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  1.  41
    Decision Making on Organ Donation: The Dilemmas of Relatives of Potential Brain Dead Donors.Jack de Groot, Maria van Hoek, Cornelia Hoedemaekers, Andries Hoitsma, Wim Smeets, Myrra Vernooij-Dassen & Evert van Leeuwen - 2015 - BMC Medical Ethics 16 (1):1-11.
    BackgroundThis article is part of a study to gain insight into the decision-making process by looking at the views of the relatives of potential brain dead donors. Alongside a literature review, focus interviews were held with healthcare professionals about their role in the request and decision-making process when post-mortal donation is at stake. This article describes the perspectives of the relatives.MethodsA content-analysis of 22 semi-structured in-depth interviews with relatives involved in an organ donation decision.ResultsThree themes were identified: ‘conditions’, ‘ethical considerations’ (...)
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  2.  15
    Request for organ donation without donor registration: a qualitative study of the perspectives of bereaved relatives.Jack de Groot, Maria van Hoek, Cornelia Hoedemaekers, Andries Hoitsma, Hans Schilderman, Wim Smeets, Myrra Vernooij-Dassen & Evert van Leeuwen - 2016 - BMC Medical Ethics 17 (1):1.
    In the Netherlands, consent from relatives is obligatory for post mortal donation. This study explored the perspectives of relatives regarding the request for consent for donation in cases without donor registration. A content analysis of narratives of 24 bereaved relatives of unregistered, eligible, brain-dead donors was performed. Relatives of unregistered, brain-dead patients usually refuse consent for donation, even if they harbour pro-donation attitudes themselves, or knew that the deceased favoured organ donation. Half of those who refused consent for donation mentioned (...)
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  3.  1
    Morisprudence: A Theoretical Framework for Studying the Relationship Linking Moral Case Deliberation, Organisational Learning and Quality Improvement.Niek Kok, Marieke Zegers, Hans van der Hoeven, Cornelia Hoedemaekers & Jelle van Gurp - forthcoming - Journal of Medical Ethics.
    There is a claim that clinical ethics support services improve healthcare quality within healthcare organisations. However, there is lack of strong evidence supporting this claim. Rather, the current focus is on the quality of CESS themselves or on individual learning outcomes. In response, this article proposes a theoretical framework leading to empirical hypotheses that describe the relationship between a specific type of CESS, moral case deliberation and the quality of care at the organisational level. We combine insights from the literature (...)
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  4.  1
    Culture, Normativity and Morisprudence: A Response to the Commentaries.Niek Kok, Marieke Zegers, Cornelia Hoedemaekers & Jelle van Gurp - 2022 - Journal of Medical Ethics 48 (12):985-986.
    We are grateful for the thoughtful replies to our article. 1 We are especially encouraged that all respondents agree that it is of value to develop a theoretical framework which helps to study how clinical ethics support services (CESS) induce individual and organisational learning. We have focused on the relations between moral case deliberation (MCD), organisational learning and quality improvement from a predominantly sociological perspective. The goal of our theoretical framework was to establish hypotheses which allow for empirical evaluation of (...)
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