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  1.  9
    Ethical and Regulatory Challenges of Research Using Pervasive Sensing and Other Emerging Technologies: IRB Perspectives.Camille Nebeker, John Harlow, Rebeca Giacinto-Espinoza, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - forthcoming - Ajob Empirical Bioethics:00-00.
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  2.  9
    Ethical and Regulatory Challenges of Research Using Pervasive Sensing and Other Emerging Technologies: IRB Perspectives.Camille Nebeker, John Harlow, Rebeca Espinoza Giacinto, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - 2017 - Ajob Empirical Bioethics 8 (4):266-276.
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  3.  7
    From “Informed” to “Engaged” Consent: Risks and Obligations in Consent for Participation in a Health Data Repository.Elizabeth Bromley, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Dmitry Khodyakov - 2020 - Journal of Law, Medicine and Ethics 48 (1):172-182.
    The development and use of large and dynamic health data repositories designed to support research pose challenges to traditional informed consent models. We used semi-structured interviewing to elicit diverse research stakeholders' views of a model of consent appropriate to participation in initiatives that entail collection, long-term storage, and undetermined future research use of multiple types of health data. We demonstrate that, when considering health data repositories, research stakeholders replace a concept of consent as informed with one in which consent is (...)
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  4.  5
    Return of Value in the New Era of Biomedical Research—One Size Will Not Fit All.Dmitry Khodyakov, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Elizabeth Bromley - forthcoming - Ajob Empirical Bioethics:1-11.
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  5.  4
    Using Participatory Design to Inform the Connected and Open Research Ethics Commons.John Harlow, Nadir Weibel, Rasheed Al Kotob, Vincent Chan, Cinnamon Bloss, Rubi Linares-Orozco, Michelle Takemoto & Camille Nebeker - 2020 - Science and Engineering Ethics 26 (1):183-203.
    Mobile health research involving pervasive sensors, mobile apps and other novel data collection tools and methods present new ethical, legal, and social challenges specific to informed consent, data management and bystander rights. To address these challenges, a participatory design approach was deployed whereby stakeholders contributed to the development of a web-based commons to support the mHealth research community including researchers and ethics board members. The CORE platform now features a community forum, a resource library and a network of nearly 600 (...)
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  6.  10
    Training in Research Ethics and Standards for Community Health Workers andPromotoresEngaged in Latino Health Research.Camille Nebeker, Michael Kalichman, Ana Talavera & John Elder - 2015 - Hastings Center Report 45 (4):20-27.
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  7.  37
    One Size Doesn’T Fit All.Camille Nebeker - 2012 - Teaching Ethics 12 (2):53-56.
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    Realizing Present and Future Promise of DIY Biology and Medicine Through a Trust Architecture.Lisa M. Rasmussen, Christi J. Guerrini, Todd Kuiken, Camille Nebeker, Alex Pearlman, Sarah B. Ware, Anna Wexler & Patricia J. Zettler - 2020 - Hastings Center Report 50 (6):10-14.
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    Ethics Review of Big Data Research: What Should Stay and What Should Be Reformed?Effy Vayena, Minerva Rivas Velarde, Mahsa Shabani, Gabrielle Samuel, Camille Nebeker, S. Matthew Liao, Peter Kleist, Walter Karlen, Jeff Kahn, Phoebe Friesen, Bobbie Farsides, Edward S. Dove, Alessandro Blasimme, Mark Sheehan, Marcello Ienca & Agata Ferretti - 2021 - BMC Medical Ethics 22 (1):1-13.
    BackgroundEthics review is the process of assessing the ethics of research involving humans. The Ethics Review Committee is the key oversight mechanism designated to ensure ethics review. Whether or not this governance mechanism is still fit for purpose in the data-driven research context remains a debated issue among research ethics experts.Main textIn this article, we seek to address this issue in a twofold manner. First, we review the strengths and weaknesses of ERCs in ensuring ethical oversight. Second, we map these (...)
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