24 found
Order:
  1. Solidarity in Biomedicine and Beyond.Barbara Prainsack & Alena Buyx - 2016 - Cambridge University Press.
    In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.
     
    Export citation  
     
    Bookmark   25 citations  
  2.  35
    Beyond Individualism: Is There a Place for Relational Autonomy in Clinical Practice and Research?Edward S. Dove, Susan E. Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa & Barbara Prainsack - 2017 - Clinical Ethics 12 (3):150-165.
    The dominant, individualistic understanding of autonomy that features in clinical practice and research is underpinned by the idea that people are, in their ideal form, independent, self-interested and rational gain-maximising decision-makers. In recent decades, this paradigm has been challenged from various disciplinary and intellectual directions. Proponents of ‘relational autonomy’ in particular have argued that people’s identities, needs, interests – and indeed autonomy – are always also shaped by their relations to others. Yet, despite the pronounced and nuanced critique directed at (...)
    Direct download (13 more)  
     
    Export citation  
     
    Bookmark   17 citations  
  3.  3
    Logged Out: Ownership, Exclusion and Public Value in the Digital Data and Information Commons.Barbara Prainsack - 2019 - Big Data and Society 6 (1).
    In recent years, critical scholarship has drawn attention to increasing power differentials between corporations that use data and people whose data is used. A growing number of scholars see digital data and information commons as a way to counteract this asymmetry. In this paper I raise two concerns with this argument: First, because digital data and information can be in more than one place at once, governance models for physical common-pool resources cannot be easily transposed to digital commons. Second, not (...)
    No categories
    Direct download  
     
    Export citation  
     
    Bookmark   8 citations  
  4.  95
    Solidarity in Contemporary Bioethics – Towards a New Approach.Barbara Prainsack & Alena Buyx - 2012 - Bioethics 26 (7):343-350.
    This paper, which is based on an extensive analysis of the literature, gives a brief overview of the main ways in which solidarity has been employed in bioethical writings in the last two decades. As the vagueness of the term has been one of the main targets of critique, we propose a new approach to defining solidarity, identifying it primarily as a practice enacted at the interpersonal, communal, and contractual/legal levels. Our three-tier model of solidarity can also help to explain (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   28 citations  
  5.  35
    Thinking Ethical and Regulatory Frameworks in Medicine From the Perspective of Solidarity on Both Sides of the Atlantic.Barbara Prainsack & Alena Buyx - 2016 - Theoretical Medicine and Bioethics 37 (6):489-501.
    This article provides a concise overview of the history of scholarship on solidarity in Europe and North America. While recent decades have seen an increase in conceptual and scholarly interest in solidarity in North America and other parts of the Anglo-Saxon world, the concept is much more strongly anchored in Europe. Continental European politics in particular have given rise to two of the most influential traditions of solidarity, namely, socialism and Christian ethics. Solidarity has also guided important public instruments and (...)
    Direct download (8 more)  
     
    Export citation  
     
    Bookmark   10 citations  
  6.  22
    COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale.Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel & Tamar Sharon - 2020 - Journal of Bioethical Inquiry 17 (4):835-839.
    Mobile applications are increasingly regarded as important tools for an integrated strategy of infection containment in post-lockdown societies around the globe. This paper discusses a number of questions that should be addressed when assessing the ethical challenges of mobile applications for digital contact-tracing of COVID-19: Which safeguards should be designed in the technology? Who should access data? What is a legitimate role for “Big Tech” companies in the development and implementation of these systems? How should cultural and behavioural issues be (...)
    Direct download (2 more)  
    Translate
     
     
    Export citation  
     
    Bookmark   3 citations  
  7.  10
    Meeting the Needs of Underserved Populations: Setting the Agenda for More Inclusive Citizen Science of Medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - 2019 - Journal of Medical Ethics 45 (9):617-622.
    In its expansion to genomic, epidemiological and biomedical research, citizen science has been promoted as contributing to the democratisation of medical research and healthcare. At the same time, it has been criticised for reinforcing patterns of exclusion in health and biomedicine, and sometimes even creating new ones. Although citizen science has the potential to make biomedical research more inclusive, the benefits of current citizen science initiatives are not equally accessible for all people—in particular those who are resource-poor, located outside of (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  8.  6
    Moral Entrepreneurship, the Power‐Knowledge Nexus, and the Cochrane “Crisis”.Trisha Greenhalgh, Mustafa F. Ozbilgin, Barbara Prainsack & Sara Shaw - 2019 - Journal of Evaluation in Clinical Practice 25 (5):717-725.
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  9.  12
    Is There a Duty to Participate in Digital Epidemiology?Brent Mittelstadt, Justus Benzler, Lukas Engelmann, Barbara Prainsack & Effy Vayena - 2018 - Life Sciences, Society and Policy 14 (1):1-24.
    This paper poses the question of whether people have a duty to participate in digital epidemiology. While an implied duty to participate has been argued for in relation to biomedical research in general, digital epidemiology involves processing of non-medical, granular and proprietary data types that pose different risks to participants. We first describe traditional justifications for epidemiology that imply a duty to participate for the general public, which take account of the immediacy and plausibility of threats, and the identifiability of (...)
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  10.  25
    The Value of Work: Addressing the Future of Work Through the Lens of Solidarity.Barbara Prainsack & Alena Buyx - 2018 - Bioethics 32 (9):585-592.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  11. Lifestyle-Related Diseases and Individual Responsibility Through the Prism of Solidarity.Alena Buyx & Barbara Prainsack - 2012 - Clinical Ethics 7 (2):79-85.
    The concept of lifestyle-related diseases and individual responsibility for health has played an important role in debates on the fair allocation of increasingly scarce health-care resources. In this article, we examine this discussion through the prism of solidarity. Based on an understanding of solidarity as shared practices reflecting a collective commitment to carry ‘costs’ (financial, social, emotional or otherwise) to assist others, we analyse frequent arguments in the debate and, in particular, the tool of risk-stratification. We then offer a solidarity-based (...)
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  12.  6
    Public Involvement in the Governance of Population-Level Biomedical Research: Unresolved Questions and Future Directions.Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, Vicky Chico, Sarah Cunningham-Burley, Julie Darbyshire, Rebecca Dawson, Andrew Evans, Nick Fahy, Teresa Finlay, Lucy Frith, Aaron Goldenberg, Lisa Hinton, Nils Hoppe, Nigel Hughes, Barbara Koenig, Sapfo Lignou, Michelle McGowan, Michael Parker, Barbara Prainsack, Mahsa Shabani, Ciara Staunton, Rachel Thompson, Kinga Varnai, Effy Vayena, Oli Williams, Max Williamson, Sarah Chan & Mark Sheehan - 2021 - Journal of Medical Ethics 47 (7):522-525.
    Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 experts and stakeholders using the World Café method to identify key governance challenges and explore how public involvement can (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  13.  21
    Solidarity Can Make a Difference: Addressing Transformations in Healthcare, Demographics and Technological Replacement.Alena Buyx & Barbara Prainsack - 2018 - Bioethics 32 (9):537-540.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  14.  18
    Solidarity. Reflections on an Emerging Concept in Bioethics. Summary.Barbara Prainsack & Alena Buyx - 2012 - Jahrbuch für Wissenschaft Und Ethik 17 (1).
    Name der Zeitschrift: Jahrbuch für Wissenschaft und Ethik Jahrgang: 17 Heft: 1 Seiten: 331-344.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  15.  32
    Performing the Union: The Prüm Decision and the European Dream.Barbara Prainsack & Victor Toom - 2013 - Studies in History and Philosophy of Biological and Biomedical Sciences 44 (1):71-79.
    In 2005, seven European countries signed the so-called Prüm Treaty to increase transnational collaboration in combating international crime, terrorism and illegal immigration. Three years later, the Treaty was adopted into EU law. EU member countries were now obliged to have systems in place to allow authorities of other member states access to nationally held data on DNA, fingerprints, and vehicles by August 2011. In this paper, we discuss the conditions of possibility for the Prüm network to emerge, and argue that (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  16.  6
    Response to Dr Ulucanlar.Trisha Greenhalgh, Mustafa Ozbilgin, Barbara Prainsack & Sara Shaw - 2019 - Journal of Evaluation in Clinical Practice 25 (5):728-728.
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  17.  42
    James F. Drane: A Liberal Catholic Bioethics. Muenster, DE: Lit Verlag. 2010, 290 Pages.Andrew Papanikitas & Barbara Prainsack - 2011 - Philosophia 39 (4):771-774.
    James F. Drane: A Liberal Catholic Bioethics. Muenster, DE: Lit Verlag. 2010, 290 Pages Content Type Journal Article Category Book Review Pages 771-774 DOI 10.1007/s11406-011-9319-4 Authors Andrew Papanikitas, Department of Education and Professional Studies, King’s College London, Strand Campus, London, WC2R 2LS UK Barbara Prainsack, Kings Institute of Social Science and Public Policy, King’s College London, Strand Campus, London, WC2R 2LS UK Journal Philosophia Online ISSN 1574-9274 Print ISSN 0048-3893 Journal Volume Volume 39 Journal Issue Volume 39, Number 4.
    No categories
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  18.  84
    Elias G. Carayannis and David F. J. Campbell, Mode 3 Knowledge Production in Quadruple Helix Innovation Systems: 21st-Century Democracy, Innovation, and Entrepreneurship for Development. [REVIEW]Barbara Prainsack - 2012 - Minerva 50 (1):139-142.
    Elias G. Carayannis and David F. J. Campbell, Mode 3 Knowledge Production in Quadruple Helix Innovation Systems: 21st-Century Democracy, Innovation, and Entrepreneurship for Development Content Type Journal Article Category Book Review Pages 139-142 DOI 10.1007/s11024-012-9194-6 Authors Barbara Prainsack, Department of Sociology and Communications, Brunel University, Kingston Lane, Uxbridge, Middlesex UB8 3PH, UK Journal Minerva Online ISSN 1573-1871 Print ISSN 0026-4695 Journal Volume Volume 50 Journal Issue Volume 50, Number 1.
    No categories
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  19.  4
    Obituary for Herbert Gottweis, Professor of Political Science, University of Vienna: Born 8 February 1958 in Vienna, Died 31 March 2014 in Vienna. [REVIEW]Barbara Prainsack - 2014 - Life Sciences, Society and Policy 10 (1):1-3.
  20. Respiritualizing Medicine?Barbara Prainsack - 2002 - Eubios Journal of Asian and International Bioethics 12 (4):128-131.
     
    Export citation  
     
    Bookmark  
  21. Shifting Ethical Boundaries in Forensic Use of DNA.Barbara Prainsack & Gabrielle Samuel - 2019 - Jahrbuch für Wissenschaft Und Ethik 24 (1):155-172.
    In this paper we explore shifts in how the law and ethics allow European law enforcement officers to use forensic genetic technologies. We do so by reviewing three technologies, ‘traditional’ forensic DNA profiling, forensic DNA phenotyping and the searching of genetic genealogy databases. In particular, we discuss changes in how ethical boundaries have been placed around what is seen as an appropriate use of genetic technologies in European criminal justice systems. While the ‘type’ of DNA that law enforcement officers are (...)
    No categories
    Direct download  
     
    Export citation  
     
    Bookmark  
  22.  5
    Separating The Social From the Natural.Barbara Prainsack - 2009 - Metascience 18 (3):475-479.
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  23. The “We” in the “Me”: Solidarity and Health Care in the Era of Personalized Medicine.Barbara Prainsack - 2018 - Science, Technology, and Human Values 43 (1):21-44.
    This article challenges a key tacit assumption underpinning legal and ethical instruments in health care, namely, that people are ideally bounded, independent, and often also strategically rational individuals. Such an understanding of personhood has been criticized within feminist and other critical scholarship as being unfit to capture the deeply relational nature of human beings. In the field of medicine, however, it also causes tangible problems. I propose that a solidarity-based perspective entails a relational approach and as such helps to formulate (...)
    No categories
    Direct download  
     
    Export citation  
     
    Bookmark   8 citations  
  24.  6
    Wer fürchtet sich vor dem Prothesenchromosom?: Ein Blick aus sozialwissenschaftlicher Perspektive auf den ethischen Diskurs der Synthetischen Biologie.Barbara Prainsack - 2013 - Zeitschrift Für Evangelische Ethik 57 (2):102-112.
    No categories
    Direct download  
    Translate
     
     
    Export citation  
     
    Bookmark