7 found
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  1.  5
    From “Informed” to “Engaged” Consent: Risks and Obligations in Consent for Participation in a Health Data Repository.Elizabeth Bromley, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Dmitry Khodyakov - 2020 - Journal of Law, Medicine and Ethics 48 (1):172-182.
    The development and use of large and dynamic health data repositories designed to support research pose challenges to traditional informed consent models. We used semi-structured interviewing to elicit diverse research stakeholders' views of a model of consent appropriate to participation in initiatives that entail collection, long-term storage, and undetermined future research use of multiple types of health data. We demonstrate that, when considering health data repositories, research stakeholders replace a concept of consent as informed with one in which consent is (...)
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  2.  9
    Ethical and Regulatory Challenges of Research Using Pervasive Sensing and Other Emerging Technologies: IRB Perspectives.Camille Nebeker, John Harlow, Rebeca Giacinto-Espinoza, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - forthcoming - Ajob Empirical Bioethics:00-00.
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  3.  7
    Ethical and Regulatory Challenges of Research Using Pervasive Sensing and Other Emerging Technologies: IRB Perspectives.Camille Nebeker, John Harlow, Rebeca Espinoza Giacinto, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - 2017 - Ajob Empirical Bioethics 8 (4):266-276.
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  4.  5
    Return of Value in the New Era of Biomedical Research—One Size Will Not Fit All.Dmitry Khodyakov, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Elizabeth Bromley - forthcoming - Ajob Empirical Bioethics:1-11.
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  5.  10
    Training in Research Ethics and Standards for Community Health Workers andPromotoresEngaged in Latino Health Research.Camille Nebeker, Michael Kalichman, Ana Talavera & John Elder - 2015 - Hastings Center Report 45 (4):20-27.
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  6.  37
    One Size Doesn’T Fit All.Camille Nebeker - 2012 - Teaching Ethics 12 (2):53-56.
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    Using Participatory Design to Inform the Connected and Open Research Ethics Commons.John Harlow, Nadir Weibel, Rasheed Al Kotob, Vincent Chan, Cinnamon Bloss, Rubi Linares-Orozco, Michelle Takemoto & Camille Nebeker - 2020 - Science and Engineering Ethics 26 (1):183-203.
    Mobile health research involving pervasive sensors, mobile apps and other novel data collection tools and methods present new ethical, legal, and social challenges specific to informed consent, data management and bystander rights. To address these challenges, a participatory design approach was deployed whereby stakeholders contributed to the development of a web-based commons to support the mHealth research community including researchers and ethics board members. The CORE platform now features a community forum, a resource library and a network of nearly 600 (...)
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