33 found
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  1.  7
    Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children.Ellen Wright Clayton - 2014 - American Journal of Bioethics 14 (3):3-9.
    American Academy of Pediatrics and American College of Medical Genetics recently provided two recommendations about predictive genetic testing of children. The Clinical Sequencing Exploratory Research Consortium's Pediatrics Working Group compared these recommendations, focusing on operational and ethical issues specific to decision making for children. Content analysis of the statements addresses two issues: how these recommendations characterize and analyze locus of decision making, as well as the risks and benefits of testing, and whether the guidelines conflict or come to different but (...)
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  2.  6
    Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine & Ethics 36 (2):219-248.
    No consensus yet exists on how to handle incidental fnd-ings in human subjects research. Yet empirical studies document IFs in a wide range of research studies, where IFs are fndings beyond the aims of the study that are of potential health or reproductive importance to the individual research participant. This paper reports recommendations of a two-year project group funded by NIH to study how to manage IFs in genetic and genomic research, as well as imaging research. We conclude that researchers (...)
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  3.  2
    Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.
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  4.  14
    Informed Consent and Biobanks.Ellen Wright Clayton - 2005 - Journal of Law, Medicine & Ethics 33 (1):15-21.
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  5.  31
    So What Are We Going to Do About Research Using Clinical Information and Samples.Ellen Wright Clayton - 2004 - IRB: Ethics & Human Research 26 (6):14-15.
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  6.  7
    Incidental Findings in Genetics Research Using Archived DNA.Ellen Wright Clayton - 2008 - Journal of Law, Medicine & Ethics 36 (2):286-291.
    Despite calls by some commentators for disclosing incidental fndings in genetics research, several factors weigh in favor of caution. The technology of genetics has the power to uncover a vast array of information. The most potent argument for restraint in disclosure is that much research is pursued without consent so that the individual participant may not know that research is being conducted at all. Often the work is done by investigators and at institutions with which the person has no prior (...)
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  7.  1
    Informed Consent and Biobanks.Ellen Wright Clayton - 2005 - Journal of Law, Medicine and Ethics 33 (1):15-21.
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  8.  10
    Currents in Contemporary Ethics.Ellen Wright Clayton - 2010 - Journal of Law, Medicine & Ethics 38 (3):697-700.
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  9.  5
    The Complex Relationship of Genetics, Groups, and Health: What It Means for Public Health.Ellen Wright Clayton - 2002 - Journal of Law, Medicine & Ethics 30 (2):290-297.
  10.  4
    The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making.Joshua E. Perry, Ilene N. Moore, Bruce Barry, Ellen Wright Clayton & Amanda R. Carrico - 2009 - Journal of Law, Medicine & Ethics 37 (3):461-475.
    Writing in 1999, legal ethics scholar Brad Wendel noted that “[v]ery little empirical work has been done on the moral decision making of lawyers.” Indeed, since the mid-1990s, few empirical studies have attempted to explore how attorneys deliberate about ethical dilemmas they encounter in their practice. Moreover, while past research has explored some of the ethical issues confronting lawyers practicing in certain specific areas of practice, no published data exists probing the moral mind of health care lawyers. As signaled by (...)
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  11.  9
    A Time for Gratitude.Ellen Wright Clayton - 2000 - Journal of Law, Medicine & Ethics 28 (4):329-329.
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  12. Foreword.Ellen Wright Clayton - 2001 - Journal of Law, Medicine & Ethics 29 (s2):1-2.
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  13.  1
    Legal and Ethical Commentary: The Dangers of Reading Duty Too Broadly.Ellen Wright Clayton - 1997 - Journal of Law, Medicine & Ethics 25 (1):19-21.
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  14.  4
    Commentary: What Is Really at Stake in Baby K? A Response to Ellen Flannery.Ellen Wright Clayton - 1995 - Journal of Law, Medicine & Ethics 23 (1):13-14.
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  15.  10
    A Ray of Light About Frozen Embryos.Ellen Wright Clayton - 1992 - Kennedy Institute of Ethics Journal 2 (4):347-359.
  16.  16
    Experimental Arrest of Cerebral Blood Flow in Human Subjects The Red Wing Studies Revisited.Brian A. Smith, Ellen Wright Clayton & David Robertson - 2011 - Perspectives in Biology and Medicine 54 (2):121-131.
    Aircraft with increasingly high performance were important to the war effort in World War II. Changes in technology allowed aircraft to reach faster speeds and to complete missions at higher altitudes. With these changes came new obstacles for pilots who had to tolerate these stresses. Of primary concern to the U.S. War Department was the loss of consciousness that often occurred with high-speed maneuvers and especially during pull-up after dive-bombing missions. In some cases, pilots would experience up to 9G of (...)
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  17.  12
    Response.Ellen Wright Clayton - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (3):320.
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  18.  16
    “Human Non-Subjects Research”: Privacy and Compliance.Kyle Bertram Brothers & Ellen Wright Clayton - 2010 - American Journal of Bioethics 10 (9):15-17.
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  19.  2
    A Time for Gratitude.Ellen Wright Clayton - 2000 - Journal of Law, Medicine and Ethics 28 (4):329-329.
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  20.  2
    How Much Control Do Children and Adolescents Have Over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?Ellen Wright Clayton - 2015 - Journal of Law, Medicine and Ethics 43 (3):538-544.
    Adolescents may often have opinions about whether they want genetic and genomic testing in both the clinic and research and about who should have access to the results. This legal analysis demonstrates that the law provides very little protection to minors' wishes.
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  21.  2
    The Dispersion of Genetic Technologies and the Law.Ellen Wright Clayton - 1995 - Hastings Center Report 25 (3):13-15.
  22.  2
    Panel Comment: Why the Use of Anonymous Samples for Research Matters.Ellen Wright Clayton - 1995 - Journal of Law, Medicine & Ethics 23 (4):375-377.
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  23. Index to Volume 22.Lisa Sowle Cahill, Mark J. Cherry, Ellen Wright Clayton, Francis Dominic Degnin, Kenneth DeVille, Robin S. Downie, Fiona Randall, Steven D. Edwards, Ruiping Fan & Kateryna Fedoryka - 1997 - Journal of Medicine and Philosophy 22:643-646.
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  24. Baby Aaron and the Elders.Ellen Wright Clayton & Eric Kodish - 1999 - Hastings Center Report 29 (5):20 - discussion.
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  25. Currents in Contemporary Ethics.Ellen Wright Clayton - 2010 - Journal of Law, Medicine and Ethics 38 (3):697-700.
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  26. Case Study: Baby Aaron and the Elders.Ellen Wright Clayton & Eric Kodish - forthcoming - Hastings Center Report.
     
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  27. Commentary: What Is Really at Stake in Baby K? A Response to Ellen Flannery.Ellen Wright Clayton - 1995 - Journal of Law, Medicine and Ethics 23 (1):13-14.
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  28. Foreword.Ellen Wright Clayton - 2001 - Journal of Law, Medicine and Ethics 29 (s2):1-2.
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  29. Incidental Findings in Genetics Research Using Archived DNA.Ellen Wright Clayton - 2008 - Journal of Law, Medicine and Ethics 36 (2):286-291.
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  30. Legal and Ethical Commentary: The Dangers of Reading Duty Too Broadly.Ellen Wright Clayton - 1997 - Journal of Law, Medicine and Ethics 25 (1):19-21.
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  31. Panel Comment: Why the Use of Anonymous Samples for Research Matters.Ellen Wright Clayton - 1995 - Journal of Law, Medicine and Ethics 23 (4):375-377.
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  32. The Complex Relationship of Genetics, Groups, and Health: What It Means for Public Health.Ellen Wright Clayton - 2002 - Journal of Law, Medicine and Ethics 30 (2):290-297.
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  33. The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making.Joshua E. Perry, Ilene N. Moore, Bruce Barry, Ellen Wright Clayton & Amanda R. Carrico - 2009 - Journal of Law, Medicine and Ethics 37 (3):461-475.
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