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Anneke Lucassen [20]Anneke M. Lucassen [6]
  1.  16
    Familial Genetic Risks: How Can We Better Navigate Patient Confidentiality and Appropriate Risk Disclosure to Relatives?Edward S. Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M. Lucassen & Emily Postan - 2019 - Journal of Medical Ethics 45 (8):504-507.
    This article investigates a high-profile and ongoing dilemma for healthcare professionals, namely whether the existence of a duty of care to genetic relatives of a patient is a help or a hindrance in deciding what to do in cases where a patient’s genetic information may have relevance to the health of the patient’s family members. The English case ABC v St George’s Healthcare NHS Trust and others considered if a duty of confidentiality owed to the patient and a putative duty (...)
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  2.  29
    ‘Is This Knowledge Mine and Nobody Else's? I Don't Feel That.’ Patient Views About Consent, Confidentiality and Information-Sharing in Genetic Medicine: Table 1.Sandi Dheensa, Angela Fenwick & Anneke Lucassen - 2016 - Journal of Medical Ethics 42 (3):174-179.
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  3.  9
    Is It Acceptable to Contact an Anonymous Egg Donor to Facilitate Diagnostic Genetic Testing for the Donor-Conceived Child?Rachel Horton, Benjamin Bell, Angela Fenwick & Anneke M. Lucassen - 2019 - Journal of Medical Ethics 45 (6):357-360.
    We discuss a case where medically optimal investigations of health problems in a donor-conceived child would require their egg donor to participate in genetic testing. We argue that it would be justified to contact the egg donor to ask whether she would consider this, despite her indicating on a historical consent form that she did not wish to take part in future research and that she did not wish to be informed if she was found to be a carrier of (...)
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  4.  13
    The Moral Argument for Heritable Genome Editing Requires an Inappropriately Deterministic View of Genetics.Rachel Horton & Anneke M. Lucassen - 2019 - Journal of Medical Ethics 45 (8):526-527.
    Gyngell and colleagues consider that the recent Nuffield Council report does not go far enough: heritable genome editing is not just justifiable in a few rare cases; instead, there is a moral imperative to undertake it. We agree that there is a moral argument for this, but in the real world it is mitigated by the fact that it is not usually possible to ensure a better life. We suggest that a moral imperative for HGE can currently only be concluded (...)
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  5.  11
    The Road to Clinical Fantasy: A UK Perspective.Angela Fenwick, Peta Coulson-Smith & Anneke Lucassen - 2018 - American Journal of Bioethics 18 (1):26-27.
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  6.  9
    Towards a National Genomics Medicine Service: The Challenges Facing Clinical-Research Hybrid Practices and the Case of the 100 000 Genomes Project. [REVIEW]Sandi Dheensa, Gabrielle Samuel, Anneke M. Lucassen & Bobbie Farsides - 2018 - Journal of Medical Ethics 44 (6):397-403.
    Clinical practice and research are governed by distinct rules and regulations and have different approaches to, for example, consent and providing results. However, genomics is an example of where research and clinical practice have become codependent. The 100 000 genomes project is a hybrid venture where a person can obtain a clinical investigation only if he or she agrees to also participate in ongoing research—including research by industry and commercial companies. In this paper, which draws on 20 interviews with professional (...)
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  7.  4
    Using Biomarkers in Acute Medicine to Prevent Hearing Loss: Should This Require Specific Consent?Peta Coulson-Smith & Anneke Lucassen - 2020 - Journal of Medical Ethics 46 (8):536-537.
    In this round table response, we discuss some of the problems inherent in insisting on specific consent for an activity that needs to happen rapidly as part of a package of care. The Human Tissue Authority consider that specific consent is mandatory to assess which antibiotics are appropriate on the neonatal unit, but this insistence may actually limit the autonomy which consent aims to promote. While genetic testing to determine which child will react adversely to particular antibiotics has been available (...)
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  8.  11
    Testing Children for Adult Onset Conditions: The Importance of Contextual Clinical Judgement.Anneke Lucassen & Angela Fenwick - 2012 - Journal of Medical Ethics 38 (9):531-532.
  9.  15
    Genetic Testing of Children: The Need for a Family Perspective.Anneke Lucassen, Guy Widdershoven, Suzanne Metselaar, Angela Fenwick & Michael Parker - 2014 - American Journal of Bioethics 14 (3):26-28.
  10.  22
    Recall of Participation in Research Projects in Cancer Genetics: Some Implications for Research Ethics.Sarah Cooke, Gillian Crawford, Michael Parker, Anneke Lucassen & Nina Hallowell - 2008 - Clinical Ethics 3 (4):180-184.
    The aim of this study is to assess patients' recall of their previous research participation. Recall was established during interviews and compared with entries from clinical notes. Participants were 49 patients who had previously participated in different types of research. Of the 49 patients, 45 (92%) interviewees recalled 69 of 109 (63%) study participations. Level of recall varied according to the type of research, some participants clearly recalled the details of research aims, giving consent and research procedures. Others recalled procedures (...)
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  11.  9
    In Defense of Best Interests: When Parents and Clinicians Disagree.Peta Coulson-Smith, Angela Fenwick & Anneke Lucassen - 2018 - American Journal of Bioethics 18 (8):67-69.
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  12.  41
    Rescue Obligations and Collective Approaches: Complexities in Genomics.Angela Fenwick, Sandi Dheensa, Gillian Crawford, Shiri Shkedi-Rafid & Anneke Lucassen - 2015 - American Journal of Bioethics 15 (2):23-25.
  13.  15
    Relative Risk and Relatives' Risks in Genomic Medicine.Angela Fenwick, Shiri Shkedi-Rafid & Anneke Lucassen - 2016 - American Journal of Bioethics 16 (2):25-27.
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  14.  20
    The Shifting Sands of Patient Autonomy and Public Interest Considerations in Health Care.Robert Wheeler, Paul Spargo & Anneke Lucassen - 2011 - Clinical Ethics 6 (4):203-206.
    The past few decades have seen patient autonomy ascend to a prime position in health care. Patient consent is seen as a key component to expression of autonomy. Yet, interventions may also be justified without consent because they are deemed to be in the public interest. We observe some subtle shifts in balance in these justifications in health care and illustrate these with a range of examples. We hope thereby to stimulate a more explicit debate so that health-care professionals can (...)
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  15.  7
    Clinical Ethics Committee Case 14: How Should We Transfer a Euthanasia Request Between General Practice and a Hospital Setting?Bert Molewijk & Anneke Lucassen - 2011 - Clinical Ethics 6 (2):58-63.
  16.  55
    The UK Genethics Club: Clinical Ethics Support for Genetic Services.Anneke Lucassen & Michael Parker - 2006 - Clinical Ethics 1 (4):219-223.
    The UK Genethics Club was established in November 2001 in order to provide a national forum of ethics support for the profession of clinical genetics in the UK. The forum brings together health professionals, medical ethicists and lawyers and support is provided through detailed discussion of cases and sharing of good practice. Clinical genetics professionals had previously voiced concerns about making extremely difficult ethical decisions, with profound implications, in something of a vacuum. Professionals saw a lack of guidance in the (...)
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  17.  4
    Narrative Symposium: Patient and Research Participant Experiences with Genetic Testing.Dena Davis, Sarah Foye, Sarah M. Hartz, Carla C. Keirns, Christopher M. Lietz, Anneke Lucassen, Jacqueline Savard, K. A. Strong, Kiri Sunde, Michael J. Young, Anonymous One & Anonymous Two - 2015 - Narrative Inquiry in Bioethics 5 (3):203-228.
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  18.  6
    Unpacking the Concept of a Genomic Result.Angela Fenwick, Anneke Lucassen & Rachel Horton - 2019 - American Journal of Bioethics 19 (1):70-71.
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  19.  8
    Old Consent and New Developments: Health Professionals Should Ask and Not Presume.Rachel Horton, Angela Fenwick & Anneke M. Lucassen - 2020 - Journal of Medical Ethics 46 (6):412-413.
    We thank Lucy Frith for her thought-provoking response1 to our paper, where we argued that it would be ethically acceptable to contact an anonymous egg donor to help facilitate diagnostic genetic testing for a donor-conceived child.2 While we read Frith’s commentary with interest, we still think that the egg donor should be contacted in the case that we describe. Frith raises concerns as to whether contact would constitute ‘ overriding consent ’, thus ’ potentially set a dangerous precedent ’ for (...)
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  20.  8
    Families and Genetic Testing: The Case of Jane and Phyllis.Anneke Lucassen - 2005 - In Richard E. Ashcroft (ed.), Case Analysis in Clinical Ethics. Cambridge University Press. pp. 7--26.
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  21.  12
    I Had Genetic Testing for Alzheimer’s Disease Without My Consent.Anneke Lucassen - 2015 - Narrative Inquiry in Bioethics 5 (3):214-216.
  22.  8
    Response to Ethical Dissections of the Case.Anneke Lucassen - 2005 - In Richard E. Ashcroft (ed.), Case Analysis in Clinical Ethics. Cambridge University Press. pp. 213.
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  23.  3
    Using a Biomarker Acutely to Identify Babies at Risk of Serious Adverse Effects From Antibiotics: Where is the ‘Terrible Moral and Medical Dilemma’?Anneke M. Lucassen, John Henry McDermott & William Newman - 2021 - Journal of Medical Ethics 47 (2):117-118.
    We thank Parker and Wright for engaging in this roundtable debate in such a spirited way. The ‘Pharmacogenetic [test] to Avoid Loss of Hearing’ Trial is the first time a genetic point of care test has been applied in the acute neonatal setting; therefore, it is not surprising that questions have been raised which require debate, discussion and clarification. Parker and Wright misattribute several assumptions to the roundtable authors, which we would like to clarify here. Since they raise wider questions (...)
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  24.  19
    Mainstreaming Genetics: The Potential for Miscommunication.Donna McBride & Anneke Lucassen - 2011 - Clinical Ethics 6 (4):159-161.