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  1.  22
    A qualitative study on aspects of consent for genomic research in communities with low literacy.Daima Bukini, Columba Mbekenga, Siana Nkya, Lisa Purvis, Sheryl McCurdy, Michael Parker & Julie Makani - 2020 - BMC Medical Ethics 21 (1):1-7.
    BackgroundLow literacy of study participants in Sub - Saharan Africa has been associated with poor comprehension during the consenting process in research participation. The concerns in comprehension are far greater when consenting to participate in genomic studies due to the complexity of the science involved. While efforts are made to explore possibilities of applying genomic technologies in diseases prevalent in Sub Saharan Africa, we ought to develop methods to improve participants’ comprehension for genomic studies. The purpose of this study was (...)
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  2.  19
    Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.Daima Bukini, Jantina deVries, Marsha Treadwell, Kofi Anie, Jemima Dennis-Antwi, Karene Kengne Kamga, Sheryl McCurdy, Kwaku Ohene-Frempong, Julie Makani & Ambroise Wonkam - 2019 - AJOB Empirical Bioethics 10 (3):182-189.
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  3.  11
    Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.Ambroise Wonkam, Charmaine Royale, Kofi Anie, Malula Nkanyemka, Hilda Tutuba, Daima Bukini, Okocha Emmanuel Chide, Marsha Treadwell, Lawrence Osei-Tutu, Victoria Nembaware & Nchangwi Syntia Munung - 2022 - BMC Medical Ethics 23 (1):1-10.
    The enrolment of children and adolescents in health research requires that attention to be paid to specific assent and consent requirements such as the age range for seeking assent; conditions for parental consent (and waivers); the age group required to provide written assent; content of assent forms; if separate assent and parental consent forms should be used, consent from emancipated young adults; reconsent at the age of adulthood when a waiver of assent requirements may be appropriate and the conditions for (...)
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