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  1.  9
    The Dangers of Direct-to-Consumer Genetic Testing for Alzheimer’s Disease: Comment on “Personal Genomic Testing, Genetic Inheritance, and Uncertainty”.Paul Lacaze, Jane Tiller & Joanne Ryan - 2017 - Journal of Bioethical Inquiry 14 (4):585-587.
    The overarching issue with this case study is poor regulation and quality control over direct-to-consumer genetic testing, delivered in the absence of any medical oversight.
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    Study Protocol: The Australian Genetics and Life Insurance Moratorium—Monitoring the Effectiveness and Response (A-GLIMMER) Project.Paul Lacaze, Louise Keogh, Margaret Otlowski, Ingrid Winship, Kristine Barlow-Stewart, Martin Delatycki, Penny Gleeson, Tiffany Boughtwood, Andrea Belcher, Aideen McInerney-Leo & Jane Tiller - 2021 - BMC Medical Ethics 22 (1):1-14.
    BackgroundThe use of genetic test results in risk-rated insurance is a significant concern internationally, with many countries banning or restricting the use of genetic test results in underwriting. In Australia, life insurers’ use of genetic test results is legal and self-regulated by the insurance industry ). In 2018, an Australian Parliamentary Inquiry recommended that insurers’ use of genetic test results in underwriting should be prohibited. In 2019, the FSC introduced an industry self-regulated moratorium on the use of genetic test results. (...)
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    Genetic Discrimination in Life Insurance: A Human Rights Issue.Jane Tiller & Martin B. Delatycki - 2021 - Journal of Medical Ethics 47 (7):484-485.
    In this issue of Journal of Medical Ethics, Pugh1 offers a pluralist justice-based argument in support of the spirit, if not the precise letter, of the UK approach to the use of genetic test results to underwrite life insurance. We agree with Dr Pugh’s general contention that there is ethical and philosophical support for curtailment of insurers’ access to, and use of, applicants’ GTR in underwriting. However, we disagree with the contention that broad revisionary implications of certain theories of justice (...)
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