Order:
  1.  8
    If you build it, they will come: unintended future uses of organised health data collections.Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig & Donald J. Willison - 2016 - BMC Medical Ethics 17 (1):54.
    Health research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are collected for many purposes, not all of which are health-related. These collections exist under different jurisdictional and regulatory arrangements and include: 1) Population biobanks, cohort studies, and genome databases 2) Clinical and public health data 3) Direct-to-consumer genetic testing 4) Social media 5) Fitness trackers, health apps, and biometric data (...)
    Direct download (3 more)  
    Translate
     
     
    Export citation  
     
    Bookmark   5 citations  
  2.  29
    How Do Young People with Cystic Fibrosis Conceptualize the Distinction Between Research and Treatment? A Qualitative Interview Study.Jennifer A. Dobson, Emily Christofides, Melinda Solomon, Valerie Waters & Kieran O’Doherty - 2015 - Ajob Empirical Bioethics 6 (4):1-11.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  3.  5
    Improving Dissemination of Study Results: Perspectives of Individuals with Cystic Fibrosis.Emily Christofides, Karla Stroud, Diana Elizabeth Tullis & Kieran C. O’Doherty - 2019 - Research Ethics 15 (3-4):1-14.
    The practice of communicating research findings to participants has been identified as important in the research ethics literature, but little research has examined empirically how this occurs and...
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark