8 found
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  1.  14
    Should Pregnant Women Be Charged for Non-Invasive Prenatal Screening? Implications for Reproductive Autonomy and Equal Access.Eline M. Bunnik, Adriana Kater-Kuipers, Robert-Jan H. Galjaard & Inez D. de Beaufort - 2020 - Journal of Medical Ethics 46 (3):194-198.
    The introduction of non-invasive prenatal testing in healthcare systems around the world offers an opportunity to reconsider funding policies for prenatal screening. In some countries with universal access healthcare systems, pregnant women and their partners are asked to pay for NIPT. In this paper, we discuss two important rationales for charging women for NIPT: to prevent increased uptake of NIPT and to promote informed choice. First, given the aim of prenatal screening, high or low uptake rates are not intrinsically desirable (...)
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  2.  17
    Ethics of Routine: A Critical Analysis of the Concept of ‘Routinisation’ in Prenatal Screening.Adriana Kater-Kuipers, Inez D. de Beaufort, Robert-Jan H. Galjaard & Eline M. Bunnik - 2018 - Journal of Medical Ethics 44 (9):626-631.
    In the debate surrounding the introduction of non-invasive prenatal testing in prenatal screening programmes, the concept of routinisation is often used to refer to concerns and potential negative consequences of the test. A literature analysis shows that routinisation has many different meanings, which can be distinguished in three major versions of the concept. Each of these versions comprises several inter-related fears and concerns regarding prenatal screening and particularly regarding NIPT in three areas: informed choice, freedom to choose and consequences for (...)
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  3.  30
    Ethical Framework for the Detection, Management and Communication of Incidental Findings in Imaging Studies, Building on an Interview Study of Researchers’ Practices and Perspectives.Eline M. Bunnik, Lisa van Bodegom, Wim Pinxten, Inez D. de Beaufort & Meike W. Vernooij - 2017 - BMC Medical Ethics 18 (1):10.
    As thousands of healthy research participants are being included in small and large imaging studies, it is essential that dilemmas raised by the detection of incidental findings are adequately handled. Current ethical guidance indicates that pathways for dealing with incidental findings should be in place, but does not specify what such pathways should look like. Building on an interview study of researchers’ practices and perspectives, we identified key considerations for the set-up of pathways for the detection, management and communication of (...)
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  4.  7
    The Impact of Incidental Findings Detected During Brain Imaging on Research Participants of the Rotterdam Study: An Interview Study.Charlotte H. C. Bomhof, Lisa van Bodegom, Meike W. Vernooij, Wim Pinxten, Inez D. de Beaufort & Eline M. Bunnik - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (4):542-556.
    This interview study investigates the short- and long-term implications of incidental findings detected through brain imaging on research participants’ lives and their surroundings. For this study, nine participants of the Rotterdam Scan Study with an incidental finding were approached and interviewed. When examining research participants’ narratives on the impact of the disclosure of incidental findings, the authors identified five sets of tensions with regard to motivations for and expectations of research participation, preferences regarding disclosure, short- and long-term impacts and impacts (...)
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  5.  6
    Rethinking Counselling in Prenatal Screening: An Ethical Analysis of Informed Consent in the Context of Non‐Invasive Prenatal Testing.Adriana Kater‐Kuipers, Inez D. De Beaufort, Robert‐Jan H. Galjaard & Eline M. Bunnik - 2020 - Bioethics 34 (7):671-678.
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  6.  21
    Regulating “Higher Risk, No Direct Benefit” Studies in Minors.Anna E. Westra, Jan M. Wit, Rám N. Sukhai & Inez D. de Beaufort - 2011 - American Journal of Bioethics 11 (6):29 - 31.
    The American Journal of Bioethics, Volume 11, Issue 6, Page 29-31, June 2011.
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  7.  23
    Ethical Issues in the Beauty Salon: The Development of National Ethics Guidelines for Aestheticians in the Netherlands.Eline M. Bunnik, Frans Meulenberg & Inez D. de Beaufort - forthcoming - Narrative Inquiry in Bioethics.
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  8.  6
    Ethical Issues in the Beauty Salon: The Development of National Ethics Guidelines for Aestheticians in the Netherlands.Eline M. Bunnik, Frans Meulenberg & Inez D. de Beaufort - 2018 - Narrative Inquiry in Bioethics 8 (3):247-260.
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