19 found
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  1.  71
    Solidarity in Contemporary Bioethics – Towards a New Approach.Barbara Prainsack & Alena Buyx - 2012 - Bioethics 26 (7):343-350.
    This paper, which is based on an extensive analysis of the literature, gives a brief overview of the main ways in which solidarity has been employed in bioethical writings in the last two decades. As the vagueness of the term has been one of the main targets of critique, we propose a new approach to defining solidarity, identifying it primarily as a practice enacted at the interpersonal, communal, and contractual/legal levels. Our three-tier model of solidarity can also help to explain (...)
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  2. Solidarity in Biomedicine and Beyond.Barbara Prainsack & Alena Buyx - 2016 - Cambridge University Press.
    In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.
     
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  3.  17
    Beyond Individualism: Is There a Place for Relational Autonomy in Clinical Practice and Research?Edward S. Dove, Susan E. Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa & Barbara Prainsack - 2017 - Clinical Ethics 12 (3):150-165.
    The dominant, individualistic understanding of autonomy that features in clinical practice and research is underpinned by the idea that people are, in their ideal form, independent, self-interested and rational gain-maximising decision-makers. In recent decades, this paradigm has been challenged from various disciplinary and intellectual directions. Proponents of ‘relational autonomy’ in particular have argued that people’s identities, needs, interests – and indeed autonomy – are always also shaped by their relations to others. Yet, despite the pronounced and nuanced critique directed at (...)
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  4.  4
    Is There a Duty to Participate in Digital Epidemiology?Brent Mittelstadt, Justus Benzler, Luckas Engelmann, Barbara Prainsack & Effy Vayena - 2018 - Life Sciences, Society and Policy 14 (1):1-24.
    This paper poses the question of whether people have a duty to participate in digital epidemiology. While an implied duty to participate has been argued for in relation to biomedical research in general, digital epidemiology involves processing of non-medical, granular and proprietary data types that pose different risks to participants. We first describe traditional justifications for epidemiology that imply a duty to participate for the general public, which take account of the immediacy and plausibility of threats, and the identifiability of (...)
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  5.  14
    Thinking Ethical and Regulatory Frameworks in Medicine From the Perspective of Solidarity on Both Sides of the Atlantic.Barbara Prainsack & Alena Buyx - 2016 - Theoretical Medicine and Bioethics 37 (6):489-501.
    This article provides a concise overview of the history of scholarship on solidarity in Europe and North America. While recent decades have seen an increase in conceptual and scholarly interest in solidarity in North America and other parts of the Anglo-Saxon world, the concept is much more strongly anchored in Europe. Continental European politics in particular have given rise to two of the most influential traditions of solidarity, namely, socialism and Christian ethics. Solidarity has also guided important public instruments and (...)
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  6. Lifestyle-Related Diseases and Individual Responsibility Through the Prism of Solidarity.Alena Buyx & Barbara Prainsack - 2012 - Clinical Ethics 7 (2):79-85.
    The concept of lifestyle-related diseases and individual responsibility for health has played an important role in debates on the fair allocation of increasingly scarce health-care resources. In this article, we examine this discussion through the prism of solidarity. Based on an understanding of solidarity as shared practices reflecting a collective commitment to carry ‘costs’ (financial, social, emotional or otherwise) to assist others, we analyse frequent arguments in the debate and, in particular, the tool of risk-stratification. We then offer a solidarity-based (...)
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  7.  13
    Solidarity Can Make a Difference: Addressing Transformations in Healthcare, Demographics and Technological Replacement.Alena Buyx & Barbara Prainsack - 2018 - Bioethics 32 (9):537-540.
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  8.  5
    Moral Entrepreneurship, the Power‐Knowledge Nexus, and the Cochrane “Crisis”.Trisha Greenhalgh, Mustafa F. Ozbilgin, Barbara Prainsack & Sara Shaw - forthcoming - Journal of Evaluation in Clinical Practice.
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  9.  2
    Response to Dr Ulucanlar.Trisha Greenhalgh, Mustafa Ozbilgin, Barbara Prainsack & Sara Shaw - forthcoming - Journal of Evaluation in Clinical Practice.
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  10.  12
    The Value of Work: Addressing the Future of Work Through the Lens of Solidarity.Barbara Prainsack & Alena Buyx - 2018 - Bioethics 32 (9):585-592.
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  11.  1
    Meeting the Needs of Underserved Populations: Setting the Agenda for More Inclusive Citizen Science of Medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - forthcoming - Journal of Medical Ethics:medethics-2018-105253.
    In its expansion to genomic, epidemiological and biomedical research, citizen science has been promoted as contributing to the democratisation of medical research and healthcare. At the same time, it has been criticised for reinforcing patterns of exclusion in health and biomedicine, and sometimes even creating new ones. Although citizen science has the potential to make biomedical research more inclusive, the benefits of current citizen science initiatives are not equally accessible for all people—in particular those who are resource-poor, located outside of (...)
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  12.  26
    Performing the Union: The Prüm Decision and the European Dream.Barbara Prainsack & Victor Toom - 2013 - Studies in History and Philosophy of Biological and Biomedical Sciences 44 (1):71-79.
    In 2005, seven European countries signed the so-called Prüm Treaty to increase transnational collaboration in combating international crime, terrorism and illegal immigration. Three years later, the Treaty was adopted into EU law. EU member countries were now obliged to have systems in place to allow authorities of other member states access to nationally held data on DNA, fingerprints, and vehicles by August 2011. In this paper, we discuss the conditions of possibility for the Prüm network to emerge, and argue that (...)
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  13.  68
    Elias G. Carayannis and David F. J. Campbell, Mode 3 Knowledge Production in Quadruple Helix Innovation Systems: 21st-Century Democracy, Innovation, and Entrepreneurship for Development. [REVIEW]Barbara Prainsack - 2012 - Minerva 50 (1):139-142.
    Elias G. Carayannis and David F. J. Campbell, Mode 3 Knowledge Production in Quadruple Helix Innovation Systems: 21st-Century Democracy, Innovation, and Entrepreneurship for Development Content Type Journal Article Category Book Review Pages 139-142 DOI 10.1007/s11024-012-9194-6 Authors Barbara Prainsack, Department of Sociology and Communications, Brunel University, Kingston Lane, Uxbridge, Middlesex UB8 3PH, UK Journal Minerva Online ISSN 1573-1871 Print ISSN 0026-4695 Journal Volume Volume 50 Journal Issue Volume 50, Number 1.
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  14.  39
    James F. Drane: A Liberal Catholic Bioethics. Muenster, DE: Lit Verlag. 2010, 290 Pages.Andrew Papanikitas & Barbara Prainsack - 2011 - Philosophia 39 (4):771-774.
    James F. Drane: A Liberal Catholic Bioethics. Muenster, DE: Lit Verlag. 2010, 290 Pages Content Type Journal Article Category Book Review Pages 771-774 DOI 10.1007/s11406-011-9319-4 Authors Andrew Papanikitas, Department of Education and Professional Studies, King’s College London, Strand Campus, London, WC2R 2LS UK Barbara Prainsack, Kings Institute of Social Science and Public Policy, King’s College London, Strand Campus, London, WC2R 2LS UK Journal Philosophia Online ISSN 1574-9274 Print ISSN 0048-3893 Journal Volume Volume 39 Journal Issue Volume 39, Number 4.
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  15.  14
    Solidarity. Reflections on an Emerging Concept in Bioethics. Summary.Barbara Prainsack & Alena Buyx - 2012 - Jahrbuch für Wissenschaft Und Ethik 17 (1).
    Name der Zeitschrift: Jahrbuch für Wissenschaft und Ethik Jahrgang: 17 Heft: 1 Seiten: 331-344.
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  16.  5
    Wer fürchtet sich vor dem Prothesenchromosom?: Ein Blick aus sozialwissenschaftlicher Perspektive auf den ethischen Diskurs der Synthetischen Biologie.Barbara Prainsack - 2013 - Zeitschrift Für Evangelische Ethik 57 (2):102-112.
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  17.  5
    Separating The Social From the Natural.Barbara Prainsack - 2009 - Metascience 18 (3):475-479.
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  18.  2
    Obituary for Herbert Gottweis, Professor of Political Science, University of Vienna: Born 8 February 1958 in Vienna, Died 31 March 2014 in Vienna. [REVIEW]Barbara Prainsack - 2014 - Life Sciences, Society and Policy 10 (1):1-3.
  19. Respiritualizing Medicine?Barbara Prainsack - 2002 - Eubios Journal of Asian and International Bioethics 12 (4):128-131.
     
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