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  1.  9
    The Return of Individual Research Findings in Paediatric Genetic Research.Kristien Hens, Herman Nys, Jean-Jacques Cassiman & Kris Dierickx - 2011 - Journal of Medical Ethics 37 (3):179-183.
    The combination of the issue of return of individual genetic results/incidental findings and paediatric biobanks is not much discussed in ethical literature. The traditional arguments pro and con return of such findings focus on principles such as respect for persons, autonomy and solidarity. Two dimensions have been distilled from the discussion on return of individual results in a genetic research context: the respect for a participant’s autonomy and the duty of the researcher. Concepts such as autonomy and solidarity do not (...)
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  2.  8
    Paper: The Return of Individual Research Findings in Paediatric Genetic Research.Kristien Hens, Herman Nys, Jean-Jacques Cassiman & Kris Dierickx - 2011 - Journal of Medical Ethics 37 (3):179-183.
    The combination of the issue of return of individual genetic results/incidental findings and paediatric biobanks is not much discussed in ethical literature. The traditional arguments pro and con return of such findings focus on principles such as respect for persons, autonomy and solidarity. Two dimensions have been distilled from the discussion on return of individual results in a genetic research context: the respect for a participant’s autonomy and the duty of the researcher. Concepts such as autonomy and solidarity do not (...)
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  3.  10
    Regulating Trust in Pediatric Clinical Trials.Wim Pinxten, Herman Nys & Kris Dierickx - 2008 - Medicine, Health Care and Philosophy 11 (4):439-444.
    The participation of minors in clinical trials is essential to provide safe and effective medical care to children. Because few drugs have been tested in children, pediatricians are forced to prescribe medications off-label with uncertain efficacy and safety. In this article, we analyze how the enrollment of minors in clinical trials is negotiated within relationships of mutual trust between clinicians, minors, and their parents. After a brief description of the problems associated with involving minors in clinical research, we consider how (...)
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  4.  57
    Professional Autonomy in Belgium.Herman Nys & Paul Schotsmans - 2000 - Theoretical Medicine and Bioethics 21 (5):425-439.
    The Belgian health care system has a few features that may havecontributed to the rising costs of health care: patients' freechoice of physicians, large clinical freedom of physicians, essentiallya fee-for-service remuneration for medical specialists in which the feesare agreed between insurance funds and physicians. The increased medicalconsumption and costs have prompted the state and insurance companies totake measures that limit the professional autonomy of the physicians.Access to medical education, free until 1997, is now restricted. Themedical profession is organized in the (...)
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  5.  4
    Patient Capacity in Mental Health Care: Legal Overview. [REVIEW]Herman Nys, Sander Welie, Tina Garanis-Papadatos & Dimitris Ploumpidis - 2004 - Health Care Analysis 12 (4):329-337.
    The discriminatory effects of categorizing psychiatric patients into competent and incompetent, have urged lawyers, philosophers and health care professionals to seek a functional approach to capacity assessment. Dutch and English law have produced some guidelines concerning this issue. So far, most legal systems under investigation have concentrated on alternatives for informed consent by the patient in case of mental incapacity, notably substitute decision-making, intervention of a judge and advance directives. It is hard to judge the way in which the law (...)
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  6.  53
    A Comparative Analysis of the Law Regarding Euthanasia in Belgium and the Netherlands.Herman Nys - 2002 - Ethical Perspectives 9 (2):73-85.
    In Belgium the legal conditions to practise euthanasia are governed by the act on euthanasia of 28 May, 2002 that entered into force on 23 September, 2002. There is no relevant jurisprudence and no guidance is offered by self-regulation made up by the medical profession itself before or after the enactment of the act. Thoughtful comments on the act are, understandably, lacking up to now while the discussions in parliament have been often unclear, contradictory and sometimes even misleading. In other (...)
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  7.  7
    Qualitative Study on Custodianship of Human Biological Material and Data Stored in Biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - forthcoming - Most Recent Articles: Bmc Medical Ethics.
    Balancing the rights and obligations of custodians and applicants in relation to access to biobanks is of utmost importance to guarantee trust and confidence. This study aimed to reveal which issues divide dif..
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  8.  6
    Bioethics and Medical Law—An Orientation1.Herman Nys & Paul Schotsmans - 1994 - Ethical Perspectives 1 (1):185.
    Bioethics has been in existence now for more than twenty years. Much has changed, however, since Van Rensselaer Potter2 first used the term bioethics in 1971. For Potter, bioethics was an applied science with its roots in the biological sciences and its orientation towards the betterment of human life. Today the concept is used in a different context. It has become the name given to the ethical research that has become necessary in light of the new possibilities created by revolutionary (...)
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  9.  4
    Qualitative Study on Custodianship of Human Biological Material and Data Stored in Biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - 2016 - BMC Medical Ethics 17 (1):1-10.
    BackgroundBalancing the rights and obligations of custodians and applicants in relation to access to biobanks is of utmost importance to guarantee trust and confidence. This study aimed to reveal which issues divide different stakeholders in an attempt to determine the rights and/or obligations held on human biological materials and data.MethodsTwenty-eight informants in the Benelux and Scandinavia were interviewed in order to capture the perspectives of experts and stakeholders in relation to the rights and obligations held by custodians and applicants with (...)
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  10.  11
    Ethical and Regulatory Issues in Pediatric Research Supporting the Non-Clinical Application of Fmr Imaging.Wim Pinxten, Herman Nys & Kris Dierickx - 2009 - American Journal of Bioethics 9 (1):21 – 23.
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  11.  3
    Bioethics and Medical Law.Herman Nys & Paul Schotsmans - 1994 - Ethical Perspectives 1 (4):185-207.
    Bioethics has been in existence now for more than twenty years. Much has changed, however, since Van Rensselaer Potter2 first used the term bioethics in 1971. For Potter, bioethics was an applied science with its roots in the biological sciences and its orientation towards the betterment of human life. Today the concept is used in a different context. It has become the name given to the ethical research that has become necessary in light of the new possibilities created by revolutionary (...)
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  12.  2
    UNESCO Global Ethics Observatory: Database on Ethics Related Legislation and Guidelines.T. W. Ang, Hamj ten Have, J. H. Solbakk & Herman Nys - 2008 - Journal of Medical Ethics 34 (10):738-741.
    The Database on Ethics Related Legislation and Guidelines was launched in March 2007 as the fourth database of the UNESCO Global Ethics Observatory system of databases in ethics of science and technology. The database offers a collection of legal instruments searchable by region, country, bioethical themes, legal categories and applicability to specific articles of the UNESCO Universal Declaration on Bioethics and Human Rights and International Declaration on Human Genetic Data. This paper discusses the background and rationale for the database and (...)
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  13.  2
    The Use of Human Tissue in Epidemiological Research; Ethical and Legal Considerations in Two Biobanks in Belgium.Carla Truyers, Eliane Kellen, Marc Arbyn, Leen Trommelmans, Herman Nys, Karen Hensen, Bert Aertgeerts, Stefaan Bartholomeeusen, Mats Hansson & Frank Buntinx - 2010 - Medicine, Health Care and Philosophy 13 (2):169-175.
    This paper discusses the legal implications of setting up two new biobanks in Belgium. The first is hospital-based and will archive tissue from patients with haematologic cancer, whereas the second is linked to a general practice based morbidity registry and will involve storage of blood samples. To date, Belgium has no specific legislation that regulates storage of human tissue and related databases. Several issues concerning the protection of individuals with regard to the processing of personal medical data are discussed from (...)
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  14.  1
    Norms and Values in Nursing From an Ethical and Legal Perspective: An International Comparative Inquiry in the Netherlands, Belgium, Germany and the United Kingdom.I. De Jong, P. Oosterbosch, F. Van Wijmen, Herman Nys, J. Dute, Chris Gastmans & A. Van Der Arend - 1999 - Nursing Ethics 6 (3):257-258.
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  15. Informed Consent in Children and Young People: An Introduction.Pascal Borry, Louise Stultiëns, Herman Nys & Kris Dierickx - unknown
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  16. Pt. 6. Organ Transplantation. Legal Protection of the Deceased Organ Donor in Europe.Herman Nys - 2010 - In André den Exter (ed.), Human Rights and Biomedicine. Maklu.
     
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