29 found
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  1.  36
    Ethics Considerations Regarding Artificial Womb Technology for the Fetonate.Felix R. De Bie, Sarah D. Kim, Sourav K. Bose, Pamela Nathanson, Emily A. Partridge, Alan W. Flake & Chris Feudtner - 2022 - American Journal of Bioethics 23 (5):67-78.
    Since the early 1980’s, with the clinical advent of in vitro fertilization resulting in so-called “test tube babies,” a wide array of ethical considerations and concerns regarding artificial womb technology (AWT) have been described. Recent breakthroughs in the development of extracorporeal neonatal life support by means of AWT have reinitiated ethical interest about this topic with a sense of urgency. Most of the recent ethical literature on the topic, however, pertains not to the more imminent scenario of a physiologically improved (...)
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  2.  46
    Identifying Ethical Considerations for Machine Learning Healthcare Applications.Danton S. Char, Michael D. Abràmoff & Chris Feudtner - 2020 - American Journal of Bioethics 20 (11):7-17.
    Along with potential benefits to healthcare delivery, machine learning healthcare applications raise a number of ethical concerns. Ethical evaluations of ML-HCAs will need to structure th...
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  3.  18
    Developing, Administering, and Scoring the Healthcare Ethics Consultant Certification Examination.Courtenay R. Bruce, Chris Feudtner, Daniel Davis & Mary Beth Benner - 2019 - Hastings Center Report 49 (5):15-22.
    In November 2018, the practice of health care ethics consultation crossed a major threshold when 138 candidates took the inaugural Healthcare Ethics Consultant Certification Examination. This accomplishment, long in the making, has had and continues to have both advocates and critics. The Healthcare Ethics Consultant Certification Commission, a functionally autonomous body created and funded by the American Society for Bioethics and Humanities, was charged with overseeing creation of the certification process, developing the exam, and formulating certification standards and policies to (...)
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  4.  14
    SUPPORT and the Ethics of Study Implementation: Lessons for Comparative Effectiveness Research from the Trial of Oxygen Therapy for Premature Babies.John D. Lantos & Chris Feudtner - 2015 - Hastings Center Report 45 (1):30-40.
    The Surfactant, Positive Pressure, and Oxygenation Randomized Trial (SUPPORT) has been the focal point of many different criticisms regarding the ethics of the study ever since publication of the trial's findings in 2010 and 2012. In this article, we focus on a concern that the technical design and implementation details of the study were ethically flawed. While the federal Office Human Research Protections focused on the consent form, rather than on the study design and implementation, OHRP's critiques of the consent (...)
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  5.  76
    Pediatric do-not-attempt-resuscitation orders and public schools: A national assessment of policies and laws.Michael B. Kimberly, Amanda L. Forte, Jean M. Carroll & Chris Feudtner - 2005 - American Journal of Bioethics 5 (1):59 – 65.
    Some children living with life-shortening medical conditions may wish to attend school without the threat of having resuscitation attempted in the event of cardiopulmonary arrest on the school premises. Despite recent attention to in-school do-not-attempt-resuscitation (DNAR) orders, no assessment of state laws or school policies has yet been made. We therefore sought to survey a national sample of prominent school districts and situate their policies in the context of relevant state laws. Most (80%) school districts sampled did not have policies, (...)
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  6.  32
    Genetic Testing Is Messier in Practice than in Theory: Lessons from Neonatology.Chris Feudtner & Katharine Press Callahan - 2022 - American Journal of Bioethics 22 (2):37-39.
    What is the future of genetic testing during pregnancy likely to look like? Given that the patterns of use of genetic testing in neonatology tend to precede, and thus predict, patterns of prenatal...
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  7.  26
    A Framework to Evaluate Ethical Considerations with ML-HCA Applications—Valuable, Even Necessary, but Never Comprehensive.Danton Char, Michael Abràmoff & Chris Feudtner - 2020 - American Journal of Bioethics 20 (11):W6-W10.
    Machine learning is fundamental to multiple visions of health care’s future, from precision medicine 2020) to a model of health delivery and research...
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  8.  19
    The Healthcare Ethics Consultant-Certified Program: Fair, Feasible, and Defensible, But Neither Definitive Nor Finished.Felicia Cohn, Mary Beth Benner, Chris Feudtner & Armand H. Matheny Antommaria - 2020 - American Journal of Bioethics 20 (3):1-5.
    Volume 20, Issue 3, March 2020, Page 1-5.
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  9.  16
    Muddled Measures of Risks and Misremembered Reasons.John D. Lantos & Chris Feudtner - 2015 - Hastings Center Report 45 (3):4-5.
    A commentary on “Were There ‘Additional Foreseeable Risks’ in the SUPPORT Study?,” by Henry J. Silverman and Didier Dreyfuss; “SUPPORT: Risks, Harms, and Equipoise,” by Robert M. Nelson; “The Controversy over SUPPORT Continues and the Hyperbole Increases,” by Alan R. Fleischman; and “SUPPORT and Comparative Effectiveness Trials: What's at Stake?,” by Lois Shepherd, all in the January‐February 2015 issue.
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  10.  21
    Making the Rounds The Ethical Development of Medical Students in the Context of Clinical Rotations.Chris Feudtner & Dimitri A. Christakis - 1994 - Hastings Center Report 24 (1):6-12.
    Medical students newly arrived on the wards encounter frustrating ethical predicaments that are complicated by students' place in the hospital hierarchy. A careful scrutiny of medical social structure and culture may enable medical schools to offer their students a more effective ethics education.
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  11.  18
    Futility, Inappropriateness, Conflict, and the Complexity of Medical Decision-Making.Chris Feudtner & Pamela G. Nathanson - 2018 - Perspectives in Biology and Medicine 60 (3):345-357.
    ... and the baby has a large VSD. Otherwise appears well, gaining weight, smiling. No apnea, never been on ventilator. Local cardiac surgeon refused to operate, saying that surgery would be inappropriate. Have reached out to other centers, and some state that they never perform what they said was “futile” heart surgery on children with Trisomy 18, while other sites say they have and will continue to perform these operations. Can someone explain to me what is going on? In the (...)
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  12.  42
    Quick and Limited Is Better Than Slow, Sloppy, or Sly.Wynne Morrison & Chris Feudtner - 2011 - American Journal of Bioethics 11 (11):15-16.
    The American Journal of Bioethics, Volume 11, Issue 11, Page 15-16, November 2011.
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  13.  45
    AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship.Chris Feudtner, Jeremy Sugarman, Barbara A. Koenig, Peter A. Ubel, Richard F. Ittenbach, Laura Weiss Roberts & Laurence B. McCullough - 2014 - AJOB Empirical Bioethics 5 (1):1-2.
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  14.  39
    Responses from Palliative Care: Hope Is Like Water.Chris Feudtner - 2014 - Perspectives in Biology and Medicine 57 (4):555-557.
    Hope is like water, existing in different states, exhibiting different properties.In the solid form, hope is manifest as specific hopes: I hope for this, I hope for that. In these concrete forms, solidified hope can become firm and fixed, for better and for worse. Dogged determination aimed at achieving a fixed hope is a very good characteristic—that is, until the continued pursuit of this specific solid hope becomes foolish, harmful, unwise. At the other end of the spectrum, in the gaseous (...)
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  15.  20
    Pride and prejudice: How might ethics consultation services minimize bias?Jordan Silberman, Wynne Morrison & Chris Feudtner - 2007 - American Journal of Bioethics 7 (2):32 – 34.
  16.  48
    Taking Care of Hope.Chris Feudtner - 2010 - American Journal of Bioethics 10 (5):26-27.
  17.  8
    Holding the Tension.Chris Feudtner - 2016 - Hastings Center Report 46 (3):inside back cover-inside back co.
    My colleagues and I had been asked by a member of a clinical team to help sort through the ethics of stopping a life-sustaining intervention for a very ill child. We had already talked with the parents, the physicians, and the folks from nursing, social work, and chaplaincy. Terms like “suffering,” “cruel,” “compassion,” and “moral distress” had been uttered, as had terms like “inappropriate,” “unethical,” “neglectful,” and “risk-management.” The group had now stuffed all of these polarizing thoughts and feelings into (...)
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  18.  27
    A disease in motion: diabetes history and the new paradigm of transmuted disease.Chris Feudtner - 1995 - Perspectives in Biology and Medicine 39 (2):158-170.
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  19.  45
    Attitudes of paediatric and obstetric specialists towards prenatal surgery for lethal and non-lethal conditions.Ryan M. Antiel, Farr A. Curlin, John D. Lantos, Christopher A. Collura, Alan W. Flake, Mark P. Johnson, Natalie E. Rintoul, Stephen D. Brown & Chris Feudtner - 2017 - Journal of Medical Ethics:medethics-2017-104377.
    Background While prenatal surgery historically was performed exclusively for lethal conditions, today intrauterine surgery is also performed to decrease postnatal disabilities for non-lethal conditions. We sought to describe physicians' attitudes about prenatal surgery for lethal and non-lethal conditions and to elucidate characteristics associated with these attitudes. Methods Survey of 1200 paediatric surgeons, neonatologists and maternal–fetal medicine specialists. Results Of 1176 eligible physicians, 670 responded. In the setting of a lethal condition for which prenatal surgery would likely result in the child (...)
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  20.  18
    Assuring Trust in Insurance.Chris Feudtner - 2004 - American Journal of Bioethics 4 (4):64-66.
  21.  22
    Hopes, Therapeutic Honesty, and Adaptation in the Midst of Dying and Death.Chris Feudtner & Douglas L. Hill - 2019 - American Journal of Bioethics 19 (12):37-39.
    In her classic 1969 book, On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy, and Their Own Families (Kübler-Ross 2014), Kübler-Ross identified many short-comings in the care...
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  22.  28
    “Minds the Dead Have Ravished”:1 Shell Shock, History, and the Ecology of Disease-Systems.Chris Feudtner - 1993 - History of Science 31 (94):377-420.
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  23. Pediatric patient-oriented problem-solving near the end of life.Chris Feudtner & Anne Kazak - 2008 - In James L. Werth & Dean Blevins (eds.), Decision Making Near the End of Life: Issues, Development, and Future Directions. Brunner-Routledge.
  24.  4
    Responding to Moral Distress and Ethical Concerns at the Intersection of Medical Illness and Unmet Mental Health Needs.Chris Feudtner, Pamela Nathanson & Donna D. McKlindon - 2017 - Journal of Clinical Ethics 28 (3):222-227.
    Some of the most difficult clinical ethics consultations involve patients who have both medical and mental health needs, as these cases can result in considerable moral distress on the part of the bedside staff. In this article we examine the issues that such consults raise through the illustrative example of a particular case: several years ago our ethics consultation service received a request from a critical care attending physician who was considering a rarely performed psychosurgical intervention to address intractable and (...)
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  25. Surrogate's personal sense of duty as a crucial element in medical decision-making : ethical, empirical, and experience-based perspectives.Chris Feudtner & Douglas Hill - 2021 - In John D. Lantos (ed.), The ethics of shared decision making. New York, NY: Oxford University Press.
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  26.  55
    A Response to Selected Commentaries on “Pediatric Do-Not-Attempt-Resuscitation Orders and Public Schools: A National Assessment of Policies and Laws”.Michael B. Kimberly, Amanda L. Forte, Jean M. Carroll & Chris Feudtner - 2005 - American Journal of Bioethics 5 (1):W19-W21.
    Caring for children with life-shortening illnesses is a humbling task. While some decisions are simple and safe, the emotionally-charged choices regarding how to best care for these children often...
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  27.  42
    Children's Hospital ICU Nurse and Physician Rankings of Important Considerations in Pediatric End-of-Life Decision Making.Wynne Morrison, Jennifer Faerber, Kari Hexem, Michael Ruppe & Chris Feudtner - 2015 - AJOB Empirical Bioethics 6 (3):50-58.
    Background: Families and clinicians must often weigh competing priorities when making medical decisions for a pediatric patient at the end of life. Few empirical data exist regarding the importance that clinicians place on varying priorities and whether clinical practice conforms to decision-making standards discussed in the literature. Methods: We administered a discrete choice experiment to understand the relative importance of nine pediatric end-of-life decision-making priorities using responses from 364 nurses and physicians from three intensive care units (ICUs) (pediatric ICU, pediatric (...)
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  28.  21
    Ethics and the Importance of Good Clinical Practices.Katherine E. Nelson, Annie Janvier, Pamela G. Nathanson & Chris Feudtner - 2020 - American Journal of Bioethics 20 (1):67-70.
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  29.  22
    Deciding How to Decide: What Processes Do Patients Use When Making Medical Decisions?M. J. Silveira, Lorna Rhodes & Chris Feudtner - 2004 - Journal of Clinical Ethics 15 (3):269-281.
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