27 found
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  1. Vulnerability: Too Vague and Too Broad?Doris Schroeder & Eugenijus Gefenas - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (2):113.
    Imagine you are walking down a city street. It is windy and raining. Amidst the bustle you see a young woman. She sits under a railway bridge, hardly protected from the rain and holds a woolen hat containing a small number of coins. You can see that she trembles from the cold. Or imagine seeing an old woman walking in the street at dusk, clutching her bag with one hand and a walking stick with the other. A group of male (...)
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  2.  28
    Controversies between regulations of research ethics and protection of personal data: informed consent at a cross-road.Eugenijus Gefenas, J. Lekstutiene, V. Lukaseviciene, M. Hartlev, M. Mourby & K. Ó Cathaoir - 2021 - Medicine, Health Care and Philosophy 25 (1):23-30.
    This paper explores some key discrepancies between two sets of normative requirements applicable to the research use of personal data and human biological materials: the data protection regime which follows the application of the European Union General Data Protection Regulation, and the Declaration of Helsinki, CIOMS guidelines and other research ethics regulations. One source of this controversy is that the GDPR requires consent to process personal data to be clear, concise, specific and granular, freely given and revocable and therefore has (...)
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  3.  65
    (1 other version)Realizing benefit sharing – the case of post-study obligations.Doris Schroeder & Eugenijus Gefenas - 2011 - Bioethics 26 (6):305-314.
    In 2006, the Indonesian government decided to withhold avian flu samples from the World Health Organization. They argued that even though Indonesian samples were crucial to the development of vaccines, the results of vaccine research would be unaffordable for its citizens. Commentaries on the case varied from alleging blackmail to welcoming this strong stance against alleged exploitation. What is clear is that the concern expressed is related to benefit sharing.Benefit sharing requires resource users to return benefits to resource providers in (...)
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  4.  49
    Twenty Years of Human Research Ethics Committees in the Baltic States.Vilius Dranseika, Eugenijus Gefenas, Asta Cekanauskaite, Kristina Hug, Signe Mezinska, Eimantas Peicius, Vents Silis, Andres Soosaar & Martin Strosberg - 2011 - Developing World Bioethics 11 (1):48-54.
    Two decades have passed since the first attempts were made to establish systematic ethical review of human research in the Baltic States. Legally and institutionally much has changed. In this paper we provide an historical and structural overview of ethical review of human research and identify some problems related to the role of ethical review in establishing quality research environment in these countries. Problems connected to (a) public availability of information, (b) management of conflicts of interest, (c) REC composition and (...)
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  5.  61
    Lack of ethics or lack of knowledge? European upper secondary students’ doubts and misconceptions about integrity issues.Thomas Bøker Lund, Peter Sandøe, P. J. Wall, Vojko Strahovnik, Céline Schöpfer, Rita Santos, Júlio Borlido Santos, Una Quinn, Margarita Poškutė, I. Anna S. Olsson, Søren Saxmose Nielsen, Marcus Tang Merit, Linda Hogan, Roman Globokar, Eugenijus Gefenas, Christine Clavien, Mateja Centa, Mads Paludan Goddiksen & Mikkel Willum Johansen - 2022 - International Journal for Educational Integrity 18 (1).
    Plagiarism and other transgressions of the norms of academic integrity appear to be a persistent problem among upper secondary students. Numerous surveys have revealed high levels of infringement of what appear to be clearly stated rules. Less attention has been given to students’ understanding of academic integrity, and to the potential misconceptions and false beliefs that may make it difficult for them to comply with existing rules and handle complex real-life situations.In this paper we report findings from a survey of (...)
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  6.  63
    Regulation of healthcare ethics committees in Europe.Norbert Steinkamp, Bert Gordijn, Ana Borovecki, Eugenijus Gefenas, Jozef Glasa, Marc Guerrier, Tom Meulenbergs, Joanna Różyńska & Anne Slowther - 2007 - Medicine, Health Care and Philosophy 10 (4):461-475.
    In this article, the question is discussed if and how Healthcare Ethics Committees (HECs) should be regulated. The paper consists of two parts. First, authors from eight EC member countries describe the status quo in their respective countries, and give reasons as to the form of regulation they consider most adequate. In the second part, the country reports are analysed. It is suggested that regulation of HECs should be central and weak. Central regulation is argued to be apt to improve (...)
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  7.  87
    Twenty years of human research ethics committees in the baltic states.Vilius Dranseika, Eugenijus Gefenas, Asta Cekanauskaite, H. U. G. Kristina, Signe Mezinska, Eimantas Peicius, Vents Silis, Andres Soosaar & Martin Strosberg - 2010 - Developing World Bioethics 11 (1):48-54.
    Two decades have passed since the first attempts were made to establish systematic ethical review of human research in the Baltic States. Legally and institutionally much has changed. In this paper we provide an historical and structural overview of ethical review of human research and identify some problems related to the role of ethical review in establishing quality research environment in these countries. Problems connected to (a) public availability of information, (b) management of conflicts of interest, (c) REC composition and (...)
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  8.  23
    International Capacity‐Building Initiatives for National Bioethics Committees.Eugenijus Gefenas & Vilma Lukaseviciene - 2017 - Hastings Center Report 47 (S1):10-13.
    During the last two decades, national bioethics committees have been established in many countries all over the world. They vary with respect to their structure, composition, and working methods, but the main functions are similar. They are supposed to facilitate public debate on controversial bioethical issues and produce opinions and recommendations that can help inform the public and policy‐makers. The dialogue among national bioethics committees is also increasingly important in the globalized world, where biomedical technologies raise ethical dilemmas that traverse (...)
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  9.  39
    Implementation of the EU clinical trial regulation transforms the ethics committee systems and endangers ethical standards.Vilma Lukaseviciene, Joerg Hasford, Dirk Lanzerath & Eugenijus Gefenas - 2021 - Journal of Medical Ethics 47 (12):e82-e82.
    The upcoming Regulation No 536/2014 on clinical trials on medicinal products for human use, which will replace the current Clinical Trial Directive at the end of 2021, has triggered a significant reform of research ethics committee systems in Europe. Changes related to ethics review of clinical trials in the EU were considered to be essential to create a more favourable environment to conduct clinical trials in the EU. The concern is, however, that the role of the research ethics committees will (...)
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  10.  24
    Is "failure to thrive" syndrome relevant to lithuanian healthcare ethics committees?Eugenijus Gefenas - 2001 - HEC Forum 13 (4):381-392.
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  11.  79
    Turning residual human biological materials into research collections: playing with consent.Eugenijus Gefenas, Vilius Dranseika, Jurate Serepkaite, Asta Cekanauskaite, Luciana Caenazzo, Bert Gordijn, Renzo Pegoraro & Elizabeth Yuko - 2012 - Journal of Medical Ethics 38 (6):351-355.
    This article focuses on three scenarios in which residual biological materials are turned into research collections during the procedure of procuring these materials for diagnostic, therapeutic or other non-research purposes. These three scenarios differ from each other primarily because they employ different models of consent: (a) precautionary consent, which may be secured during the collecting procedure; (b) the presumed consent model, which may be applied during the collection of materials; and (c) consent for research use of identifiable human biological materials, (...)
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  12.  57
    The concept of risk and responsible conduct of research.Eugenijus Gefenas - 2006 - Science and Engineering Ethics 12 (1):75-83.
    Assessment of risk is one of the key issues in the field of responsible conduct of research which covers discourses of research ethics and research integrity. The principle of minimizing risks and balancing of risks and benefits is one of the main requirements of research ethics. In addition, the content of informed consent that is another fundamental principle of research ethics derives from the assessment of risks and benefits related to a particular research project. Risk assessment also plays a crucial (...)
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  13.  62
    Broadening the “Infrastructure Effect”: Lessons from the Early Development of Research Ethics in Eastern Europe.Vilius Dranseika, Eugenijus Gefenas & Marcin Waligora - 2016 - American Journal of Bioethics 16 (6):26-28.
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  14. Health Humanities in Medicina: The Auxiliary Stance.Olaf Dammann, Eugenijus Gefenas & Signe Mezinska - 2022 - Medicina 58 (3):411.
    At the core of medicine is the idea to help fellow human beings by improving or even restoring their health. Let us call this the auxiliary stance of medicine—the motivation of medical intervention by reference to a moral obligation to guide our peers in their attempt to live a healthy and productive life. In parallel, the auxiliary stance is also central to public health, with a focus on prevention and health promotion. Taken together, we can view medicine and public health (...)
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  15.  32
    Grey zones and good practice: A European survey of academic integrity among undergraduate students.Mads Paludan Goddiksen, Mikkel Willum Johansen, Anna Catharina Armond, Mateja Centa, Christine Clavien, Eugenijus Gefenas, Roman Globokar, Linda Hogan, Nóra Kovács, Marcus Tang Merit, I. Anna S. Olsson, Margarita Poškutė, Una Quinn, Júlio Borlido Santos, Rita Santos, Céline Schöpfer, Vojko Strahovnik, Orsolya Varga, P. J. Wall, Peter Sandøe & Thomas Bøker Lund - 2024 - Ethics and Behavior 34 (3):199-217.
    Good academic practice is more than the avoidance of clear-cut cheating. It also involves navigation of the gray zones between cheating and good practice. The existing literature has left students’ understanding of gray zone practices largely unexplored. To begin filling in this gap, we present results from a questionnaire study involving N = 1639 undergraduate students from seven European countries representing all major disciplines. We show that large numbers of these students are unable to identify gray area issues and lack (...)
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  16. Procurement, storage and transfer of tissues and cells for non-clinical research purposes (Ninth International Workshop, Vilnius).Vilius Dranseika & Eugenijus Gefenas - 2011 - In Katharina Beier, Nils Hoppe, Christian Lenk & Silvia Schnorrer (eds.), The ethical and legal regulation of human tissue and biobank research in Europe: proceedings of the Tiss.EU project. [G ottingen]: Universit atsverlag G ottingen.
     
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  17.  9
    Map of Neuroethics.Vilius Dranseika, Eugenijus Gefenas & Saulius Noreika - 2009 - Problemos 76:66-73.
    The article deals with the problems discussed in neuroethics a rapidly developing field of applied ethics. The term “neuroethics” is discussed in the article and is suggested to group neuroethical problems into four groups: (1) ethical problems connected with brain imaging technologies, (2) ethical problems connected with the technologies that allow to manipulate the activity and properties of the brain, (3) the influence of the neuroscientific worldview on our considerations on morality, and (4) general metaphilosophical considerations on neuroethics itself. The (...)
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  18. Presumed consent and other predictors of cadaveric organ donation in Europe.Ronald Gimbel, Martin Strosberg, Susan Lehrman, Eugenijus Gefenas & Frank Taft - 2003 - Progress in Transplantation 13 (1):17–23.
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  19.  41
    Biomedical research policies: Moral insight or a compromise?Eugenijus Gefenas - 1999 - Medicine, Health Care and Philosophy 2 (2):205-207.
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  20.  71
    Balancing ethical principles in emergency medicine research.Eugenijus Gefenas - 2007 - Science and Engineering Ethics 13 (3):281-288.
    This paper attempts to provide a broader view into the ethical issues surrounding the field of emergency medicine (EM) research. It starts from defining bioethically relevant features of EM and presents this field in the context of different models of health care provider–patient relationship. The paper also provides a short overview of the “post-Nuremberg” evolution of the main international research ethics guidelines relevant to EM research which demonstrates a tendency of liberalization of research on incapable persons. This tendency culminates with (...)
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  21.  26
    Clinical Ethics Committees and Ethics Support Infrastructure: A European Perspective.Eugenijus Gefenas - 2011 - Asian Bioethics Review 3 (3):293-298.
    The purpose of this article is to provide a short overview of the condition of clinical ethics committees (CECs) and other forms of the so-called "ethics support" infrastructure. This includes but is not limited to CECs because some countries also have ethics consultation services that function independently from the CECs. It seems that properly structured CECs and other types of ethics support have a potential to act as facilitators of ethically sensitive healthcare decision-making. This goal can be achieved if the (...)
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  22.  49
    Post-socialist health care: An aimless transition?Eugenijus Gefenas, Vesselin Borissov, Petko Salchev & Bela Blasszauer - 1994 - Health Care Analysis 2 (2):89-99.
    In this article I discuss 'the transition' of Lithuanian health care. In order to illustrate the size of the difficulties the people of Lithuania presently face, I focus in particular on the problem of resource allocation. I believe my observations (both general and particular) reflect the experiences of other post-socialist countries, especially those nations which were directly incorporated within the former USSR. Certainly, the two other Baltic states -- Latvia and Estonia -- have a great deal in common with Lithuania, (...)
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  23.  33
    Social Justice and Solidarity.Eugenijus Gefenas - 2001 - In H. Ten Have & Bert Gordijn (eds.), Bioethics in a European perspective. Boston, MA: Kluwer Academic Publishers. pp. 199--218.
  24.  29
    XVIIth European Conference on Philosophy of Medicine and Health Care.Eugenijus Gefenas - 2003 - Medicine, Health Care and Philosophy 6 (2):216-220.
  25.  15
    Biobanks and Individual Health Related Findings: from an Obstacle to an Incentive.Jurate Lekstutiene, Søren Holm & Eugenijus Gefenas - 2021 - Science and Engineering Ethics 27 (4):1-16.
    Despite the benefits biobanks are expected to bring, there have recently been concerns raised that the public and private non-profit biobanks still prevailing in Europe often fail to reach their initial objectives due to a variety of reasons, including a shortage of funding and insufficient utilization of collections. The necessity to find new ways to manage biobanks has been clearly recognized and one way to do this is to follow the success of some commercial direct-to-consumer genetic testing companies in the (...)
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  26.  25
    Correction to: Biobanks and Individual Health Related Findings: from an Obstacle to an Incentive.Jurate Lekstutiene, Søren Holm & Eugenijus Gefenas - 2021 - Science and Engineering Ethics 27 (6):1-2.
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  27.  29
    Erratum to: ‘Mirroring’ the Ethics of Biobanking: What Should We Learn from the Analysis of Consent Documents?Jurate Serepkaite, Zivile Valuckiene & Eugenijus Gefenas - 2014 - Science and Engineering Ethics 20 (4):1095-1095.
    Erratum to: Sci Eng Ethics DOI 10.1007/s11948-013-9481-0Unfortunately, the originally published article contains an incorrect title and author names.
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