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  1.  36
    Research Ethics: An Investigation of Patients’ Motivations for Their Participation in Genetics-Related Research.N. Hallowell, S. Cooke, G. Crawford, A. Lucassen & M. Parker - 2010 - Journal of Medical Ethics 36 (1):37-45.
    Design: Qualitative interview study. Participants: Fifty-nine patients with a family history of cancer who attend a regional cancer genetics clinic in the UK were interviewed about their current and previous research experiences. Findings: Interviewees gave a range of explanations for research participation. These were categorised as social—research participation benefits the wider society by progressing science and improving treatment for everyone; familial—research participation may improve healthcare and benefit current or future generations of the participant’s family; and personal—research participation provides therapeutic or (...)
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  2.  33
    Healthcare Professionals' and Researchers' Understanding of Cancer Genetics Activities: A Qualitative Interview Study.N. Hallowell, S. Cooke, G. Crawford, M. Parker & A. Lucassen - 2009 - Journal of Medical Ethics 35 (2):113-119.
    Aims: To describe individuals’ perceptions of the activities that take place within the cancer genetics clinic, the relationships between these activities and how these relationships are sustained. Design: Qualitative interview study. Participants: Forty individuals involved in carrying out cancer genetics research in either a clinical (n = 28) or research-only (n = 12) capacity in the UK. Findings: Interviewees perceive research and clinical practice in the subspecialty of cancer genetics as interdependent. The boundary between research and clinical practice is described (...)
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  3.  20
    Recall of Participation in Research Projects in Cancer Genetics: Some Implications for Research Ethics.S. Cooke, G. Crawford, M. Parker, A. Lucassen & N. Hallowell - 2008 - Clinical Ethics 3 (4):180-184.
    The aim of this study is to assess patients' recall of their previous research participation. Recall was established during interviews and compared with entries from clinical notes. Participants were 49 patients who had previously participated in different types of research. Of the 49 patients, 45 (92%) interviewees recalled 69 of 109 (63%) study participations. Level of recall varied according to the type of research, some participants clearly recalled the details of research aims, giving consent and research procedures. Others recalled procedures (...)
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  4.  54
    Ethics and Research Governance: The Views of Researchers, Health-Care Professionals and Other Stakeholders.N. Hallowell, S. Cooke, G. Crawford, M. Parker & A. Lucassen - 2008 - Clinical Ethics 3 (2):85-90.
    The objective of this study is to describe researchers', health-care providers' and other stakeholders' views of ethical review and research governance procedures. The study design involved qualitative semi-structured interviews. Participants included 60 individuals who either undertook research in the subspecialty of cancer genetics (n = 40) or were involved in biomedical research in other capacities (n = 20), e.g. research governance and oversight, patient support groups or research funding. While all interviewees observed that oversight is necessary to protect research participants, (...)
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  5.  41
    Rescue Obligations and Collective Approaches: Complexities in Genomics.Angela Fenwick, Sandi Dheensa, Gillian Crawford, Shiri Shkedi-Rafid & Anneke Lucassen - 2015 - American Journal of Bioethics 15 (2):23-25.
  6.  22
    A Letter From Dean Crawford.Gregory P. Crawford - 2010 - Scientia: Undergraduate Research Journal for the Sciences University of Notre Dame 1.
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  7.  12
    Monstrosity, Medicine, and Misunderstanding. The Infamy and Polemics of the Twentieth-Century Literary Giant Louis-Ferdinand Céline.G. B. Crawford - 2009 - The Pharos of Alpha Omega Alpha-Honor Medical Society. Alpha Omega Alpha 72 (3):14.
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  8.  20
    Disclosure of Genetic Information Within Families: A Case Report.G. C. Crawford & A. M. Lucassen - 2008 - Clinical Ethics 3 (1):7-10.
    There has been much discussion about what, if any, legal and moral duties professionals have to disclose relevant genetic information to the family members of someone with an identified disease predisposing mutation. Here, we present a case report where dissemination of such a genetic test result did not take place within a family. In contrast to previous literature, there appeared to be no deliberate withholding of information, instead distant relatives were unable to communicate relevant information appropriately. When communication was facilitated (...)
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  9.  6
    Petra and the Nabataeans: A Bibliography.Martha Sharp Joukowsky & Gregory A. Crawford - 2004 - Journal of the American Oriental Society 124 (2):407.
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