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Johnny Ludvigsson [3]J. Ludvigsson [3]
  1.  29
    Split views among parents regarding children's right to decide about participation in research: a questionnaire survey.U. Swartling, G. Helgesson, M. G. Hansson & J. Ludvigsson - 2009 - Journal of Medical Ethics 35 (7):450-455.
    Based on extensive questionnaire data, this paper focuses on parents’ views about children’s right to decide about participation in research. The data originates from 4000 families participating in a longitudinal prospective screening as 1997. Although current regulations and recommendations underline that children should have influence over their participation, many parents in this study disagree. Most (66%) were positive providing information to the child about relevant aspects of the study. However, responding parents were split about whether or not children should at (...)
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  2.  73
    Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden (with and without (...)
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  3.  7
    Bioethical theory and practice in genetic screening for type 1 diabetes.U. Gustafsson Stolt, J. Ludvigsson, P. -E. Liss & T. Svensson - 2003 - Medicine, Health Care and Philosophy 6 (1):45-50.
    Due to the potential ethical and psychological implications of screening, and especially inregard of screening on children without available and acceptable therapeutic measures, there is a common view that such procedures are not advisable. As part of an independent research- and bioethical case study, our aim was therefore to explore and describe bioethical issues among a representative sample of participant families (n = 17,055 children) in the ABIS (All Babies In South-east Sweden) research screening for Type 1 diabetes (IDDM).The primary (...)
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  4.  11
    Scientific Contributions.U. Gustafsson Stolt, J. Ludvigsson, Pe Liss & T. Svensson - 2003 - Medicine, Health Care and Philosophy 6 (1):349-351.
    Due to the potential ethical and psychological implications of screening, and especially inregard of screening on children without available and acceptable therapeutic measures, there is a common view that such procedures are not advisable. As part of an independent research- and bioethical case study, our aim was therefore to explore and describe bioethical issues among a representative sample of participant families in the ABIS research screening for Type 1 diabetes.The primary aim is the identification of risk factors important for the (...)
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  5.  23
    What parents find important when participating in longitudinal studies: results from a questionnaire.Gert Helgesson, Mats G. Hansson, Johnny Ludvigsson & Ulrica Swartling - 2010 - Clinical Ethics 5 (1):28-34.
    The objective of the present paper is to explore parents' views on safety and confidentiality, information and consent, the importance of different kinds of research, and their responsibilities regarding children's participation. A questionnaire was distributed to 2500 families in south-east Sweden with children born during the years 1997–1999; 1302 responded. The sample was chosen to include views of families with and without earlier research experience. A clear majority of responding parents stated that parents have a moral responsibility to let their (...)
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  6.  4
    Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden we explored parents' (...)
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