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Dorcas Kamuya [11]Dorcas M. Kamuya [3]
  1.  40
    Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
    There is wide agreement that community engagement is important for many research types and settings, often including interaction with ‘representatives’ of communities. There is relatively little published experience of community engagement in international research settings, with available information focusing on Community Advisory Boards or Groups (CAB/CAGs), or variants of these, where CAB/G members often advise researchers on behalf of the communities they represent. In this paper we describe a network of community members (‘KEMRI Community Representatives’, or ‘KCRs’) linked to a (...)
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  2.  26
    Deliberately infecting healthy volunteers with malaria parasites: Perceptions and experiences of participants and other stakeholders in a Kenyan‐based malaria infection study.Irene Jao, Vicki Marsh, Primus Che Chi, Melissa Kapulu, Mainga Hamaluba, Sassy Molyneux, Philip Bejon & Dorcas Kamuya - 2020 - Bioethics 34 (8):819-832.
    Controlled human malaria infection (CHMI) studies involve the deliberate infection of healthy volunteers with malaria parasites under controlled conditions to study immune responses and/or test drug or vaccine efficacy. An empirical ethics study was embedded in a CHMI study at a Kenyan research programme to explore stakeholders’ perceptions and experiences of deliberate infection and moral implications of these. Data for this qualitative study were collected through focus group discussions, in‐depth interviews and non‐participant observation. Sixty‐nine participants were involved, including CHMI study (...)
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  3.  20
    “When they see us, it’s like they have seen the benefits!”: experiences of study benefits negotiations in community-based studies on the Kenyan Coast.Dorcas M. Kamuya, Vicki Marsh, Patricia Njuguna, Patrick Munywoki, Michael Parker & Sassy Molyneux - 2014 - BMC Medical Ethics 15 (1):90.
    Benefit sharing in health research has been the focus of international debates for many years, particularly in developing countries. Whilst increasing attention is being given to frameworks that can guide researchers to determine levels of benefits to participants, there is little empirical research from developing countries on the practical application of these frameworks, including in situations of extreme poverty and vulnerability. In addition, the voices of those who often negotiate and face issues related to benefits in practice - frontline researchers (...)
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  4.  30
    Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in K enya.Dorcas M. Kamuya, Sally J. Theobald, Patrick K. Munywoki, Dorothy Koech, Wenzel P. Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):1-9.
    Fieldworkers (FWs) are community members employed by research teams to support access to participants, address language barriers, and advise on culturally appropriate research conduct. The critical role that FWs play in studies, and the range of practical and ethical dilemmas associated with their involvement, is increasingly recognised. In this paper, we draw on qualitative observation and interview data collected alongside a six month basic science study which involved a team of FWs regularly visiting 47 participating households in their homes. The (...)
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  5.  32
    A scoping review of ethics review processes during public health emergencies in Africa.Kingsley Orievulu, Alex Hinga, Busisiwe Nkosi, Nothando Ngwenya, Janet Seeley, Anthony Akanlu, Paulina Tindana, Sassy Molyneux, Samson Kinyanjui & Dorcas Kamuya - 2024 - BMC Medical Ethics 25 (1):1-15.
    Background The COVID-19 pandemic forced governments, multilateral public health organisations and research institutions to undertake research quickly to inform their responses to the pandemic. Most COVID-19-related studies required swift approval, creating ethical and practical challenges for regulatory authorities and researchers. In this paper, we examine the landscape of ethics review processes in Africa during public health emergencies (PHEs). Methods We searched four electronic databases (Web of Science, PUBMED, MEDLINE Complete, and CINAHL) to identify articles describing ethics review processes during public (...)
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  6.  21
    Considering the Importance of Context for Ethical Practice on Reimbursement, Compensation and Incentives for Volunteers in Human Infection Controlled Studies.Primus Che Chi, Esther Owino, Irene Jao, Vicki Marsh & Dorcas Kamuya - 2021 - American Journal of Bioethics 21 (3):40-42.
    The proposed framework by Lynch et al. (2021) for promoting ethical forms of payment in Human Infection Controlled Studies (HICS) in general and SARS-Cov-2 HICS in particular is an important contri...
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  7.  21
    Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study.Dorcas Kamuya, Vicki Marsh, Melissa Kapulu, Philip Bejon, Irene Jao, Esther Awuor Owino & Primus Che Chi - 2022 - BMC Medical Ethics 23 (1):1-13.
    Human Infection Studies have emerged as an important research approach with the potential to fast track the global development of vaccines and treatments for infectious diseases, including in low resource settings. Given the high level of burdens involved in many HIS, particularly prolonged residency and biological sampling requirements, it can be challenging to identify levels of study payments that provide adequate compensation but avoid ‘undue’ levels of inducement to participate. Through this embedded ethics study, involving 97 healthy volunteers and other (...)
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  8.  18
    Community Members Employed on Research Projects Face Crucial, Often Under-Recognized, Ethical Dilemmas.Sassy Molyneux, Dorcas Kamuya & Vicki Marsh - 2010 - American Journal of Bioethics 10 (3):24-26.
  9.  19
    What We Learned About Voluntariness and Consent: Incorporating “Background Situations” and Understanding Into Analyses.Dorcas Kamuya, Vicki Marsh & Sassy Molyneux - 2011 - American Journal of Bioethics 11 (8):31-33.
    The American Journal of Bioethics, Volume 11, Issue 8, Page 31-33, August 2011.
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  10.  29
    Working with C ommunity H ealth W orkers as ‘ V olunteers’ in a Vaccine Trial: Practical and Ethical Experiences and Implications.Vibian Angwenyi, Dorcas Kamuya, Dorothy Mwachiro, Vicki Marsh, Patricia Njuguna & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):38-47.
    Community engagement is increasingly emphasized in biomedical research, as a right in itself, and to strengthen ethical practice. We draw on interviews and observations to consider the practical and ethical implications of involving Community Health Workers (CHWs) as part of a community engagement strategy for a vaccine trial on the Kenyan Coast. CHWs were initially engaged as an important network to be informed about the trial. However over time, and in response to community advice, they became involved in trial information (...)
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  11.  44
    Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.Ilina Singh, Dorcas Kamuya, Dan J. Stein & Jantina de Vries - 2017 - American Journal of Bioethics 17 (4):17-19.
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  12.  27
    Field Workers at the Interface.Sassy Molyneux, Dorcas Kamuya, Philister Adhiambo Madiega, Tracey Chantler, Vibian Angwenyi & P. Wenzel Geissler - 2013 - Developing World Bioethics 13 (1):ii-iv.
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  13.  18
    A scoping review of considerations and practices for benefit sharing in biobanking.Dorcas Kamuya, Jantina De Vries & Allan Sudoi - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundDespite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little attention. Questions such as the types and range of benefits that can arise in biobanking, who should be entitled to those benefits, when they should be provided, by whom and in what form remain mostly unanswered. We conducted a scoping review to describe benefit sharing considerations (...)
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  14.  24
    Feedback of Research Findings for Vaccine Trials: Experiences from Two Malaria Vaccine Trials Involving Healthy Children on the K enyan C oast.Caroline Gikonyo, Dorcas Kamuya, Bibi Mbete, Patricia Njuguna, Ally Olotu, Philip Bejon, Vicki Marsh & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):48-56.
    Internationally, calls for feedback of findings to be made an ‘ethical imperative’ or mandatory have been met with both strong support and opposition. Challenges include differences in issues by type of study and context, disentangling between aggregate and individual study results, and inadequate empirical evidence on which to draw. In this paper we present data from observations and interviews with key stakeholders involved in feeding back aggregate study findings for two Phase II malaria vaccine trials among children under the age (...)
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