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    Citizens' views on sharing their health data: the role of competence, reliability and pursuing the common good.Samia Hurst-Majno, Pierre Chappuis, Monica Aceti, Claudine Burton-Jeangros, Petros Tsantoulis & Minerva C. Rivas Velarde - 2021 - BMC Medical Ethics 22 (1):1-12.
    BackgroundIn this article, we address questions regarding how people consider what they do or do not consent to and the reasons why. This article presents the findings of a citizen forum study conducted by the University of Geneva in partnership with the Geneva University Hospitals to explore the opinions and concerns of members of the public regarding predictive oncology, genetic sequencing, and cancer. MethodsThis paper presents the results of a citizen forum that included 73 participants. A research tool titled "the (...)
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    Continued Confinement of Those Most Vulnerable to COVID-19.Samia Hurst, Eva Maria Belser, Claudine Burton-Jeangros, Pascal Mahon, Cornelia Hummel, Settimio Monteverde, Tanja Krones, Stéphanie Dagron, Cécile Bensimon, Bianca Schaffert, Alexander Trechsel, Luca Chiapperino, Laure Kloetzer, Tania Zittoun, Ralf Jox, Marion Fischer, Anne Dalle Ave, Peter G. Kirchschlaeger & Suerie Moon - 2020 - Kennedy Institute of Ethics Journal 30 (3):401-418.
    Continued confinement of those most vulnerable to COVID-19—e.g., the elderly, those with chronic diseases and other risk factors—is presented as an uncontroversial measure when planning exit strategies from lockdown measures. Policies for deconfinement assume that these persons will remain confined even when others will not. This, however, could last quite a long time, and for some this could mean that they will remain in confinement for the rest of their lives.In a policy brief on ethical, legal, and social issues of (...)
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    ‘Doctor, what would you do in my position?’ Health professionals and the decision-making process in pregnancy monitoring.Solène Gouilhers Hertig, Samuele Cavalli, Claudine Burton-Jeangros & Bernice S. Elger - 2014 - Journal of Medical Ethics 40 (5):310-314.
    Objective Routine prenatal screening for Down syndrome challenges professional non-directiveness and patient autonomy in daily clinical practices. This paper aims to describe how professionals negotiate their role when a pregnant woman asks them to become involved in the decision-making process implied by screening.Methods Forty-one semi-structured interviews were conducted with gynaecologists–obstetricians and midwives in a large Swiss city.Results Three professional profiles were constructed along a continuum that defines the relative distance or proximity towards patients’ demands for professional involvement in the decision-making (...)
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