15 found
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  1.  9
    Harm is All You Need? Best Interests and Disputes About Parental Decision-Making.Giles Birchley - 2016 - Journal of Medical Ethics 42 (2):111-115.
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  2.  4
    Working with Research Integrity—Guidance for Research Performing Organisations: The Bonn PRINTEGER Statement.Mira Zöller, Hub Zwart, Knut Vie, Krista Varantola, Marta Tazewell, Margit Sutrop, Thomas Saretzki, Sarah Rijcke, Barend Meulen, Inge Lerouge, Matthias Kaiser, Jacques Janssen, Ingrid Jacobsen, Serge Horbach, Bert Heinrichs, Gloria Fuster, Carlo Casonato, Henriette Bout, Giles Birchley, Sharon Bailey, Frank Anthun & Ellen-Marie Forsberg - 2018 - Science and Engineering Ethics 24 (4):1023-1034.
    This document presents the Bonn PRINTEGER Consensus Statement: Working with Research Integrity—Guidance for research performing organisations. The aim of the statement is to complement existing instruments by focusing specifically on institutional responsibilities for strengthening integrity. It takes into account the daily challenges and organisational contexts of most researchers. The statement intends to make research integrity challenges recognisable from the work-floor perspective, providing concrete advice on organisational measures to strengthen integrity. The statement, which was concluded February 7th 2018, provides guidance on (...)
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  3.  27
    Working with Research Integrity—Guidance for Research Performing Organisations: The Bonn PRINTEGER Statement.Ellen-Marie Forsberg, Frank O. Anthun, Sharon Bailey, Giles Birchley, Henriette Bout, Carlo Casonato, Gloria González Fuster, Bert Heinrichs, Serge Horbach, Ingrid Skjæggestad Jacobsen, Jacques Janssen, Matthias Kaiser, Inge Lerouge, Barend van der Meulen, Sarah de Rijcke, Thomas Saretzki, Margit Sutrop, Marta Tazewell, Krista Varantola, Knut Jørgen Vie, Hub Zwart & Mira Zöller - 2018 - Science and Engineering Ethics 24 (4):1023-1034.
    This document presents the Bonn PRINTEGER Consensus Statement: Working with Research Integrity—Guidance for research performing organisations. The aim of the statement is to complement existing instruments by focusing specifically on institutional responsibilities for strengthening integrity. It takes into account the daily challenges and organisational contexts of most researchers. The statement intends to make research integrity challenges recognisable from the work-floor perspective, providing concrete advice on organisational measures to strengthen integrity. The statement, which was concluded February 7th 2018, provides guidance on (...)
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  4.  6
    The Harm Threshold and Parents’ Obligation to Benefit Their Children.Giles Birchley - 2016 - Journal of Medical Ethics 42 (2):123-126.
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  5.  27
    Deciding Together? Best Interests and Shared Decision-Making in Paediatric Intensive Care.Giles Birchley - 2014 - Health Care Analysis 22 (3):203-222.
    In the western healthcare, shared decision making has become the orthodox approach to making healthcare choices as a way of promoting patient autonomy. Despite the fact that the autonomy paradigm is poorly suited to paediatric decision making, such an approach is enshrined in English common law. When reaching moral decisions, for instance when it is unclear whether treatment or non-treatment will serve a child’s best interests, shared decision making is particularly questionable because agreement does not ensure moral validity. With reference (...)
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  6.  11
    Have We Made Progress in Identifying Innovation?Giles Birchley, Richard Huxtable, Jonathan Ives & Jane Blazeby - 2019 - American Journal of Bioethics 19 (6):25-27.
    Volume 19, Issue 6, June 2019, Page 25-27.
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  7.  8
    The Harm Principle and the Best Interests Standard: Are Aspirational or Minimal Standards the Key?Giles Birchley - 2018 - American Journal of Bioethics 18 (8):32-34.
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  8.  17
    Smart Homes, Private Homes? An Empirical Study of Technology Researchers’ Perceptions of Ethical Issues in Developing Smart-Home Health Technologies.Giles Birchley, Richard Huxtable, Madeleine Murtagh, Ruud ter Meulen, Peter Flach & Rachael Gooberman-Hill - 2017 - BMC Medical Ethics 18 (1):23.
    Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology’s potential to increase the autonomy of people living with long-term conditions. Studies of the ethics of smart-homes raise concerns about privacy, consent, social isolation and equity of access. Few studies have investigated the ethical perspectives of smart-home engineers themselves. By exploring the views of engineering researchers in a large smart-home project, we sought (...)
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  9.  33
    What Limits, If Any, Should Be Placed on a Parent's Right to Consent and/or Refuse to Consent to Medical Treatment for Their Child?Giles Birchley - 2010 - Nursing Philosophy 11 (4):280-285.
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  10.  29
    Dying Well with Reduced Agency: A Scoping Review and Thematic Synthesis of the Decision-Making Process in Dementia, Traumatic Brain Injury and Frailty.Giles Birchley, Kerry Jones, Richard Huxtable, Jeremy Dixon, Jenny Kitzinger & Linda Clare - 2016 - BMC Medical Ethics 17 (1):46.
    BackgroundIn most Anglophone nations, policy and law increasingly foster an autonomy-based model, raising issues for large numbers of people who fail to fit the paradigm, and indicating problems in translating practical and theoretical understandings of ‘good death’ to policy. Three exemplar populations are frail older people, people with dementia and people with severe traumatic brain injury. We hypothesise that these groups face some over-lapping challenges in securing good end-of-life care linked to their limited agency. To better understand these challenges, we (...)
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  11.  51
    Doctor? Who? Nurses, Patient's Best Interests and Treatment Withdrawal: When No Doctor is Available, Should Nurses Withdraw Treatment From Patients?Giles Birchley - 2013 - Nursing Philosophy 14 (2):96-108.
    Where a decision has been made to stop futile treatment of critically ill patients on an intensive care unit – what is termed withdrawal of treatment in the UK – yet no doctor is available to perform the actions of withdrawal, nurses may be called upon to perform key tasks. In this paper I present two moral justifications for this activity by offering answers to two major questions. One is to ask if it can be in patients' best interests for (...)
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  12.  5
    Conceptualising Surgical Innovation: An Eliminativist Proposal.Giles Birchley, Jonathan Ives, Richard Huxtable & Jane Blazeby - forthcoming - Health Care Analysis:1-25.
    Improving surgical interventions is key to improving outcomes. Ensuring the safe and transparent translation of such improvements is essential. Evaluation and governance initiatives, including the IDEAL framework and the Macquarie Surgical Innovation Identification Tool have begun to address this. Yet without a definition of innovation that allows non-surgeons to identify when it is occurring, these initiatives are of limited value. A definition seems elusive, so we undertook a conceptual study of surgical innovation. This indicated common conceptual areas in discussions of (...)
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  13.  21
    Charlie Gard and the Weight of Parental Rights to Seek Experimental Treatment.Giles Birchley - 2018 - Journal of Medical Ethics 44 (7):448-452.
    The case of Charlie Gard, an infant with a genetic illness whose parents sought experimental treatment in the USA, brought important debates about the moral status of parents and children to the public eye. After setting out the facts of the case, this article considers some of these debates through the lens of parental rights. Parental rights are most commonly based on the promotion of a child’s welfare; however, in Charlie’s case, promotion of Charlie’s welfare cannot explain every fact of (...)
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  14. Conceptualising Surgical Innovation: An Eliminativist Proposal.Giles Birchley, Jonathan Ives, Richard Huxtable & Jane Blazeby - forthcoming - Health Care Analysis:1-25.
    Improving surgical interventions is key to improving outcomes. Ensuring the safe and transparent translation of such improvements is essential. Evaluation and governance initiatives, including the IDEAL framework and the Macquarie Surgical Innovation Identification Tool have begun to address this. Yet without a definition of innovation that allows non-surgeons to identify when it is occurring, these initiatives are of limited value. A definition seems elusive, so we undertook a conceptual study of surgical innovation. This indicated common conceptual areas in discussions of (...)
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  15. Conceptualising Surgical Innovation: An Eliminativist Proposal.Giles Birchley, Jonathan Ives, Richard Huxtable & Jane Blazeby - forthcoming - Health Care Analysis:1-25.
    Improving surgical interventions is key to improving outcomes. Ensuring the safe and transparent translation of such improvements is essential. Evaluation and governance initiatives, including the IDEAL framework and the Macquarie Surgical Innovation Identification Tool have begun to address this. Yet without a definition of innovation that allows non-surgeons to identify when it is occurring, these initiatives are of limited value. A definition seems elusive, so we undertook a conceptual study of surgical innovation. This indicated common conceptual areas in discussions of (...)
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