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Els Maeckelberghe [8]Els L. M. Maeckelberghe [2]
  1.  16
    Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part.Malou Luchtenberg, Els Maeckelberghe, Louise Locock, Lesley Powell & A. A. Eduard Verhagen - 2015 - American Journal of Bioethics 15 (11):3-13.
    Given the lack of knowledge about safety and efficacy of many treatments for children, pediatric clinical trials are important, but recruitment for pediatric research is difficult. Little is known about children's perspective on participating in trials. The purpose of this study was to understand the experiences and motivations of young people who took part in clinical trials. This is a qualitative interview study of 25 young people aged 10–23 who were invited to take part in clinical trials. Interviews were audio (...)
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  2.  34
    Enhancing Reflection: An Interpersonal Exercise in Ethics Education.Marian Verkerk, Hilde Lindemann, Els Maeckelberghe, Enne Feenstra, Rudolph Hartoungh & Menno de Bree - 2004 - Hastings Center Report 34 (6):31-38.
  3.  37
    Screening for Infectious Diseases of Asylum Seekers Upon Arrival: The Necessity of the Moral Principle of Reciprocity.Dorien T. Beeres, Darren Cornish, Machiel Vonk, Sofanne J. Ravensbergen, Els L. M. Maeckelberghe, Pieter Boele Van Hensbroek & Ymkje Stienstra - 2018 - BMC Medical Ethics 19 (1):16.
    With a large number of forcibly displaced people seeking safety, the EU is facing a challenge in maintaining solidarity. Europe has seen millions of asylum seekers crossing European borders, the largest number of asylum seekers since the second world war. Endemic diseases and often failing health systems in their countries of origin, and arduous conditions during transit, raise questions around how to meet the health needs of this vulnerable population on arrival in terms of screening, vaccination, and access to timely (...)
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  4.  10
    Pediatric Brain Tumors: Narrating Suffering and End-of-Life Decisionmaking.Marije Brouwer, Els Maeckelberghe, Henk-jan ten Brincke, Marloes Meulenbeek-ten Brincke & Eduard Verhagen - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (3):338-345.
    When talking about decisionmaking for children with a life-threatening condition, the death of children with brain tumors deserves special attention. The last days of the lives of these children can be particularly harsh for bystanders, and raise questions about the suffering of these children themselves. In the Netherlands, these children are part of the group for whom a wide range of end-of-life decisions are discussed, and questions raised. What does the end-of-life for these children look like, and what motivates physicians (...)
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  5.  88
    Feminist Ethic of Care: A Third Alternative Approach. [REVIEW]Els Maeckelberghe - 2004 - Health Care Analysis 12 (4):317-327.
    A man with Alzheimer's who wanders around, a caregiver who disconnects the alarm, a daughter acting on het own, and a doctor who is not consulted set the stage for a feminist reflection on capacity/competence assessment. Feminist theory attempts to account for gender inequality in the political and in the epistemological realm. One of its tasks is to unravel the settings in which actual practices, i.c. capacity/competence assessment take place and offer an alternative. In this article the focus will be (...)
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  6.  4
    A Genetic Researcher’s Devil’s Dilemma: Warn Relatives About Their Genetic Risk or Respect Confidentiality Agreements with Research Participants?Imke Christiaans, M. Corrette Ploem, Els L. M. Maeckelberghe & Lieke M. van den Heuvel - 2021 - BMC Medical Ethics 22 (1):1-7.
    BackgroundWith advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands are asked to inform at-risk relatives about the diagnosis. However, previous research has shown that relatives are sometimes not informed due to barriers such as family conflicts. Research on family communication in genetic diseases aims to explore the difficulties encountered in informing relatives and to identify ways to support probands in this.Main bodyResearch on family communication may (...)
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  7.  13
    Quality of Living and Dying: Pediatric Palliative Care and End-of-Life Decisions in the Netherlands.Marije Brouwer, Els Maeckelberghe, Willemien de Weerd & Eduard Verhagen - 2018 - Cambridge Quarterly of Healthcare Ethics 27 (3):376-384.
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  8. Across the Generations in Feminist Theology: From Second to Third Wave Feminisms.Els Maeckelberghe - 2000 - Feminist Theology 8 (23):63-69.
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  9.  7
    A Response to the Open Peer Commentaries on “Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part”.Malou Luchtenberg, Els Maeckelberghe, Louise Locock, Lesley Powell & A. A. Eduard Verhagen - 2016 - American Journal of Bioethics 16 (2):10-12.
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