg, Therése Bielsten, Suzanne Cahill, Tiny Jaarsma, Ann-Charlotte Nedlund, Lars Sandman & Pier Jaarsma - forthcoming - Nursing Ethics.
    Background Ethical principles behind prioritization in healthcare are continuously relevant. However, applying ethical principles during times of increased need, such as during the COVID-19 pandemic, is challenging. Also, little is known about nursing home nurses’ prioritizations in their work to achieve well-being and health for nursing home residents. Aim The aim of this study was to explore nursing home nurses’ priority-setting for older nursing home residents in Sweden during the COVID-19 pandemic. Research design, participants, and research context We conducted a (...)
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  4.  35
    Legitimate Policymaking: The Importance of Including Health-care Workers in Limit-Setting Decisions in Health Care.Ann-Charlotte Nedlund & Kristine Bærøe - 2014 - Public Health Ethics 7 (2):123-133.
    The concept of legitimacy is often used and emphasized in the context of setting limits in health care, but rarely described is what is actually meant by its use. Moreover, it is seldom explicitly stated how health-care workers can contribute to the matter, nor what weight should be apportioned to their viewpoints. Instead the discussion has focused on whether they should take on the role of the patients’ advocate or that of gatekeeper to the society’s resources. In this article, we (...)
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  5.  17
    Withdrawing or withholding treatments in health care rationing: an interview study on ethical views and implications.Ann-Charlotte Nedlund, Gustav Tinghög, Lars Sandman & Liam Strand - 2022 - BMC Medical Ethics 23 (1):1-13.
    BackgroundWhen rationing health care, a commonly held view among ethicists is that there is no ethical difference between withdrawing or withholding medical treatments. In reality, this view does not generally seem to be supported by practicians nor in legislation practices, by for example adding a ‘grandfather clause’ when rejecting a new treatment for lacking cost-effectiveness. Due to this discrepancy, our objective was to explore physicians’ and patient organization representatives’ experiences- and perceptions of withdrawing and withholding treatments in rationing situations of (...)
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