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  1.  8
    Early-Career Researchers’ Views on Ethical Dimensions of Patient Engagement in Research.Jean-Christophe Bélisle-Pipon, Geneviève Rouleau & Stanislav Birko - 2018 - BMC Medical Ethics 19 (1):21.
    Increasing attention and efforts are being put towards engaging patients in health research, and some have even argued that patient engagement in research is an ethical imperative. Yet there is relatively little empirical data on ethical issues associated with PER. A three-round Delphi survey was conducted with a panel of early-career researchers involved in PER. One of the objectives was to examine the ethical dimensions of PER as well as ECRs’ self-perceived level of preparedness to conduct PER ethically. The study (...)
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  2.  6
    “Engage Patients in Your Research,” They Say.Jean-Christophe Bélisle-Pipon, Claudio Del Grande & Geneviève Rouleau - 2019 - Narrative Inquiry in Bioethics 9 (1):13-16.
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    "What is PER?" Patient Engagement in Research as a Hit.Jean-Christophe Bélisle-Pipon, Claudio Del Grande & Geneviéve Rouleau - 2018 - Canadian Journal of Bioethics/Revue canadienne de bioéthique 1 (2):59-62.
    Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their empowerment. However, patient engagement in research is still an emerging approach with debated definitional and operational frameworks. This song addresses the sometimes difficult encounter and elusive mutual understanding between researchers and patients. “What is PER?” is an impressionistic illustration of the challenges and issues that can be found in the universe of (...)
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  4.  3
    Full Collection of Personal Narratives.Ian Faulkner Soutar, Michael Bear, Hillary Savoie, Lauren Farmer, Jean-Christophe Bélisle-Pipon, Claudio Del Grande, Geneviève Rouleau, Shreya Thiagarajan, Stephanie Wacha, Allison M. Lee, David W. Bressler, John K. Jackson, Matthew J. Ehrhart, David B. Arscott, Kevin A. Nguyen, Pietro Michelucci, Jaden J. A. Hastings, Mary Nichols, Paloma Nuñez-Farias, Salvador Velásquez-Contreras, Viviana Ríos-Carmona, Jorge Velásquez-Contreras, María Ester Velásquez-Contreras, José Luis Rojas-Rojas, Bastián Riveros-Flores, Joey Hulbert & Christopher Santos-Lang - 2019 - Narrative Inquiry in Bioethics 9 (1):4-34.
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