19 found
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  1.  3
    Ethics and Collateral Findings in Pragmatic Clinical Trials.Stephanie R. Morain, Kevin Weinfurt, Juli Bollinger, Gail Geller, Debra J. H. Mathews & Jeremy Sugarman - 2020 - American Journal of Bioethics 20 (1):6-18.
    Pragmatic clinical trials offer important benefits, such as generating evidence that is suited to inform real-world health care decisions and increasing research efficiency. However, PCTs also present ethical challenges. One such challenge involves the management of information that emerges in a PCT that is unrelated to the primary research question, yet may have implications for the individual patients, clinicians, or health care systems from whom or within which research data were collected. We term these findings as?pragmatic clinical trial collateral findings,? (...)
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  2.  28
    Public Expectations for Return of Results From Large-Cohort Genetic Research.Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson - 2008 - American Journal of Bioethics 8 (11):36 – 43.
    The National Institutes of Health and other federal health agencies are considering establishing a national biobank to study the roles of genes and environment in human health. A preliminary public engagement study was conducted to assess public attitudes and concerns about the proposed biobank, including the expectations for return of individual research results. A total of 141 adults of different ages, incomes, genders, ethnicities, and races participated in 16 focus groups in six locations across the country. Focus group participants voiced (...)
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  3. Feminism, Bioethics and Genetics.Adrienne Asch & Gail Geller - forthcoming - Feminism and Bioethics: Beyond Reproduction.
  4.  6
    Institutional Responsibility and the Flawed Genomic Biomarkers at Duke University: A Missed Opportunity for Transparency and Accountability.David L. DeMets, Thomas R. Fleming, Gail Geller & David F. Ransohoff - 2017 - Science and Engineering Ethics 23 (4):1199-1205.
    When there have been substantial failures by institutional leadership in their oversight responsibility to protect research integrity, the public should demand that these be recognized and addressed by the institution itself, or the funding bodies. This commentary discusses a case of research failures in developing genomic predictors for cancer risk assessment and treatment at a leading university. In its review of this case, the Office of Research Integrity, an agency within the US Department of Health and Human Services, focused their (...)
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  5.  11
    Observations of Respect and Dignity in the Intensive Care Unit.Joseph Carrese, Lindsay Forbes, Emily Branyon, Hanan Aboumatar, Gail Geller, Mary Catherine Beach & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1A):43A-53A.
  6.  11
    Children in Research: New Perspectives and Practices for Informed Consent.Marion E. Broome, Eric Kodish, Gail Geller & Laura A. Siminoff - 2003 - IRB: Ethics & Human Research 5:S20 - S23.
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  7.  6
    The Tyranny of Hope.Gail Geller - 2019 - Hastings Center Report 49 (4):3-3.
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  8.  9
    Case Study: Hope and the Limits of Research.Christopher K. Daugherty & Gail Geller - 1996 - Hastings Center Report 26 (5):20.
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  9.  8
    Hope and the Limits of Research.Christopher K. Daugherty & Gail Geller - 1996 - Hastings Center Report 26 (5):20-22.
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  10.  5
    Implications of the Human Genome Initiative for the Primary Care Physician.Gail Geller & Neil A. Holtzman - 1991 - Bioethics 5 (4):318–325.
  11.  16
    Physicians' Attitudes Toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine and Ethics 21 (2):238-240.
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  12.  12
    “Decoding” Informed Consent: Insights From Women Regarding Breast Cancer Susceptibility Testing.Gail Geller, Misha Strauss, Barbara A. Bernhardt & Neil A. Holtzman - 1997 - Hastings Center Report 27 (2):28-33.
  13.  21
    Patient and Family Perspectives on Respect and Dignity in the Intensive Care Unit.Mary Catherine Beach, Lindsay Forbes, Emily Branyon, Hanan Aboumatar, Joseph Carrese, Jeremy Sugarman & Gail Geller - 2015 - Narrative Inquiry in Bioethics 5 (1A):15A-25A.
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  14.  12
    Health Care Professionals’ Perceptions and Experiences of Respect and Dignity in the Intensive Care Unit.Gail Geller, Emily Branyon, Lindsay Forbes, Cynda H. Rushton, Mary Catherine Beach, Joseph Carrese, Hanan Aboumatar & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1A):27A-42A.
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  15.  9
    Trustworthy Research Institutions:The Challenging Case of Studying theGenetics of Intelligence.Josephine Johnston, Mohini P. Banerjee & Gail Geller - 2015 - Hastings Center Report 45 (S1):S59-S65.
  16.  10
    Conflicts in Learning to Care for Critically Ill Newborns: “It Makes Me Question My Own Morals”.Renee D. Boss, Gail Geller & Pamela K. Donohue - 2015 - Journal of Bioethical Inquiry 12 (3):437-448.
    Caring for critically ill and dying patients often triggers both professional and personal growth for physician trainees. In pediatrics, the neonatal intensive care unit is among the most distressing settings for trainees. We used longitudinal narrative writing to gain insight into how physician trainees are challenged by and make sense of repetitive, ongoing conflicts experienced as part of caring for very sick and dying babies. The study took place in a 45-bed, university-based NICU in an urban setting in the United (...)
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  17.  17
    Physicians' Attitudes Toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine and Ethics 21 (2):238-240.
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  18.  7
    Understanding Treatment with Respect and Dignity in the Intensive Care Unit.Hanan Aboumatar, Lindsay Forbes, Emily Branyon, Joseph Carrese, Gail Geller, Mary Catherine Beach & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1A):55A-67A.
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  19.  7
    A “Holistic” Model of the Healing Relationship: What Would That Require of Physicians?Gail Geller - 2006 - American Journal of Bioethics 6 (2):82-85.