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    Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users.Aviad E. Raz, Emilia Niemiec, Heidi C. Howard, Sigrid Sterckx, Julian Cockbain & Barbara Prainsack - 2020 - New Genetics and Society 39 (4):459-482.
    23andMe not only sells genetic testing but also uses customer data in its R&D activities and commercial partnerships. This raises questions about transparency and informed consent. Based on a online survey conducted in 2017–18, we examine attitudes of 368 customers of 23andMe toward the company's use of their data. Our findings point at divides in the context of customers' awareness of the two-sided business model of DTC genetics and their attitudes toward consent. While most of our respondents (68%) were aware (...)
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  2. Reckless or pioneering? Public health genetics services in Israel.Aviad E. Raz - 2018 - In Hagai Boas, Shai Joshua Lavi, Yael Hashiloni-Dolev, Dani Filc & Nadav Davidovitch (eds.), Bioethics and biopolitics in Israel: socio-legal, political and empirical analysis. Cambridge, United Kingdom: Cambridge University Press.
     
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