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  1.  26
    Dynamic Consent: A Potential Solution to Some of the Challenges of Modern Biomedical Research.Isabelle Budin-Ljøsne, Harriet J. A. Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D’Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson & Deborah Mascalzoni - 2017 - BMC Medical Ethics 18 (1):4.
    BackgroundInnovations in technology have contributed to rapid changes in the way that modern biomedical research is carried out. Researchers are increasingly required to endorse adaptive and flexible approaches to accommodate these innovations and comply with ethical, legal and regulatory requirements. This paper explores how Dynamic Consent may provide solutions to address challenges encountered when researchers invite individuals to participate in research and follow them up over time in a continuously changing environment.MethodsAn interdisciplinary workshop jointly organised by the University of Oxford (...)
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  2.  21
    Resource Allocation and Rationing in Nursing Care: A Discussion Paper.P. Anne Scott, Clare Harvey, Heike Felzmann, Riitta Suhonen, Monika Habermann, Kristin Halvorsen, Karin Christiansen, Luisa Toffoli & Evridiki Papastavrou - 2019 - Nursing Ethics 26 (5):1528-1539.
    Driven by interests in workforce planning and patient safety, a growing body of literature has begun to identify the reality and the prevalence of missed nursing care, also specified as care left undone, rationed care or unfinished care. Empirical studies and conceptual considerations have focused on structural issues such as staffing, as well as on outcome issues – missed care/unfinished care. Philosophical and ethical aspects of unfinished care are largely unexplored. Thus, while internationally studies highlight instances of covert rationing/missed care/care (...)
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  3.  10
    Algorithmic Governance: Developing a Research Agenda Through the Power of Collective Intelligence.Kalpana Shankar, Burkhard Schafer, Niall O'Brolchain, Maria Helen Murphy, John Morison, Su-Ming Khoo, Muki Haklay, Heike Felzmann, Aisling De Paor, Anthony Behan, Rónán Kennedy, Chris Noone, Michael J. Hogan & John Danaher - 2017 - Big Data and Society 4 (2).
    We are living in an algorithmic age where mathematics and computer science are coming together in powerful new ways to influence, shape and guide our behaviour and the governance of our societies. As these algorithmic governance structures proliferate, it is vital that we ensure their effectiveness and legitimacy. That is, we need to ensure that they are an effective means for achieving a legitimate policy goal that are also procedurally fair, open and unbiased. But how can we ensure that algorithmic (...)
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  4.  10
    Transparency You Can Trust: Transparency Requirements for Artificial Intelligence Between Legal Norms and Contextual Concerns.Aurelia Tamò-Larrieux, Christoph Lutz, Eduard Fosch Villaronga & Heike Felzmann - 2019 - Big Data and Society 6 (1).
    Transparency is now a fundamental principle for data processing under the General Data Protection Regulation. We explore what this requirement entails for artificial intelligence and automated decision-making systems. We address the topic of transparency in artificial intelligence by integrating legal, social, and ethical aspects. We first investigate the ratio legis of the transparency requirement in the General Data Protection Regulation and its ethical underpinnings, showing its focus on the provision of information and explanation. We then discuss the pitfalls with respect (...)
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  5.  42
    Ethical Sharing of Health Data in Online Platforms- Which Values Should Be Considered?Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo & Vojin Rakic - 2017 - Life Sciences, Society and Policy 13 (1):1-27.
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's Health through (...)
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  6.  13
    Towards Transparency by Design for Artificial Intelligence.Heike Felzmann, Eduard Fosch-Villaronga, Christoph Lutz & Aurelia Tamò-Larrieux - 2020 - Science and Engineering Ethics 26 (6):3333-3361.
    In this article, we develop the concept of Transparency by Design that serves as practical guidance in helping promote the beneficial functions of transparency while mitigating its challenges in automated-decision making environments. With the rise of artificial intelligence and the ability of AI systems to make automated and self-learned decisions, a call for transparency of how such systems reach decisions has echoed within academic and policy circles. The term transparency, however, relates to multiple concepts, fulfills many functions, and holds different (...)
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  7.  7
    Ethical Issues in School-Based Research.Heike Felzmann - 2009 - Research Ethics 5 (3):104-109.
    This paper provides an introduction to ethical issues arising in children's research that takes place in school-settings. It addresses three main areas of ethical concern: the informed consent process, confidentiality, and harm and benefit. Informed consent in school settings is characterized by the involvement of multiple stakeholders, including not just researchers, parents and individual children but also school principals, teachers and the children's peer group. The added complexity of the setting has implications for the management of the informed consent process, (...)
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  8. Politics of Practical Reasoning: Integrating Action, Discourse, and Argument.Keith Breen, Frank Canavan, Gerard Casey, Heike Felzmann, Thomas Gil, Karsten Harries, Richard Hull, Sebastian Lalla, Elizabeth Langhorne, Thomas Nisters, Felix O'Murchadha & Fran O'Rourke (eds.) - 2012 - Lexington Books.
    This book treats practical and political reasoning as an active engagement with the world and other people; it cannot be understood as exclusively cognitive and this is seen as a virtue rather than a deficiency. Informal, emotional, characterological, aesthetic and interactional aspects of thought can be constituents of reasonable arguing. The work examines key capacities connected with argumentation, in a variety of fields from professional and medical ethics to work organization and the practice of art.
     
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  9.  7
    European Electronic Personal Health Records Initiatives and Vulnerable Migrants: A Need for Greater Ethical, Legal and Social Safeguards.Oliver Feeney, Gabriele Werner‐Felmayer, Helena Siipi, Markus Frischhut, Silvia Zullo, Ursela Barteczko, Lars Øystein Ursin, Shai Linn, Heike Felzmann, Dušanka Krajnović, John Saunders & Vojin Rakić - 2020 - Developing World Bioethics 20 (1):27-37.
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  10.  5
    Bringing Abortion to Ireland? TheProtection of Life During Pregnancy Act 2103.Heike Felzmann - 2014 - International Journal of Feminist Approaches to Bioethics 7 (1):192-198.
  11.  18
    Bringing Abortion to Ireland? The Protection of Life During Pregnancy Act 2103.Heike Felzmann - 2014 - International Journal of Feminist Approaches to Bioethics 7 (1):192-198.
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  12.  20
    Implementing an Ethical Approach to Big Data Analytics in Assistive Robotics for Elderly with Dementia.Heike Felzmann, Timur Beyan, Mark Ryan & Oya Beyan - 2015 - Acm Sigcas Computers and Society 45 (3):280-286.
    In this paper, we analyse the ethical relevance of emerging informational aspects in robotics for the area of care robotics. We identify specific informational characteristics of contemporary and emerging robots, especially the fact of their increasing informational connectedness. We then outline specific ethical considerations arising in the design process in the H2020 project MARIO which aims to develop a care robot for persons with mild to moderate dementia in home and residential care settings. Ethical considerations regarding specific functionalities of the (...)
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  13.  18
    ‘Just a Bit of Fun’: How Recreational is Direct-to-Customer Genetic Testing?Heike Felzmann - 2015 - The New Bioethics 21 (1):20-32.
    Direct to consumer genetic testing has given rise to much controversy, especially in relation to testing for health diagnostic purposes. This paper will consider whether consumers' use of DTC genetic testing should be understood as predominantly recreational. It will be argued that recreational testing can encompass all information domains, including most kinds of predictive health risk information. In relation to recreational testing the potential identity implications for the consumer become a significant concern, more so than the risks more traditionally associated (...)
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  14.  5
    A Taxonomy of Ethical, Legal and Social Implications of Wearable Robots: An Expert Perspective.Alexandra Kapeller, Heike Felzmann, Eduard Fosch-Villaronga & Ann-Marie Hughes - 2020 - Science and Engineering Ethics 26 (6):3229-3247.
    Wearable robots and exoskeletons are relatively new technologies designed for assisting and augmenting human motor functions. Due to their different possible design applications and their intimate connection to the human body, they come with specific ethical, legal, and social issues, which have not been much explored in the recent ELS literature. This paper draws on expert consultations and a literature review to provide a taxonomy of the most important ethical, legal, and social issues of wearable robots. These issues are categorized (...)
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