14 found
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  1.  26
    Gaps in Ethics Consultation Support for Patients and Families and Practical Guidance for Future Research or Quality Work Involving These Stakeholders.Hilary Mabel, Sundus Riaz, Marguerite Augustine & Jane Jankowski - 2020 - American Journal of Bioethics 20 (6):75-77.
    Volume 20, Issue 6, June 2020, Page 75-77.
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  2.  11
    The Ethics Resource Caregiver Program: Equipping Nurses as Ethics Champions.Georgina Morley, Sabahat Hizlan, Elliot Davidson, Julia Gorecki, Gillian Myers & Hilary Mabel - 2023 - Journal of Clinical Ethics 34 (1):27-39.
    Background: Nurses face ethical issues and experience moral distress in their everyday work. A nursing ethics champion program was developed at a hospital in the United States. Methods: As part of a quality improvement project, pre- and post-training surveys were developed to assess whether the program was feasible and sustainable, enhanced nurse confidence in recognizing and addressing ethical issues and moral distress, and increased nurse knowledge of institutional resources for addressing the same. Qualitative and quantitative analyses were performed. Results: Thirteen (...)
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  3.  24
    Incorporating Stakeholder Perspectives on Scarce Resource Allocation: Lessons Learned from Policymaking in a Time of Crisis.Bethany Bruno, Heather Mckee Hurwitz, Marybeth Mercer, Hilary Mabel, Lauren Sankary, Georgina Morley, Paul J. Ford, Cristie Cole Horsburgh & Susannah L. Rose - 2021 - Cambridge Quarterly of Healthcare Ethics 30 (2):390-402.
    The coronavirus disease (COVID-19) crisis provoked an organizational ethics dilemma: how to develop ethical pandemic policy while upholding our organizational mission to deliver relationship- and patient-centered care. Tasked with producing a recommendation about whether healthcare workers and essential personnel should receive priority access to limited medical resources during the pandemic, the bioethics department and survey and interview methodologists at our institution implemented a deliberative approach that included the perspectives of healthcare professionals and patient stakeholders in the policy development process. Involving (...)
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  4.  28
    On Gender and Reproductive Decision-Making in Uterine Transplantation.Hilary Mabel, Ruth M. Farrell & Andreas G. Tzakis - 2018 - American Journal of Bioethics 18 (7):3-5.
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  5.  33
    Decision‐Making for an Incapacitated Pregnant Patient.Hilary Mabel, Susannah L. Rose & Eric Kodish - 2017 - Hastings Center Report 47 (4):12-15.
    Decisions about continuing or terminating a pregnancy touch on profound, individualized questions about bodily integrity, reproductive autonomy, deeply held values regarding one's capacity for parenthood, and, in the case of a high-risk pregnancy, the risks one is willing to take to have a baby. So far as possible, reproductive decisions are made between a patient, in some cases her partner, and her medical provider. However, this standard framework cannot be applied if the patient lacks decision-making capacity. In this essay, we (...)
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  6.  22
    Worth Our Salt: Reflections of an Early Career Clinical Ethicist.Hilary Mabel - 2020 - American Journal of Bioethics 20 (3):39-41.
    Volume 20, Issue 3, March 2020, Page 39-41.
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  7.  26
    Framing the diagnosis and treatment of absolute uterine factor infertility: Insights from in-depth interviews with uterus transplant trial participants.Elliott G. Richards, Patricia K. Agatisa, Anne C. Davis, Rebecca Flyckt, Hilary Mabel, Tommaso Falcone, Andreas Tzakis & Ruth M. Farrell - 2019 - AJOB Empirical Bioethics 10 (1):23-35.
    Background: Despite procedural innovations and increasing numbers of uterus transplant attempts worldwide, the perspectives of uterus transplant (UTx) trial participants are lacking. Methods: We conducted a mixed-methods study with women with absolute uterine factor infertility (AUFI). Participants included women who had previously contacted the Cleveland Clinic regarding the Uterine Transplant Trial and met the initial eligibility criteria for participation. In-depth interviews were conducted in conjunction with FertiQoL, a validated and widely used tool to measure the impact of infertility on the (...)
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  8.  8
    “Do We Have to Tell Him He Hasn’t Been Getting Ativan?”: Truth Telling for a Patient with Nonepileptic Seizures.Lexi C. White & Hilary Mabel - forthcoming - Narrative Inquiry in Bioethics.
    The authors present a case study involving truth telling responsibilities in the setting of nonepileptic seizures. Specifically, over the course of several suspected nonepileptic seizures, a patient’s seizures stopped after he received a saline flush meant to precede the administration of anti-seizure medication. The patient and his surrogate believed he had received the medication each time, and the team wondered whether they should disclose the truth. Some worried that disclosure would reinforce the suspected psychogenic behavior, exacerbating the patient’s condition. In (...)
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  9.  14
    Reimagining Thriving Ethics Programs without Ethics Committees.Hilary Mabel, Joshua S. Crites, Thomas V. Cunningham & Jordan Potter - forthcoming - American Journal of Bioethics:1-16.
    With the increasing professionalization of clinical ethics, some hospitals and health systems utilize both ethics committees and professional clinical ethicists to address their ethics needs. Drawing upon historical critiques of ethics committees and their own experiences, the authors argue that, in ethics programs with one or more professional clinical ethicists, ethics committees should be dissolved when they fail to meet minimum standards of effectiveness. The authors outline several criteria for assessing effectiveness, describe the benefits of a model that places primary (...)
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  10.  3
    A Working Un-Conference to Advance Innovations Among Clinical Ethics Programs.Paul J. Ford & Hilary Mabel - 2019 - Journal of Clinical Ethics 30 (3):247-250.
    In an effort to create new synergies to fill gaps in evaluation of value, assessment of quality, and definition of roles in clinical ethics programs we convened a meeting entitled Innovations in Clinical Ethics: A Working Un-Conference (the Un-Conference) in August 2018. The Un-Conference was conceived to be a working event aimed at promoting cross pollination and idea generation for innovative practices in clinical ethics. The event was attended by 95 individuals from 62 institutions, representing a wide diversity of healthcare (...)
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  11.  7
    Improving Real-World Innovation and Problem Solving in Clinical Ethics: Insights from the First Clinical Ethics Un-Conference.Paul J. Ford, Margot M. Eves, Jane Jankowski, Bethany Bruno & Hilary Mabel - 2021 - Journal of Clinical Ethics 32 (4):331-342.
    Despite an abundance of academic conferences, clinical ethicists lacked a forum to share innovative practices with peers and to generate solutions to common challenges. Organizers of the first Clinical Ethics Un-Conference developed a working event centered on active participation and problem solving through peer learning, with the goal of improving realworld practice. Registrants included 95 individuals from 64 institutions. Attendees were surveyed immediately after the Un-Conference, and again eight months later. After eight months, 85 percent (n = 33/39) of the (...)
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  12.  18
    Acknowledging the Transition Spectrum.Hilary Mabel & Cecile Ferrando - 2018 - American Journal of Bioethics 18 (12):26-27.
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  13.  3
    Developing a Standardized Ethics Consultation Note Template Based on the Formatting Preferences of Stakeholders.Hilary Mabel, Patricia A. Mayer, Laura J. Hoeksema & Margot M. Eves - 2021 - Journal of Clinical Ethics 32 (4):322-330.
    Effective documentation is considered a core competency for clinical ethics consultation. Ethics consultants within the Cleveland Clinic in Cleveland, Ohio, observed variation in the formatting of ethics chart notes across consultants and realized that this formatting was based on their own views of effectiveness. To minimize variation and optimize the readability and understandability of ethics chart notes for end users, a team undertook a quality improvement project to assess the formatting preferences of healthcare professionals who rely on ethics consultation notes. (...)
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  14.  5
    Propelling Clinical Ethics Forward: Insights from the 2022 Unconference.Hilary Mabel & Jordan Potter - 2022 - Journal of Clinical Ethics 33 (4):269-276.
    Propelling Clinical Ethics Forward: A Working Unconference was held from 28-29 April 2022 in Atlanta, Georgia. The event, the third installment in an ongoing series of Clinical Ethics Unconferences, brought together 77 individuals from 40 institutions to exchange innovative practices and collaborate to address issues facing the field of clinical ethics. In this article the authors highlight the five major themes that emerged from the 2022 Unconference, including: (1) tackling new and old problems in clinical ethics practice; (2) evolving models (...)
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