In this article, I draw on research carried out in Europe, primarily in Germany, on patients’ and scientists’ perspectives on mitochondrial replacement techniques in order to explore some of the complexities related to collective representation in health governance, which includes the translation of emerging technologies into clinical use. Focusing on observations, document analyses, and interviews with eight mitochondrial disease patient organization leaders, this contribution extends our understanding of the logic and meanings behind the ways in which patient participation and collective (...) representation in health governance initiatives take shape. My findings highlight the ways in which a commitment to a global mitochondrial disease patient community and a sense of patient solidarity influence expressions of support with regard to legalizing mitochondrial replacement techniques. My analyses illustrate how normative practices and expectations of participatory governance potentially foreclose opportunities for sustained collective patient engagement with the complex ethical, social, and political dimensions of emerging technologies and may silence diverse and potentially dissenting embodied and lived responses to the prospects of particular technological developments. (shrink)

This article is based on ethnographic research conducted between 1998 and 2000 in British Columbia, Canada. In this article Luce brings together the narratives of queer women she interviewed about their experiences of trying to become parents with her own stories about doing the research. Both sets of stories explore the ways in which relationships between people are reproduced and represented through images of sexuality, reproduction, queerness, parents, and families. Shifting between telling about the tensions she experienced while doing (...) ethnographic fieldwork and retelling women's stories about how their relationships to partners, fetuses, babies, and donors were perceived, the article draws attention to both political and methodological questions. (shrink)

Historically, the nomadic traditions of pastoralists have been alternately attacked and romanticized. In fact, pastoral groups represent a range of production systems with wide variations in pastoral and cultivation activities. Given this range and the ecological and sociopolitical constraints facing pastoralists today, agroforestry interventions appear not only feasible, but perhaps imperative for some pastoral groups. However, their design and implementation must be carried out with keen awareness and respect for the unique ecological and cultural position traditionally nomadic pastoral people hold. (...) A review of the sociopolitical and natural resource management literature on existing sylvopastoral and agrosylvopastoral technologies points to the importance of social issues such as gender, land and tree tenure, equity, and cultural context. These provide the basis for discussing the feasibility of agroforestry interventions in terms of their aims, potentials, and risks for pastoral groups. (shrink)

Information posted by youth in online social media contexts is regularly accessed, downloaded, integrated, and analyzed by academic researchers. The practice raises significant social justice considerations for researchers including issues of representation and equitable distribution of risks and benefits. Use of this type of data for research purposes helps to ensure representation in research of the voices of youth who participate in these online contexts, at times discussing issues that are also under-represented. At the same time, youth whose data are (...) harvested are subject to the risks associated with this research, while receiving little if any direct benefit from the work. These risks include the potential loss of online social community as well as threats to participant rights and wellbeing. This paper explores the tension between the social justice benefit of representation and considerations that would suggest caution, the latter including inequitable distribution of research-related costs and benefits, and the traditional ethics concerns of participant autonomy and privacy in the context of youth participation in online discussions. In the final section, we propose guidelines and considerations for the conduct of online social media research to assist researchers to balance and respect representational and participant rights or wellbeing considerations, especially with youth. (shrink)

At the peak of its influence and prestige, theology offered a compelling and complex analysis of the relation of Revelation, Scripture and Word. In Ecriture et Révélation, Breton asks how that relationship might be described in the contemporary world in which the situation of theology, its relation to metaphysics, and the very conditions of understanding have changed. Retaining from Thomas the term “spiritual sense,” Breton uses the notion of “scriptural space,” on which all things can be written, to describe the (...) way in which the self “writes itself in the world.” In place of the classic emphasis on God as author of Scripture Breton focuses upon the Christian community in its search for unity, forming a canon in light of what he calls the “Christic present.” As he critiques different ways in which Scripture is read today, he argues that it is too often objectified or evacuated of meaning. Instead of complacent answers, he asks for continuous and profound interrogation so that praxis be informed by the cross. (shrink)

In the aftermath of the debate between Derrida and Levinas on Hebraism and Hellenism, Christian thought that retains a place for philosophy is often regarded as “Graeco‐Christian”, a monolithic system with an unfortunate history. The work of the French philosopher Stansilas Breton suggests that the reality is more complex. In Le Verbe et la croix , he examines the function of the term logos staurou in Paul, arguing that this untranslatable term stands as a question mark in a world of (...) language that could only speak “Jew” or “Greek”. Far from being a sign of Christian superiority, the cross signals an imperative for dispossession intrinsic to Christian language. In its “nothingness” the cross functions as a principle of critique that makes innovation and engagement possible. Thus while the cross involves negation it moves beyond negative theology. Drawing upon neoplatonist philosophy, Breton delineates the way in which the cross makes possible “the writing of the self in the world”. This paper draws upon Breton's understanding of the function of the cross to argue that the heritage of Athens endures and must be re‐thought, always recognizing the limits of all human language. After examining Breton's understanding of the logos staurou, it relates this notion to his broader understanding of revelation as “writing”. Finally it shows how Breton appeals to neoplatonist meonotology to speak in more universal terms of the need for a principle of dispossession at the heart of all religious language. For Christians the cross is this principle, enabling human beings to be causes of themselves who engender new being. (shrink)

We provide a comprehensive analysis of differences between socially responsible investment and conventional funds in terms of manager characteristics, performance and fund styles. We use holdings-based analysis to evaluate fund performance and style, which allows us to perform a more in-depth analysis than the extant literature. We find that SRI managers have longer tenure and are more likely to be a female. However, these differences do not result in any significant difference in the performance of SRI and conventional funds. Further, (...) it is possible to find an SRI fund of any style, although these funds are under-represented in value styles. (shrink)

Prior literature on socially responsible investment has contended that excluding “sin stocks” from a portfolio will reduce performance and increase risk. Further, incorporating stocks of firms with positive social responsibility scores will improve performance and reduce risk. We simulate portfolios designed to mimic typical equity mutual funds’ holdings and investigate these propositions. We remove the potentially confounding influences of differences in manager skill, transaction costs and fees, and conduct a clean experiment on the effect of positive and negative portfolio screening. (...) We find no difference in the return or risk of screened and unscreened portfolios. We conclude that a typical socially responsible fund will neither gain nor lose from screening its portfolio. (shrink)

The ability to extrapolate essential gist through the analysis and synthesis of information, prediction of potential outcomes, abstraction of ideas, and integration of relationships with world knowledge is critical for higher-order learning. The present study investigated the efficacy of cognitive training to elicit improvements in gist-reasoning and fact recall ability in 556 public middle-school students (grades seven and eight), versus a sample of 357 middle school students who served as a comparison group, to determine if changes in gist-reasoning and fact (...) recall were demonstrated without cognitive training. The results showed that, in general, cognitive training increased gist-reasoning and fact recall abilities in students from families in poverty as well as students from families living above poverty. However, the magnitude of gains in gist-reasoning varied as a function of gender and grade-level. Our primary findings were that seventh and eighth grade girls and eighth grade boys showed significant increases in gist-reasoning after training regardless of socioeconomic status. There were no significant increases in gist-reasoning or fact recall ability for the 357 middle school students who served in the comparison group. We postulate that cognitive training in middle school is efficacious for improving gist-reasoning ability and fact recall in students from all socioeconomic levels. (shrink)

In Canada, as in many developed countries, healthcare conscientious objection is growing in visibility, if not in incidence. Yet the country's health professional policies on conscientious objection are in disarray. The article reports the results of a comprehensive review of policies relevant to conscientious objection for four Canadian health professions: medicine, nursing, pharmacy and dentistry. Where relevant policies exist in many Canadian provinces, there is much controversy and potential for confusion, due to policy inconsistencies and terminological vagueness. Meanwhile, in Canada's (...) three most northerly territories with significant Aboriginal populations, whose already precarious health is influenced by funding and practitioner shortages, there are major policy gaps applicable to conscientious objection. In many parts of the country, as a result of health professionals' conscientious refusals, access to some legal health services – including but not limited to reproductive health services such as abortion – has been seriously impeded. Although policy reform on conscientious conflicts may be difficult, and may generate strenuous opposition from some professional groups, for the sake of both patients and providers, such policy change must become an urgent priority. (shrink)

This article examines the relationship between mothers and medical discourse, drawing from oral narratives of 20 Jewish women who gave birth to their first children between 1928 and 1940. The author shows that women encounter medical discourse not only as a system of technical knowledge but also as a package of cultural and social enterprises. Jewish mothers during this period mobilized medicalized mothering practices to signify their advancement from immigrant culture into the American middle class. Mothers portray themselves as benefiting (...) from the new opportunities of American freedoms, as actively seeking self-improvements, and as engaging medicine in the context of their changing group membership. In more general terms, the author shows that medicalization's effect on social difference extends beyond men's control of women's subjectivity or social position; it also involves women in the creation and maintenance of status hierarchies between women. (shrink)

This article presents qualitative interview data to explore the health-related carework of low-income women caregivers with special-needs children and the implications of carework for women’s financial security. The author documents “direct” and “advocacy” carework as two types of caregiving that low-income women carry out in the context of declining government resources for poor disabled children. The author shows that the unique demands of carework responsibilities and the conditions of low-wage work combine to limit caregivers’ employment and education options as well (...) as their long-term prospects for financial stability. (shrink)

In this book, Luce Irigaray - philosopher, linguist, psychologist and psychoanalyst - proposes nothing less than a new conception of being as well as a means to ensure its individual and relational development from birth. Unveiling the mystery of our origin is probably what most motivates our quests and plans. Now such a disclosure proves to be impossible. Indeed we were born of a union between two, and we are forever deprived of an origin of our own. Hence our (...) ceaseless search for roots: in our genealogy, in the place where we were born, in our culture, religion or language. But a human being cannot develop starting from roots as a tree does, it must take on responsibility for its own being and existence without continuity with its origin and background. How can we succeed in doing that? First by cultivating our breathing, which is not only the means thanks to which we come into the world, but which also allows us to transcend mere survival towards a spiritual becoming. Taking on our sexuate belonging is the second element which makes us able to assume our natural existence. Indeed this determination at once brings us energy and provides us with a structure which contributes to our individuation and our relations with other living beings and the world. Our sexuation can also compensate for our absence of roots by compelling us to unite with the other sex so that we freely approach the copulative conjunction from which we were born; that is, the mystery of our origin. This does not occur through a mere sexual instinct or drive, but requires us to cultivate desire and love with respect for our mutual difference(s). In this way we become able to give rise to a new human being, not only at a natural but also at an ontological level. (shrink)

In recent years, calls have been made to address the relative dearth of qualitative sociological investigation into the sensory dimensions of embodiment, including within physical cultures. This article contributes to a small, innovative and developing literature utilizing sociological phenomenology to examine sensuous embodiment. Drawing upon data from three research projects, here we explore some of the ‘sensuousities’ of ‘intense embodiment’ experiences as a distance-running-woman and a boxing-woman, respectively. Our analysis addresses the relatively unexplored haptic senses, particularly the ‘touch’ of heat. (...) Heat has been argued to constitute a specific sensory mode, a trans-boundary sense. Our findings suggest that ‘lived’ heat, in our own physical-cultural experiences, has highly proprioceptive elements and is experienced as both a form of touch and as a distinct perceptual mode, dependent upon context. Our analysis coheres around two key themes that emerged as salient: (1) warming up, and (2) thermoregulation, which in lived experience were encountered as strongly interwoven. (shrink)

This collection of essays, which includes a revised version of a famous article on the "male lesbian," addresses such issues as race, gender, and sexuality, and explores the body as a physical, psychological, and cultural construct.

Blossoming from a correspondence between Luce Irigaray and Michael Marder, Through Vegetal Being is an intense personal, philosophical, and political meditation on the significance of the vegetal for our lives, our ways of thinking, and our relations with human and nonhuman beings. Irigaray and Marder consider how the vegetal world contributes to human development by sustaining our breathing, nourishing our senses, and keeping our bodies alive. This generative discussion points toward a more universal way of becoming human that is (...) embedded in the vegetal world. (shrink)

This essay explores the criteria for lesbian identity attribution through the case study of "male lesbians": biological males who claim to be lesbians. I analyze such sex/gender identity attribution through the lens of postmodernism, which provides a workable theoretical framework for "male lesbian" identities. My conclusions explore the historicity and cultural constructedness of the body's sex/gender identities, revealing the limitations of both "the postmodernized body" and "the essentialized modernist body.".

In this article, following on from earlier debates in the journal regarding the ‘thorny issue’ of epochē and bracketing in sociological phenomenological research, we consider more generally the challenges of engaging in reflexivity and bracketing when undertaking ethnographic ‘insider’ research, or research in familiar settings. We ground our discussion and illustrate some of the key challenges by drawing on the experience of undertaking this research approach with a group of competitive swimmers, who were participating in a British university performance swimming (...) programme at the time of the doctoral study. The primary researcher was highly familiar with the phenomenon of competitive swimming, having been both a competitive swimmer and swimming coach. Some of the key elements of a sociological phenomenological approach to studying physical-cultural embodiment are first delineated, before addressing the considerable challenges of engaging in sustained reflexivity and bracketing, using the swimming research for illustrative purposes. We suggest some practical ways in which researchers in sport and physical cultures might approach epochē and bracketing in ethnographic ‘insider’ research. -/- KEYWORDS: Sociological phenomenology, competitive swimming, insider research, epochē/bracketing. (shrink)

In eleven acute and widely ranging essays, Irigaray reconsiders the question of female sexuality in a variety of contexts that are relevant to current discussion of feminist theory and practice.

In this article, we address an existing lacuna in the sociology of the senses, by employing sociological phenomenology to illuminate the under-researched sense of temperature, as lived by a social group for whom water temperature is particularly salient: competitive pool swimmers. The research contributes to a developing ‘sensory sociology’ that highlights the importance of the socio-cultural framing of the senses and ‘sensory work’, but where there remains a dearth of sociological exploration into senses extending beyond the ‘classic five’ sensorium. Drawing (...) on data from a three-year ethnographic study of competitive swimmers in the UK, our analysis explores the rich sensuousities of swimming, and highlights the role of temperature as fundamentally affecting the affordances offered by the aquatic environment. The article contributes original theoretical perspectives to the sociology of the senses and of sport in addressing the ways in which social actors in the aquatic environment interact, both intersubjectively and intercorporeally, as thermal beings. (shrink)

A radically subversive critique brings to the fore the masculine ideology implicit in psychoanalytic theory and in Western discourse in general: woman is defined as a disadvantaged man, a male construct with no status of her own.

This chapter reviews the most prominent existing views on infinity. It argues that infinity must be understood as a simple, fully determined quantity, with a complicated relation to perfection, embodying total creative ontological priority. Spinoza takes the definition of God in terms of infinity to be superior to definitions in terms of perfection. In Spinoza's exchange with Blijenbergh, one question is whether evil or imperfection follow from divine perfection. The chapter shows that Spinoza's infinity cannot mean perfection, a negative quality, (...) a positive quality nor universal quantification. A perfection of perfections would be exactly the absence of negations and privations. In order to maintain the inherent clarity Spinoza supposes and avoid the problem outlined, ‘ens absolute infinitum’ must be taken to be a simple notion. Spinoza suggests an active, ongoing model of creation, where things depend on continuous divine action. (shrink)

Many experienced runners consider the use of wearable devices an important element of the training process. A key techno-utopic promise of wearables lies in the use of proprietary algorithms to identify training load errors in real-time and alert users to risks of running-related injuries. Such real-time ‘knowing’ is claimed to obviate the need for athletes’ subjective judgements by telling runners how they have deviated from a desired or optimal training load or intensity. This realist-contoured perspective is, however, at odds with (...) sociological research indicating that users of wearables engage in active ‘data sense-making’ that is highly contextualised. To investigate how athletes use (or not) algorithmic analysis to understand, make sense of, and improve their performance in real-time, we undertook qualitative interviews with distance runners to explore lived experiences of running with wearables. The runners described how they actively interpreted data from wearables, drawing on their own experience, ‘somatic knowledge’, and embodied ways of knowing. This allowed them to assess the relevance and usefulness of data in relation to their own goals, intentions, and feelings. Our findings challenge the techno-utopic promises of real-time and predictive analytics. (shrink)

This collection consists of lectures given at Erasmus University in Rotterdam. They were delivered under the provisions of the Jan Tin- bergen Chair, ...

In this commentary on Joyce Trebilcot's "Dyke Methods or Principles for the Discovery/Creation of the Withstanding," I discuss four areas of difficulty in Trebilcot's proposed methods: (1) an overly negative view of "the intention to persuade," (2) a tendency towards epistemological relativism and loss of cultural authorities, (3) a circularity in defining the proposed methods as dyke methods, and (4) a hint of repressive tolerance towards differences among lesbians by avoidance of painful confrontation involving those differences. Unlike Trebilcot, I make (...) a distinction between the abuse of persuasion and the art of persuasion, re-claiming the latter as a caring and challenging strategy, rather than an invasion of adversarial heteropatriarchal tactics. (shrink)

Exercise-based rehabilitation forms a key part of the UK National Health Service patient-care pathway for cardiac rehabilitation (CR). Only around half of all eligible patients attend core CR, however, with social inequalities affecting participation. Few qualitative studies have explored in-depth the key factors influencing engagement with CR, specifically from a sociological theoretical, and ethnographic perspective. Utilising an ethnographic approach allowed us to get a sense of the embodied experiences of 10 participants attending or declining core CR, together with a further (...) seven family members/significant others. This provided in-depth appreciation of participants’ lifeworld contexts as key influences on CR participation. The article draws on these qualitative data and focuses on 1) participants’ initial thoughts about CR; and 2) navigating the field of CR, analysed via thematic analysis. We utilise a Bourdieusian theoretical perspective to theorise the findings, including salient socio-cultural factors influencing attendance/non-attendance and (non)adherence. The article findings highlight how perceptions of CR and the ability to navigate the field are strongly influenced by habitus and capital, and how personal biographies and socio-material conditions affect adherence to CR programmes. The study provides original insights into embodied experiences of exercise-based CR, and novel understandings of the reasons for drop-out/poor adherence, theorised from a Bourdieusian perspective. (shrink)

There is growing regulatory pressure on firms worldwide to address the under-representation of women in senior positions. Regulators have taken a variety of approaches to the issue. We investigate a jurisdiction that has issued recommendations and disclosure requirements, rather than implementing quotas. Much of the rhetoric surrounding gender diversity centres on whether diversity has a financial impact. In this paper we take an aggregate (market-level) approach and compare the performance of portfolios of firms with gender diverse boards to those without. (...) We also investigate whether having multiple women on the board is linked to performance, and if there is a within-industry effect. Overall, we do not find evidence of an association between diversity and performance. We find some weak evidence of a negative correlation between having multiple women on the board and performance, but that in some industries diversity is positively correlated with performance. (shrink)

As has recently been highlighted, despite the prevalence of methodological “confessional tales” in ethnography generally, the challenges of undertaking ethnographic research specifically in institutional sports settings remain underexplored. Drawing on data from a 3-year ethnographic study of competitive swimming in the United Kingdom (UK), here we explore some of the practical challenges of balancing different elements of the researcher’s role when undertaking ethnographic “insider” research in familiar settings. In particular, we consider the difficulties of balancing the role of a doctoral (...) researcher and the chosen research role of a volunteer coach with a competitive swimming program. Employing the anthropological concept of liminality, we also analyze the lived challenges of leaving a highly familiar field and entering a state of liminality, where the researcher was caught on the threshold betwixt and between a return to full-time employment in the former “known” role of coach, and a move forward to embrace a new “unknown” role as a full-time member of academic staff. (shrink)

For over a decade, practice-based research degrees in art and design have formed part of the United Kingdom research degree education portfolio, with a relatively rapid expansion in recent years. This route to the PhD still constitutes an innovative, and on occasion a disputed, form of research study and students embarking upon the practice-based doctorate find themselves in many ways undertaking pioneering work. To date there has been a dearth of empirical studies of the actual experiences of such students. This (...) article, based upon qualitative interviews with 50 students based at 25 institutions, represents an attempt to begin to fill this lacuna. The article charts the biographical change which students undergo as they pursue their doctorates. It examines the ways in which they construct, maintain, and modify their identities whilst in the role of ‘creator/maker’, and seek to manage and combine the different modes of being required of a ‘creator’ and a researcher. (shrink)

When an anxiety‐reducing drug with virtually no side effects is used to enhance performance, is that cheating? Is it drug abuse? Is it an admission of professional weakness?