Results for 'Dementia'

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  1. Qualitative Assessment of Self-Identity in Advanced Dementia.Sadhvi Batra, Jacqueline Sullivan, Beverly R. Williams & David S. Geldmacher - 2015 - Dementia: The International Journal of Social Research and Practice:1-19.
    This study aimed to understand the preserved elements of self-identity in persons with moderate to severe dementia attributable to Alzheimer’s disease. A semi-structured interview was developed to explore the narrative self among residents with dementia in a residential care facility and residents without dementia in an independent living setting. The interviews were transcribed verbatim from audio recordings and analyzed for common themes, while being sensitive to possible differences between the groups. The participants with dementia showed evidence (...)
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  2. Self and Embodiment: A Bio-Phenomenological Approach to Dementia.Stephan Millett - 2011 - Dementia 10 (4):509-522.
    Loss of self is widely regarded to be a consequence of dementia, and this perceived loss presents a variety of problems - not least because a clear understanding of the concept of self is elusive. This paper suggests a way to cut through problems that arise because we rely on conceptions of self in our understanding of the effects of dementia. It is proposed that we can avoid reliance on the concept of self through an approach based in (...)
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  3. Consent’s Dominion: Dementia and Prior Consent to Sexual Relations.Samuel Director - 2019 - Bioethics 33 (9):1065-1071.
    In this paper, I answer the following question: suppose that two individuals, C and D, have been in a long-term committed relationship, and D now has dementia, while C is competent; if D agrees to have sex with C, is it permissible for C to have sex with D? Ultimately, I defend the view that, under certain conditions, D can give valid consent to sex with C, rendering sex between them permissible. Specifically, I argue there is compelling reason to (...)
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  4. Judgments About Moral Responsibility and Determinism in Patients with Behavioural Variant of Frontotemporal Dementia: Still Compatibilists.Florian Cova, Maxime Bertoux, Sacha Bourgeois-Gironde & Bruno Dubois - 2012 - Consciousness and Cognition 21 (2):851-864.
    Do laypeople think that moral responsibility is compatible with determinism? Recently, philosophers and psychologists trying to answer this question have found contradictory results: while some experiments reveal people to have compatibilist intuitions, others suggest that people could in fact be incompatibilist. To account for this contradictory answers, Nichols and Knobe (2007) have advanced a ‘performance error model’ according to which people are genuine incompatibilist that are sometimes biased to give compatibilist answers by emotional reactions. To test for this hypothesis, we (...)
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  5.  42
    A Review of Contemporary Work on the Ethics of Ambient Assisted Living Technologies for People with Dementia.Peter Novitzky, Alan F. Smeaton, Cynthia Chen, Kate Irving, Tim Jacquemard, Fiachra O’Brolcháin, Dónal O’Mathúna & Bert Gordijn - 2015 - Science and Engineering Ethics 21 (3):707-765.
    Ambient assisted living technologies can provide assistance and support to persons with dementia. They might allow them the possibility of living at home for longer whilst maintaining their comfort and security as well as offering a way towards reducing the huge economic and personal costs forecast as the incidence of dementia increases worldwide over coming decades. However, the development, introduction and use of AAL technologies also trigger serious ethical issues. This paper is a systematic literature review of the (...)
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  6. Living to the Bitter End? A Personalist Approach to Euthanasia in Persons with Severe Dementia.Jan de Lepeleire & Chris Gastmans - 2010 - Bioethics 24 (2):78-86.
    The number of people suffering from dementia will rise considerably in the years to come. This will have important implications for society. People suffering from dementia have to rely on relatives and professional caregivers when their disorder progresses. Some people want to determine for themselves their moment of death, if they should become demented. They think that the decline in personality caused by severe dementia is shocking and unacceptable. In this context, some people consider euthanasia as a (...)
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  7.  75
    Autonomy, Authenticity, or Best Interest: Everyday Decision-Making and Persons with Dementia[REVIEW]Søren Holm - 2001 - Medicine, Health Care and Philosophy 4 (2):153-159.
    The question of when we have justification for overriding ordinary, everyday decisions of persons with dementia is considered. It is argued that no single criterion for competent decision-making is able to distinguish reliably between decisions we can legitimately override and decisions we cannot legitimately override.
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  8.  25
    A Philosophical Defense of the Idea That We Can Hold Each Other in Personhood: Intercorporeal Personhood in Dementia Care. [REVIEW]Kristin Zeiler - 2014 - Medicine, Health Care and Philosophy 17 (1):131-141.
    Since John Locke, regnant conceptions of personhood in Western philosophy have focused on individual capabilities for complex forms of consciousness that involve cognition such as the capability to remember past events and one’s own past actions, to think about and identify oneself as oneself, and/or to reason. Conceptions of personhood such as Locke's qualify as cognition-oriented, and they often fail to acknowledge the role of embodiment for personhood. This article offers an alternative conception of personhood from within the tradition of (...)
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  9.  53
    Living to the Bitter End? A Personalist Approach to Euthanasia in Persons with Severe Dementia.Chris Gastmans & Jan de Lepeleire - 2010 - Bioethics 24 (2):78-86.
    The number of people suffering from dementia will rise considerably in the years to come. This will have important implications for society. People suffering from dementia have to rely on relatives and professional caregivers when their disorder progresses. Some people want to determine for themselves their moment of death, if they should become demented. They think that the decline in personality caused by severe dementia is shocking and unacceptable. In this context, some people consider euthanasia as a (...)
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  10.  46
    The Disoriented Self. Layers and Dynamics of Self-Experience in Dementia and Schizophrenia.Michela Summa - 2014 - Phenomenology and the Cognitive Sciences 13 (3):477-496.
    This paper explores the question concerning the relationship between basic and higher layers of experience and self-experience. The latter distinction implicitly presupposes the idea of a univocal foundation. After explaining the formal ontological law of foundation, an attempt is made to clarify how the idea of foundation may be suitable to understand the relationship among moments, or layers, of self-experience. To this aim, the phenomenological descriptions of self- and world-experience in dementia and schizophrenia are compared. The comparison between these (...)
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  11.  26
    Family Solidarity and Informal Care: The Case of Care for People with Dementia.Ruud ter Meulen & Katharine Wright - 2012 - Bioethics 26 (7):361-368.
    According to Bayertz the core meaning of solidarity is the perception of mutual obligations between the members of a community. This definition leaves open the various ways solidarity is perceived by individuals in different communities and how it manifests itself in a particular community. This paper explores solidarity as manifested in the context of families in respect of caregiving for a family member who has become dependent because of disease or illness. Though family caregiving is based on the same perception (...)
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  12.  27
    Opinions About Euthanasia and Advanced Dementia: A Qualitative Study Among Dutch Physicians and Members of the General Public.Pauline S. C. Kouwenhoven, Natasja J. H. Raijmakers, Johannes J. M. van Delden, Judith A. C. Rietjens, Donald G. Van Tol, Suzanne van de Vathorst, Nienke de Graeff, Heleen A. M. Weyers, Agnes van der Heide & Ghislaine J. M. W. van Thiel - 2015 - BMC Medical Ethics 16 (1):7.
    The Dutch law states that a physician may perform euthanasia according to a written advance euthanasia directive when a patient is incompetent as long as all legal criteria of due care are met. This may also hold for patients with advanced dementia. We investigated the differing opinions of physicians and members of the general public on the acceptability of euthanasia in patients with advanced dementia.
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  13. The Dangers of Euthanasia and Dementia: How Kantian Thinking Might Be Used to Support Non-Voluntary Euthanasia in Cases of Extreme Dementia.Robert Sharp - 2012 - Bioethics 26 (5):231-235.
    Some writers have argued that a Kantian approach to ethics can be used to justify suicide in cases of extreme dementia, where a patient lacks the rationality required of Kantian moral agents. I worry that this line of thinking may lead to the more extreme claim that euthanasia is a proper Kantian response to severe dementia (and similar afflictions). Such morally treacherous thinking seems to be directly implied by the arguments that lead Dennis Cooley and similar writers to (...)
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  14. Dwelling, House and Home: Towards a Home-Led Perspective on Dementia Care. [REVIEW]Wim Dekkers - 2011 - Medicine, Health Care and Philosophy 14 (3):291-300.
    “Home” is well known from everyday experience, plays a crucial role in all kinds of narratives about human life, but is hardly ever systematically dealt with in the philosophy of medicine and health care. The notion of home is ambiguous, is often used in a metaphorical way, and is closely related to concepts such as house and dwelling. In this paper the phenomenon of home is explored by means of some phenomenological writings of Heidegger, Bollnow, Bachelard and Levinas. Common in (...)
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  15. Music Therapy and Dementia: Rethinking the Debate Over Advance Directives.Steve Matthews - 2014 - Ethics Education 20:18-35.
    Ronald Dworkin argued that Advance Directives informed by a principle of autonomy ought to guide decisions in relation to the treatment of those in care for dementia. The principle of autonomy in play presupposes a form of competence that is tied to the individual person making the Directive. This paper challenges this individualist assumption. It does so by pointing out that the competence of a patient is inherently relational, and the key illustrative case to make this point is the (...)
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  16. Challenges of Ethical and Legal Responsibilities When Technologies' Uses and Users Change: Social Networking Sites, Decision-Making Capacity and Dementia[REVIEW]Rachel Batchelor, Ania Bobrowicz, Robin Mackenzie & Alisoun Milne - 2012 - Ethics and Information Technology 14 (2):99-108.
    Successful technologies’ ubiquity changes uses, users and ethicolegal responsibilities and duties of care. We focus on dementia to review critically ethicolegal implications of increasing use of social networking sites (SNS) by those with compromised decision-making capacity, assessing concerned parties’ responsibilities. Although SNS contracts assume ongoing decision-making capacity, many users’ may be compromised or declining. Resulting ethicolegal issues include capacity to give informed consent to contracts, protection of online privacy including sharing and controlling data, data leaks between different digital platforms, (...)
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  17.  21
    Agency and Moral Relationship in Dementia.Bruce Jennings - 2009 - Metaphilosophy 40 (3-4):425-437.
    This essay examines the goals of care and the exercise of guardianship authority in the long-term care of persons with Alzheimer's disease and other forms of chronic, progressive dementia. It counters philosophical views that deny both agency and personhood to individuals with Alzheimer's on definitional or analytic conceptual grounds. It develops a specific conception of the quality of life and offers a critique of hedonic conceptions of quality of life and models of guardianship that are based on a hedonic (...)
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  18. Dementia: Mind, Meaning, and the Person.Julian Hughes, Stephen Louw & Steven R. Sabat (eds.) - 2005 - Oxford University Press.
    Dementia is an illness that raises important questions about our own attitudes to illness and aging. It also raises very important issues beyond the bounds of dementia to do with how we think of ourselves as people--fundamental questions about personal identity. Is the person with dementia the same person he or she was before? Is the individual with dementia a person at all? In a striking way, dementia seems to threaten the very existence of the (...)
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  19.  29
    'Because We See Them Naked' – Nurses' Experiences in Caring for Hospitalized Patients with Dementia: Considering Artificial Nutrition or Hydration (Anh).Els Bryon, Bernadette Dierckx de Casterlé & Chris Gastmans - 2012 - Bioethics 26 (6):285-295.
    The aim of this study was to explore and describe how Flemish nurses experience their involvement in the care of hospitalized patients with dementia, particularly in relation to artificial nutrition or hydration (ANH). We interviewed 21 hospital nurses who were carefully selected from nine hospitals in different regions of Flanders. ‘Being touched by the vulnerability of the demented patient’ was the central experience of the nurses, having great impact on them professionally as well as personally. This feeling can be (...)
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  20.  29
    Intimacy and Sexuality in Institutionalized Dementia Care: Clinical-Ethical Considerations.Lieslot Mahieu, Luc Anckaert & Chris Gastmans - 2017 - Health Care Analysis 25 (1):52-71.
    Intimacy and sexuality expressed by nursing home residents with dementia remains an ethically sensitive issue for care facilities, nursing staff and family members. Dealing with residents’ sexual longings and behaviour is extremely difficult, putting a burden on the caregivers as well as on the residents themselves and their relatives. The parties in question often do not know how to react when residents express themselves sexually. The overall aim of this article is to provide a number of clinical-ethical considerations addressing (...)
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  21.  26
    Ethical Issues Related to End of Life Treatment in Patients with Advanced Dementia – The Case of Artificial Nutrition and Hydration.Esther-Lee Marcus, Ofra Golan & David Goodman - 2016 - Diametros 50:118-137.
    Patients with advanced dementia suffer from severe cognitive and functional impairment, including eating disorders. The focus of our research is on the issue of life-sustaining treatment, specifically on the social and ethical implications of tube feeding. The treatment decision, based on values of life and dignity, involves sustaining lives that many people consider not worth living. We explore the moral approach to caring for these patients and review the history of the debate on artificial nutrition and hydration showing the (...)
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  22.  27
    Solidarity in Healthcare – the Challenge of Dementia.Aleksandra Małgorzata Głos - 2016 - Diametros 49:1-26.
    Dementia will soon be ranked as the world’s largest economy. At present, it ranges from the 16th to 18th place, with countries such as Indonesia, the Netherlands, and Turkey. Dementia is not only a financial challenge, but also a philosophical one. It provokes a paradigm shift in the traditional view of healthcare and expands the classic concepts of human personhood and autonomy. A promising response to these challenges is the idea of cooperative solidarity. Cooperative solidarity, contrary to its (...)
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  23.  20
    Dementia and the Power of Music Therapy.Steve Matthews - 2015 - Bioethics 29 (8):573-579.
    Dementia is now a leading cause of both mortality and morbidity, particularly in western nations, and current projections for rates of dementia suggest this will worsen. More than ever, cost effective and creative non-pharmacological therapies are needed to ensure we have an adequate system of care and supervision. Music therapy is one such measure, yet to date statements of what music therapy is supposed to bring about in ethical terms have been limited to fairly vague and under-developed claims (...)
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  24.  13
    Morally Relevant Similarities and Differences Between Children and Dementia Patients as Research Subjects: Representation in Legal Documents and Ethical Guidelines.Karin Jongsma, Wendy Bos & Suzanne Vathorst - 2015 - Bioethics 29 (9):662-670.
    Children and adults with dementia are vulnerable populations. Both groups are also relatively seldom included in biomedical research. However, including them in clinical trials is necessary, since both groups are in need of scientific innovation and new therapies. Their dependence and limited decision-making capacities increase their vulnerability, necessitating extra precautions when including them in clinical trials. Beside these similarities there are also many differences between the groups. The most obvious one is that children have an entire life ahead of (...)
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  25.  64
    Skeuomorphic Reassurance: Personhood, Dementia, and Gerontechnology.David Kreps - 2016 - In David Kreps, Gordon Fletcher & Marie Griffiths (eds.), Technology and Intimacy: Choice or Coercion. Cham, Switzerland: Springer International. pp. 61-71.
    This paper introduces the concept of ‘skeuomorphic reassurance’ as a guiding principle for human interfaces in technological development and design, particularly for older people and people with dementia (PwD). Skeuomorphs exhibit decorative design elements reminiscent of ‘parent’ objects that incorporated such design elements because they were structurally integral. Human interfaces adopted by new technologies need to be carefully balanced between novelty and recognisability. -/- The philosophy of personhood is discussed in the context of dementia, concluding that the subjective (...)
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  26.  7
    Relational Autonomy in Action: Rethinking Dementia and Sexuality in Care Facilities.Elizabeth Victor & Laura Guidry-Grimes - 2019 - Nursing Ethics 26 (6):1654-1664.
    Background: Caregivers and administrators in long-term facilities have fragile moral work in caring for residents with dementia. Residents are susceptible to barriers and vulnerabilities associated with the most intimate aspects of their lives, including how they express themselves sexually. The conditions for sexual agency are directly affected by caregivers’ perceptions and attitudes, as well as facility policies. Objective: This article aims to clarify how to approach capacity determinations as it relates to sexual activity, propose how to theorize about patient (...)
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  27.  43
    The Duty to Feed in Cases of Advanced Dementia.Shabbir M. H. Alibhai - 2008 - Journal of Religious Ethics 36 (1):37-52.
    Cases of dementia present us with difficult ethical dilemmas as we strive to care for those unable to care for themselves. In this article, I review the relevant Islamic texts on caring for the ill, alleviating suffering, and feeding the hungry-all in light of the modern clinical environment. I find that the ethical appropriateness of tube feeding at the end of life is not as clear-cut as it may seem. My analysis, however, suggests that Muslim scholars ought to favor (...)
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  28.  32
    Disturbances of Consciousness in Dementia with Lewy Bodies Associated with Alteration in Nicotinic Receptor Binding in the Temporal Cortex.Clive Ballard, Jennifer Court, Margaret Piggott, Mary Johnson & John O'Brien - 2002 - Consciousness and Cognition 11 (3):461-474.
    Disturbances of consciousness, including fluctuations in attention and awareness, are a common and clinically important symptom in dementia with Lewy bodies. In the present study we investigate potential mechanisms of such disturbances of consciousness in a clinicopathological study evaluating specific components of the cholinergic system. [3H]Epibatidine binding to the high-affinity nicotinic receptor in the temporal cortex differentiated DLB cases with and without DOC, being 62–66% higher in those with DOC. The were no differences between DLB patients with or without (...)
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  29.  85
    Making Decisions About Life-Sustaining Medical Treatment in Patients with Dementia.Arthur R. Derse - 1999 - Theoretical Medicine and Bioethics 20 (1):55-67.
    The problem of decision-making capacity in patients with dementia, such as those with early stage Alzheimer's, can be vexing, especially when these patients refuse life-sustaining medical treatments. However, these patients should not be presumed to lack decision-making capacity. Instead, an analysis of the patient's decision-making capacity should be made. Patients who have some degree of decision-making capacity may be able to make a choice about life-sustaining medical treatment and may, in many cases, choose to forgo treatment.
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  30.  62
    The Burden of Dementia: A Medical and Research Perspective.Piero Antuono & Jan Beyer - 1999 - Theoretical Medicine and Bioethics 20 (1):3-13.
    Alzheimer's disease remains the most common form of dementia. Dementia symptoms vary depending on individual personality, life experience, and social and cultural influences. As dementia progresses, involvement of multi-disciplinary health care professionals is needed to manage the disease. Alzheimer research is progressing rapidly. While 5% of all Alzheimer's disease may be genetically determined, the majority is not. Susceptibility genes can reveal the risk of contracting Alzheimer's disease. Early life risk factors such as education, nutrition, and vascular disease (...)
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  31.  56
    Diagnosis and Management of Dementia in Primary Care at an Early Stage: The Need for a New Concept and an Adapted Procedure.Jan De Lepeleire & Jan Heyrman - 1999 - Theoretical Medicine and Bioethics 20 (3):213-226.
    Diagnosis of dementia in primary care is both difficult and important. The recommendations by several authors to improve the diagnosis of dementia by general practitioners are important, but insufficient. It is argued that perhaps the disease concept in itself is a cause of confusion for clinicians. Primary care physicians need an adapted procedure, gradually leading to the final diagnosis of dementia. It has to be a stepwise labelling strategy, using global descriptions and non-disease specific labels in the (...)
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  32.  46
    Developing Awareness About Awareness in Early-Stage Dementia: The Role of Psychosocial Factors.Linda Clare - 2002 - Dementia 1 (3):295-312.
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  33.  7
    Self-Experience in Dementia.Michela Summa & Thomas Fuchs - 2015 - Rivista Internazionale di Filosofia e Psicologia 6 (2):387-405.
    This paper develops a phenomenological analysis of the disturbances of self-experience in dementia. After considering the lack of conceptual clarity regarding the notions of self and person in current research on dementia, we develop a phenomenological theory of the structure of self-experience in the first section. Within this complex structure, we distinguish between the basic level of pre-reflective self-awareness, the episodic sense of self, and the narrative constitution of the self. In the second section, we focus on (...) and argue that, despite the impairment of narrative self-understanding, more basic moments of self-experience are preserved. In accordance with the theory developed in the first part, we argue that, at least until the final stages of the illness, these self-experience in dementia goes beyond the pure minimal self, and rather entail forms of self-reference and an episodic sense of self. (shrink)
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  34.  3
    On the Existential Situation of a Person with Dementia: The Drama ofMankind is Repeated in the Drama of Dementia.Björn Freter - 2015 - Journal of Health Science 2015:205-216.
    Man suffers from a very particular fate, namely that of being besieged by questions which he cannot answer and cannot ignore either. The ability to pose questions like these is a key characteristic of the fundamental existential situation of mankind. Every person must find his or her own particular method of coping with such questions. This makes up a significant part of the human maturing process. People with dementia, having already found their personal solution to cope with the problem (...)
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  35.  31
    Holding One Another (Well, Wrongly, Clumsily) in a Time of Dementia.Hilde Lindemann - 2009 - Metaphilosophy 40 (3-4):416-424.
  36.  65
    Self Awareness and Personality Change in Dementia.K. P. Rankin, E. Baldwin, C. Pace-Savitsky, J. H. Kramer & B. L. Miller - 2005 - Journal of Neurology, Neurosurgery and Psychiatry 76 (5):632-639.
  37.  17
    Return to Childhood? Against the Infantilization of People with Dementia.Karin Jongsma & Mark Schweda - 2018 - Bioethics 32 (7):414-420.
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  38.  57
    Nothing but the Truth? On Truth and Deception in Dementia Care.Maartje Schermer - 2007 - Bioethics 21 (1):13–22.
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  39.  32
    What is It to Be a Daughter? Identities Under Pressure in Dementia Care.Minke Goldsteen, Tineke Abma, Barth Oeseburg, Marian Verkerk, Frans Verhey & Guy Widdershoven - 2007 - Bioethics 21 (1):1–12.
  40.  16
    'Because We See Them Naked'–Nurses 'Experiences in Caring for Hospitalized Patients with Dementia: Considering Artificial Nutrition or Hydration (Anh)'.Els Bryon, Bernadette Dierckx De Casterlé & Chris Gastmans - 2012 - Bioethics 26 (6):285-295.
  41. Autobiographical Memory and Autonoetic Consciousness in a Case of Semantic Dementia.Pascale Piolino, Serge Belliard, Béatrice Desgranges, Mélisa Perron & Francis Eustache - 2003 - Cognitive Neuropsychology 20 (7):619-639.
  42.  45
    The Role of Personality and Coping Style in Relation to Awareness of Current Functioning in Early-Stage Dementia.A. Seiffer, Linda Clare & Rudolf Harvey - 2005 - Aging and Mental Health 9 (6):535-541.
  43.  24
    The Problem of Pain Management Among Persons with Dementia, Personhood, and the Ontology of Relationships.David C. Malloy & Thomas Hadjistavropoulos - 2004 - Nursing Philosophy 5 (2):147-159.
  44.  16
    The Canary in the Coal Mine: Continence Care for People with Dementia in Acute Hospital Wards as a Crisis of Dehumanization.Paula Boddington & Katie Featherstone - 2018 - Bioethics 32 (4):251-260.
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  45.  4
    Cultural Considerations in Forgoing Enteral Feeding: A Comparison Between the Hong Kong Chinese, North American, and Malaysian Islamic Patients with Advanced Dementia at the End‐of‐Life.Olivia M. Y. Ngan, Sara M. Bergstresser, Suhaila Sanip, A. T. M. Emdadul Haque, Helen Y. L. Chan & Derrick K. S. Au - forthcoming - Developing World Bioethics.
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  46.  41
    The Granulin Gene Family: From Cancer to Dementia.Andrew Bateman & Hugh P. J. Bennett - 2009 - Bioessays 31 (11):1245-1254.
  47.  6
    An Evaluation of a Domiciliary Respite Service for Younger People with Dementia.Kader Parahoo, Audrey Campbell & Carol Scoltock - 2002 - Journal of Evaluation in Clinical Practice 8 (4):377-385.
  48.  8
    Explaining the Use and Non‐Use of Community‐Based Long‐Term Care Services by Caregivers of Persons with Dementia.Maureen Markle‐Reid & Gina Browne - 2001 - Journal of Evaluation in Clinical Practice 7 (3):271-287.
  49.  11
    Responsibility and Age‐Related Dementia.Petr Frantik - 2018 - Bioethics 32 (4):240-250.
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  50.  32
    Surrogate Consent for Dementia Research: Factors Influencing Five Stakeholder Groups From the SCORES Study.G. Bravo, S. Y. Kim, M. F. Dubois, C. A. Cohen, S. M. Wildeman & J. E. Graham - 2013 - IRB: Ethics & Human Research 35 (4):1-11.
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