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Bernice S. Elger [23]Bernice Simone Elger [17]
  1.  5
    Better to Know Than to Imagine: Including Children in Their Health Care.Tenzin Wangmo, Eva De Clercq, Katharina M. Ruhe, Maja Beck-Popovic, Johannes Rischewski, Regula Angst, Marc Ansari & Bernice S. Elger - 2017 - Ajob Empirical Bioethics 8 (1):11-20.
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  2.  7
    Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare.Katharina M. Ruhe, Eva De Clercq, Tenzin Wangmo & Bernice S. Elger - forthcoming - Journal of Bioethical Inquiry:1-10.
    Problems arise when applying the current procedural conceptualization of decision-making capacity to paediatric healthcare: Its emphasis on content-neutrality and rational cognition as well as its implicit assumption that capacity is an ability that resides within a person jeopardizes children’s position in decision-making. The purpose of the paper is to challenge this dominant account of capacity and provide an alternative for how capacity should be understood in paediatric care. First, the influence of developmental psychologist Jean Piaget upon the notion of capacity (...)
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  3.  12
    Parents’ and Physicians’ Perceptions of Children’s Participation in Decision-Making in Paediatric Oncology: A Quantitative Study.Michael Rost, Tenzin Wangmo, Felix Niggli, Karin Hartmann, Heinz Hengartner, Marc Ansari, Pierluigi Brazzola, Johannes Rischewski, Maja Beck-Popovic, Thomas Kühne & Bernice S. Elger - 2017 - Journal of Bioethical Inquiry 14 (4):555-565.
    The goal is to present how shared decision-making in paediatric oncology occurs from the viewpoints of parents and physicians. Eight Swiss Pediatric Oncology Group centres participated in this prospective study. The sample comprised a parent and physician of the minor patient. Surveys were statistically analysed by comparing physicians’ and parents’ perspectives and by evaluating factors associated with children’s actual involvement. Perspectives of ninety-one parents and twenty physicians were obtained for 151 children. Results indicate that for six aspects of information provision (...)
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  4.  2
    Paternalistic Breaches of Confidentiality in Prison: Mental Health Professionals’ Attitudes and Justifications.Bernice Simone Elger, Violet Handtke & Tenzin Wangmo - 2015 - Journal of Medical Ethics 41 (6):496-500.
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  5.  40
    CRISPR and the Rebirth of Synthetic Biology.Raheleh Heidari, David Martin Shaw & Bernice Simone Elger - 2017 - Science and Engineering Ethics 23 (2):351-363.
    Emergence of novel genome engineering technologies such as clustered regularly interspaced short palindromic repeat has refocused attention on unresolved ethical complications of synthetic biology. Biosecurity concerns, deontological issues and human right aspects of genome editing have been the subject of in-depth debate; however, a lack of transparent regulatory guidelines, outdated governance codes, inefficient time-consuming clinical trial pathways and frequent misunderstanding of the scientific potential of cutting-edge technologies have created substantial obstacles to translational research in this area. While a precautionary principle (...)
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  6. Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings From an International Study.Capron Alexander Morgan, Mauron Alexandre, Elger Bernice Simone, Boggio Andrea, Ganguli-Mitra Agomoni & Biller-Andorno Nikola - 2009 - Kennedy Institute of Ethics Journal 19 (2):101-124.
  7.  11
    Emotion and Value in the Evaluation of Medical Decision-Making Capacity: A Narrative Review of Arguments.Helena Hermann, Manuel Trachsel, Bernice S. Elger & Nikola Biller-Andorno - 2016 - Frontiers in Psychology 7.
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  8.  11
    Autonomy and Fear of Synthetic Biology: How Can Patients’ Autonomy Be Enhanced in the Field of Synthetic Biology? A Qualitative Study with Stable Patients.Milenko Rakic, Isabelle Wienand, David Shaw, Rebecca Nast & Bernice S. Elger - 2017 - Science and Engineering Ethics 23 (2):375-388.
    We analyzed stable patients’ views regarding synthetic biology in general, the medical application of synthetic biology, and their potential participation in trials of synthetic biology in particular. The aim of the study was to find out whether patients’ views and preferences change after receiving more detailed information about synthetic biology and its clinical applications. The qualitative study was carried out with a purposive sample of 36 stable patients, who suffered from diabetes or gout. Interviews were transcribed verbatim, translated and fully (...)
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  9.  4
    Medical Ethics in Correctional Healthcare: An International Comparison of Guidelines.Bernice Simone Elger - 2008 - Journal of Clinical Ethics 19 (3):234.
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  10.  12
    Defining Nano, Nanotechnology and Nanomedicine: Why Should It Matter?Priya Satalkar, Bernice Simone Elger & David M. Shaw - 2016 - Science and Engineering Ethics 22 (5):1255-1276.
    Nanotechnology, which involves manipulation of matter on a ‘nano’ scale, is considered to be a key enabling technology. Medical applications of nanotechnology are expected to significantly improve disease diagnostic and therapeutic modalities and subsequently reduce health care costs. However, there is no consensus on the definition of nanotechnology or nanomedicine, and this stems from the underlying debate on defining ‘nano’. This paper aims to present the diversity in the definition of nanomedicine and its impact on the translation of basic science (...)
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  11.  31
    End-of-Life Decision Making in Pediatrics: Literature Review on Children's and Adolescents’ Participation.Katharina M. Ruhe, Domnita O. Badarau, Bernice S. Elger & Tenzin Wangmo - 2014 - Ajob Empirical Bioethics 5 (2):44-54.
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  12.  17
    Disclosure of Past Crimes: An Analysis of Mental Health Professionals' Attitudes Towards Breaching Confidentiality.Tenzin Wangmo, Violet Handtke & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):347-358.
    Ensuring confidentiality is the cornerstone of trust within the doctor–patient relationship. However, health care providers have an obligation to serve not only their patient’s interests but also those of potential victims and society, resulting in circumstances where confidentiality must be breached. This article describes the attitudes of mental health professionals when patients disclose past crimes unknown to the justice system. Twenty-four MHPs working in Swiss prisons were interviewed. They shared their experiences concerning confidentiality practices and attitudes towards breaching confidentiality in (...)
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  13.  13
    Understanding Death in Custody: A Case for a Comprehensive Definition.Géraldine Ruiz, Tenzin Wangmo, Patrick Mutzenberg, Jessica Sinclair & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):387-398.
    Prisoners sometimes die in prison, either due to natural illness, violence, suicide, or a result of imprisonment. The purpose of this study is to understand deaths in custody using qualitative methodology and to argue for a comprehensive definition of death in custody that acknowledges deaths related to the prison environment. Interviews were conducted with 33 experts, who primarily work as lawyers or forensic doctors with national and/or international organisations. Responses were coded and analysed qualitatively. Defining deaths in custody according to (...)
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  14.  7
    Expert Perspectives on Western European Prison Health Services: Do Ageing Prisoners Receive Equivalent Care?Wiebke Bretschneider & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):319-332.
    Health care in prison and particularly the health care of older prisoners are increasingly important topics due to the growth of the ageing prisoner population. The aim of this paper is to gain insight into the approaches used in the provision of equivalent health care to ageing prisoners and to confront the intuitive definition of equivalent care and the practical and ethical challenges that have been experienced by individuals working in this field. Forty interviews took place with experts working in (...)
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  15.  19
    Research Involving Prisoners: Consensus and Controversies in International and European Regulations.Bernice S. Elger - 2008 - Bioethics 22 (4):224–238.
    This article examines international and European regulations on research involving prisoners for consensus, differences, and their consequences, and offers a critical evaluation of the various approaches. Agreement exists that prisoners are at risk of coercion, which might interfere with their ability to provide voluntary informed consent to research. Controversy exists about the magnitude of this risk and the consequences that should follow from this risk. Two strategies are proposed for a method of protecting prisoners that does not lead to discrimination: (...)
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  16.  25
    Attitudes of Future Lawyers and Psychologists to the Use of Genetic Testing for Criminal Behavior.Bernice S. Elger - 2005 - Cambridge Quarterly of Healthcare Ethics 14 (3):329-345.
    Developments in the last several years have sparked renewed interest in the ethics of research involving humans. Issues relating to the global extent of research and its guiding principles are of particular importance to researchers, health officials, and individual ethics committees who want a deeper and more encompassing inquiry regarding the foundation and evolution of human research. This department of CQ launches a long overdue effort to explore these wider issues. Readers are invited to submit papers to Charles MacKay, 5011 (...)
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  17.  6
    An Update on the “Empirical Turn” in Bioethics: Analysis of Empirical Research in Nine Bioethics Journals.Tenzin Wangmo, Sirin Hauri, Eloise Gennet, Evelyn Anane-Sarpong, Veerle Provoost & Bernice S. Elger - 2018 - BMC Medical Ethics 19 (1):6.
    A review of literature published a decade ago noted a significant increase in empirical papers across nine bioethics journals. This study provides an update on the presence of empirical papers in the same nine journals. It first evaluates whether the empirical trend is continuing as noted in the previous study, and second, how it is changing, that is, what are the characteristics of the empirical works published in these nine bioethics journals. A review of the same nine journals was conducted (...)
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  18.  20
    Factors Affecting Women's Autonomous Decision Making In Research Participation Amongst Yoruba Women Of Western Nigeria.Chitu Womehoma Princewill, Ayodele S. Jegede, Karin Nordström, Bolatito Lanre‐Abass & Bernice Simone Elger - 2017 - Developing World Bioethics 17 (1):40-49.
    Research is a global enterprise requiring participation of both genders for generalizable knowledge; advancement of science and evidence based medical treatment. Participation of women in research is necessary to reduce the current bias that most empirical evidence is obtained from studies with men to inform health care and related policy interventions. Various factors are assumed to limit autonomy amongst the Yoruba women of western Nigeria. This paper seeks to explore the experience and understanding of autonomy by the Yoruba women in (...)
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  19.  4
    Education and Reproductive Autonomy: The Case of Married Nigerian Women.Chitu Womehoma Princewill, Eva De Clercq, Anita Riecher-Rössler, Ayodele Samuel Jegede, Tenzin Wangmo & Bernice Simone Elger - 2017 - Narrative Inquiry in Bioethics 7 (3):231-244.
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  20.  4
    Teaching Bioethics to a Large Number of Biology and Pharma Students: Lessons Learned.Sabrina Engel-Glatter, Laura Y. Cabrera, Yousri Marzouki & Bernice S. Elger - 2018 - Ethics and Behavior 28 (1):70-90.
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  21.  19
    Memory Interventions in the Criminal Justice System: Some Practical Ethical Considerations.Laura Y. Cabrera & Bernice S. Elger - forthcoming - Journal of Bioethical Inquiry:1-9.
    In recent years, discussion around memory modification interventions has gained attention. However, discussion around the use of memory interventions in the criminal justice system has been mostly absent. In this paper we start by highlighting the importance memory has for human well-being and personal identity, as well as its role within the criminal forensic setting; in particular, for claiming and accepting legal responsibility, for moral learning, and for retribution. We provide examples of memory interventions that are currently available for medical (...)
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  22.  6
    “You Cannot Collect Data Using Your Own Resources And Put It On Open Access”: Perspectives From Africa About Public Health Data‐Sharing.Evelyn Anane‐Sarpong, Tenzin Wangmo, Claire Leonie Ward, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - forthcoming - Developing World Bioethics.
    Data-sharing is a desired default in the field of public health and a source of much ethical deliberation. Sharing data potentially contributes the largest, most efficient source of scientific data, but is fraught with contextual challenges which make stakeholders, particularly those in under-resourced contexts hesitant or slow to share. Relatively little empirical research has engaged stakeholders in discussing the issue. This study sought to explore relevant experiences, contextual, and subjective explanations around the topic to provide a rich and detailed presentation (...)
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  23.  3
    Decision Making in Pediatric Oncology: Views of Parents and Physicians in Two European Countries.Domnita O. Badarau, Katharina Ruhe, Thomas Kühne, Eva De Clercq, Anca Colita, Bernice S. Elger & Tenzin Wangmo - 2017 - Ajob Empirical Bioethics 8 (1):21-31.
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  24.  2
    Synthetic Biology and the Translational Imperative.Raheleh Heidari Feidt, Marcello Ienca, Bernice Simone Elger & Marc Folcher - forthcoming - Science and Engineering Ethics:1-20.
    Advances at the interface between the biological sciences and engineering are giving rise to emerging research fields such as synthetic biology. Harnessing the potential of synthetic biology requires timely and adequate translation into clinical practice. However, the translational research enterprise is currently facing fundamental obstacles that slow down the transition of scientific discoveries from the laboratory to the patient bedside. These obstacles including scarce financial resources and deficiency of organizational and logistic settings are widely discussed as primary impediments to translational (...)
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  25.  5
    Application of Ethical Principles to Research Using Public Health Data in The Global South: Perspectives From Africa.Evelyn Anane‐Sarpong, Tenzin Wangmo, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (2):98-108.
    Existing ethics guidelines, influential literature and policies on ethical research generally focus on real-time data collection from humans. They enforce individual rights and liberties, thereby lowering need for aggregate protections. Although dependable, emerging public health research paradigms like research using public health data raise new challenges to their application. Unlike traditional research, RUPD is population-based, aligned to public health activities, and often reliant on pre-collected longitudinal data. These characteristics, when considered in relation to the generally lower protective ethico-legal frameworks of (...)
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  26.  7
    Patient Education as Empowerment and Self-Rebiasing.Fabrice Jotterand, Antonio Amodio & Bernice S. Elger - 2016 - Medicine, Health Care and Philosophy 19 (4):553-561.
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  27.  14
    Conducting Ethics Research in Prison: Why, Who, and What?David M. Shaw, Tenzin Wangmo & Bernice S. Elger - 2014 - Journal of Bioethical Inquiry 11 (3):275-278.
    Why devote an issue of an ethics journal to prison medicine? Why conduct ethics research in prisons in the first place? In this editorial, we explain why prison ethics research is vitally important and illustrate our argument by introducing and briefly discussing the fascinating papers in this special issue of the Journal of Bioethical Inquiry.Ethics is often regarded as a theoretical discipline. This is in large part due to ethics’ origin as a type of moral philosophy, which is frequently associated (...)
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  28.  6
    Cancer Care in Romania: Challenges and Pitfalls of Children's and Adolescents' Multifaceted Involvement.Domnita O. Badarau, Eva De Clercq, Tenzin Wangmo, Monica Dragomir, Ingrid Miron, Thomas Kühne & Bernice S. Elger - 2016 - Journal of Medical Ethics 42 (12):757-761.
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  29.  7
    Beneficence Today, or Autonomy (Maybe) Tomorrow?Bernice S. Elger & Jean-Claude Chevrolet - 2000 - Hastings Center Report 30 (1):18.
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  30.  17
    Research on Prisoners – a Comparison Between the Iom Committee Recommendations (2006) and European Regulations.Bernice S. Elger & Anne Spaulding - 2010 - Bioethics 24 (1):1-13.
    The Institute of Medicine (IOM) Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research published its report in 2006. It was charged with developing an ethical framework for the conduct of research with prisoners and identifying the safeguards and conditions necessary to ensure that research with prisoners is conducted ethically. The recommendations contained in the IOM report differ from current European regulations in several ways, some being more restrictive and some less so. For (...)
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  31.  1
    Case Study: Beneficence Today, or Autonomy Tomorrow?Bernice S. Elger & Jean-Claude Chevrolet - 2000 - Hastings Center Report 30 (1):18.
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  32.  13
    L'information et la gestion des risques dans le suivi de la grossesse lors du 1er trimestre : quelques réflexions sur le défi éthique et le cadre légal en Suisse☆.Ghislaine Issenhuth-Scharly, Manuella Epiney, Dominique Manaï & Bernice Simone Elger - 2009 - Médecine Et Droit 2009 (96):94-99.
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  33.  1
    Adolescent Oncofertility Discussions: Recommendations From a Systematic Literature Review.Dorit Barlevy, Bernice S. Elger, Tenzin Wangmo & Vardit Ravitsky - 2017 - Ajob Empirical Bioethics 8 (2):106-115.
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  34.  2
    Autonomy and Reproductive Rights of Married Ikwerre Women in Rivers State, Nigeria.Chitu Womehoma Princewill, Ayodele Samuel Jegede, Tenzin Wangmo, Anita Riecher-Rössler & Bernice Simone Elger - 2017 - Journal of Bioethical Inquiry 14 (2):205-215.
    A woman’s lack of or limited reproductive autonomy could lead to adverse health effects, feeling of being inferior, and above all being unable to adequately care for her children. Little is known about the reproductive autonomy of married Ikwerre women of Rivers State, Nigeria. This study demonstrates how Ikwerre women understand the terms autonomy and reproductive rights and what affects the exercise of these rights. An exploratory research design was employed for this study. A semi-structured interview schedule was used to (...)
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  35.  9
    Should Children and Adolescents Be Tested for Huntington's Disease? Attitudes of Future Lawyers and Physicians in Switzerland.Bernice S. Elger & Timothy W. Harding - 2006 - Bioethics 20 (3):158–167.
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  36.  2
    Application of Ethical Principles to Research Using Public Health Data in The Global South: Perspectives From Africa.Evelyn Anane‐Sarpong, Tenzin Wangmo, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (2):98-108.
    Existing ethics guidelines, influential literature and policies on ethical research generally focus on real-time data collection from humans. They enforce individual rights and liberties, thereby lowering need for aggregate protections. Although dependable, emerging public health research paradigms like research using public health data raise new challenges to their application. Unlike traditional research, RUPD is population-based, aligned to public health activities, and often reliant on pre-collected longitudinal data. These characteristics, when considered in relation to the generally lower protective ethico-legal frameworks of (...)
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  37.  2
    M Any Common Diseases Are Believed to Result From Defects in Multiple Genes in Combination with Lifestyle.Bernice S. Elger - 2009 - In Vardit Ravitsky, Autumn Fiester & Arthur L. Caplan (eds.), The Penn Center Guide to Bioethics. Springer Publishing Company. pp. 403.
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  38. Response to Douglas and Goold.Bernice S. Elger - 2008 - Journal of Clinical Ethics 19 (3):271-273.
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  39. Should Children and Adolescents Be Tested for Huntington’s Disease? Attitudes of Future Lawyer.Bernice S. Elger & Timothy W. Harding - 2006 - Bioethics 20 (3):158-167.
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  40. Correction To: Synthetic Biology and the Translational Imperative.Raheleh Heidari Feidt, Marcello Ienca, Bernice Simone Elger & Marc Folcher - forthcoming - Science and Engineering Ethics:1-1.
    The author group of above-mentioned review paper was incorrectly published in the online article.
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