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Jeffrey R. Botkin [26]Jeffrey Botkin [3]Jeffreyr Botkin [1]
  1.  40
    Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research.Sara Chandros Hull, Richard Sharp, Jeffrey Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian Clarridge & Benjamin Wilfond - 2008 - American Journal of Bioethics 8 (10):62-70.
    It is unclear whether the regulatory distinction between non-identifiable and identifiable information—information used to determine informed consent practices for the use of clinically derived samples for genetic research—is meaningful to patients. The objective of this study was to examine patients' attitudes and preferences regarding use of anonymous and identifiable clinical samples for genetic research. Telephone interviews were conducted with 1,193 patients recruited from general medicine, thoracic surgery, or medical oncology clinics at five United States academic medical centers. Wanting to know (...)
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  2.  32
    How Infectious Diseases Got Left Out–and What This Omission Might Have Meant for Bioethics.Leslie P. Francis, Margaret P. Battin, Jay A. Jacobson, Charles B. Smith & Jeffrey Botkin - 2005 - Bioethics 19 (4):307-322.
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  3.  27
    IRB Practices and Policies Regarding the Secondary Research Use of Biospecimens.Aaron J. Goldenberg, Karen J. Maschke, Steven Joffe, Jeffrey R. Botkin, Erin Rothwell, Thomas H. Murray, Rebecca Anderson, Nicole Deming, Beth F. Rosenthal & Suzanne M. Rivera - 2015 - BMC Medical Ethics 16 (1):32.
    As sharing and secondary research use of biospecimens increases, IRBs and researchers face the challenge of protecting and respecting donors without comprehensive regulations addressing the human subject protection issues posed by biobanking. Variation in IRB biobanking policies about these issues has not been well documented.
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  4.  52
    Are There Characteristics of Infectious Diseases That Raise Special Ethical Issues?Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek & Beverly Hawkins - 2004 - Developing World Bioethics 4 (1):1–16.
    This paper examines the characteristics of infectious diseases that raise special medical and social ethical issues, and explores ways of integrating both current bioethical and classical public health ethics concerns. Many of the ethical issues raised by infectious diseases are related to these diseases' powerful ability to engender fear in individuals and panic in populations. We address the association of some infectious diseases with high morbidity and mortality rates, the sense that infectious diseases are caused by invasion or attack on (...)
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  5.  26
    Expanding Newborn Screening: Process, Policy, and Priorities.A. Moyer Virginia, Calonge Ned, M. Teutsch Steven & R. Botkin Jeffrey - 2008 - Hastings Center Report 38 (3):32-39.
    In the 1960s, newborn screening programs tested for a single very rare but serious disorder. In recent years, thanks to the development of new screening technology, they have expanded into panels of tests; a federally sponsored expert group has recommended that states test for twenty-nine core disorders and twenty-five secondary disorders. By the standards used to decide whether to introduce new preventive health services into clinical use, the decision-making in newborn screening policy has been lax.
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  6.  8
    Fetal Privacy and Confidentiality.Jeffrey R. Botkin - 1995 - Hastings Center Report 25 (5):32-39.
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  7.  7
    Are There Characteristics of Infectious Diseases That Raise Special Ethical Issues?1.Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek & Beverly Hawkins - 2004 - Developing World Bioethics 4 (1):1-16.
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  8.  41
    Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis.Jeffrey R. Botkin - 1998 - Journal of Law, Medicine and Ethics 26 (1):17-28.
    Preimplantation genetic diagnosis is a new method of prenatal diagnosis that is developing from a union of in vitro fertilization technology and molecular biology. Briefly stated, PGD involves the creation of several embryos in vitro from the eggs and sperm of an interested couple. The embryos are permitted to develop to a 6-to-10-cell stage, at which point one of the embryonic cells is removed from each embryo and the cellular DNA is analyzed for chromosomal abnormalities or genetic mutations. An embryo (...)
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  9.  14
    Confusion in the Determination of Death: Distinguishing Philosophy From Physiology.Jeffrey R. Botkin & Stephen G. Post - 1991 - Perspectives in Biology and Medicine 36 (1):129-138.
  10.  13
    Concerns About Justification for Fetal Genome Sequencing.Jeffrey R. Botkin, Leslie P. Francis & Nancy C. Rose - 2017 - American Journal of Bioethics 17 (1):23-25.
  11.  20
    Preventing Exploitation in Pediatric Research.Jeffrey R. Botkin - 2003 - American Journal of Bioethics 3 (4):31-32.
  12.  3
    Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis.Jeffrey R. Botkin - 1998 - Journal of Law, Medicine and Ethics 26 (1):17-28.
    Preimplantation genetic diagnosis is a new method of prenatal diagnosis that is developing from a union of in vitro fertilization technology and molecular biology. Briefly stated, PGD involves the creation of several embryos in vitro from the eggs and sperm of an interested couple. The embryos are permitted to develop to a 6-to-10-cell stage, at which point one of the embryonic cells is removed from each embryo and the cellular DNA is analyzed for chromosomal abnormalities or genetic mutations. An embryo (...)
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  13.  7
    Waving Goodbye to Waivers of Consent.Jeffrey R. Botkin - 2015 - Hastings Center Report 45 (6):inside back cover-inside back co.
    The Common Rule governs research on human subjects and attempts to balance respect for individual decision-making with efficiency when research risks are low. The regulations allow research to be conducted without consent if the data or biospecimens collected in a study are deidentified, and consent can be waived for identifiable data and biospecimens if the risks of the research are minimal and consent is deemed impracticable. These approaches have been widely used for research using clinical databases and residual clinical and (...)
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  14. Expanding Newborn Screening.Virgina A. Moyer, Ned Calonge, Steven M. Teutsch & Jeffrey R. Botkin - forthcoming - Hastings Center Report. Us Preventive Services Task Force.
     
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  15.  21
    Decedents' Reported Preferences for Physician-Assisted Death: A Survey of Informants Listed on Death Certificates in Utah.Jay A. Jacobson, Evelyn M. Kasworm, Margaret P. Battin, Jeffrey R. Botkin, Leslie P. Francis & David Green - 1995 - Journal of Clinical Ethics 6 (2):149.
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  16.  13
    Wrongful Birth: Medical, Legal, and Philosophical Issues.Jeffrey R. Botkin & Maxwell J. Mehlman - 1994 - Journal of Law, Medicine and Ethics 22 (1):21-28.
    “Wrongful birth” is a controversial malpractice action, which has arisen in the past two decades, secondary to an expanding knowledge of human genetics and the constitutionally protected access to abortion. Under the wrongful birth claim, parents of a child with a congenital illness or abnormality may bring suit against a physician who allegedly failed to provide appropriate prenatal counseling or information. Typically, the parents claim that they were inadequately warned of a potential problem in their child, and that this paucity (...)
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  17.  4
    Wrongful Birth: Medical, Legal, and Philosophical Issues.Jeffrey R. Botkin & Maxwell J. Mehlman - 1994 - Journal of Law, Medicine and Ethics 22 (1):21-28.
    “Wrongful birth” is a controversial malpractice action, which has arisen in the past two decades, secondary to an expanding knowledge of human genetics and the constitutionally protected access to abortion. Under the wrongful birth claim, parents of a child with a congenital illness or abnormality may bring suit against a physician who allegedly failed to provide appropriate prenatal counseling or information. Typically, the parents claim that they were inadequately warned of a potential problem in their child, and that this paucity (...)
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  18.  7
    Bette Anton, MLS, is the Head Librarian of the Optometry Library/Health Sciences Information Service. This Library Serves the University of California at Berkeley–University of California at San Francisco Joint Medical Program and the University of California at Berkeley School of Optometry.David A. Asch, Jeffrey R. Botkin, Katrina A. Bramstedt, Arthur L. Caplan, H. Tristram Engelhardt Jr, D. Micah Hester, Kenneth V. Iserson & Mark G. Kuczewski - 2002 - Cambridge Quarterly of Healthcare Ethics 11:4-5.
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  19.  8
    Crushing Consent Under the Weight of Expectations.Jeffrey R. Botkin - 2015 - American Journal of Bioethics 15 (9):47-49.
  20. Expanding Newborn Screening.Jeffreyr Botkin & Preventiveservices Ta Skforce - forthcoming - Hastings Center Report.
     
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  21.  5
    Genetic Contextualism and the Value of a Structured Process.Jeffrey R. Botkin - 2019 - American Journal of Bioethics 19 (1):72-73.
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  22.  8
    Genetic Counseling: Making Room for Beneficence.Jeffrey R. Botkin - 1995 - Journal of Clinical Ethics 6 (2):182.
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  23.  10
    The Bane of “Boilerplate” Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization.Jeffrey R. Botkin - 2019 - American Journal of Bioethics 19 (4):83-84.
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  24.  6
    The Irregular Terrain of Human Subjects Research Regulations.David Forster, Daniel K. Nelson, David Borasky & Jeffrey R. Botkin - 2014 - Hastings Center Report 44 (s3):S29-S30.
  25. Vertical Transmission of Infectious Diseases and Genetic Disorder: Are the Medical and Public Responses Consistent?Jay A. Jackson, Margaret P. Battin, Jeffrey R. Botkin, Leslie Francis, James Mason & Charles B. Smith - 2007 - In Angus Dawson & Marcel Verweij (eds.), Ethics, Prevention, and Public Health. Clarendon Press.
     
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  26.  29
    Genetic Dilemmas: Reproductive Technology, Parental Choices, and Children's Futures, by Dena Davis. London: Routledge, 2000. 224 Pp. $22.95. [REVIEW]Jeffrey R. Botkin - 2002 - Cambridge Quarterly of Healthcare Ethics 11 (1):102-105.
    Imagine a genetic counselor working with a young couple pregnant with their first child. The explosion of genetic knowledge and technology in recent years is complicating this professional relationship as a host of new choices brings a few clients with atypical needs. This couple is deaf. They seek not to avoid a child with their disability but rather to assure that the child too will be deaf—a child to share their culture and perspectives on the world. If prenatal diagnosis indicates (...)
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  27.  13
    Every Child is Priceless: Debating Effective Newborn Screening Policy.Virginia Moyer, Ned A. Calonge, Steven M. Teutsch & Jeffrey Botkin - forthcoming - Hastings Center Report.
  28.  52
    Virginia Moyer, Steven M. Teutsch, and Jeffrey R. Botkin Reply.Virginia Moyer, Steven M. Teutsch & Jeffrey R. Botkin - 2009 - Hastings Center Report 39 (1):7-8.
  29.  27
    An Empirical Assessment of the Short-Term Impacts of a Reading of Deborah Zoe Laufer's Drama Informed Consent on Attitudes and Intentions to Participate in Genetic Research.Erin Rothwell, Jeffrey R. Botkin, Sydney Cheek-O'Donnell, Bob Wong, Gretchen A. Case, Erin Johnson, Trent Matheson, Alena Wilson, Nicole R. Robinson, Jared Rawlings, Brooke Horejsi, Ana Maria Lopez & Carrie L. Byington - 2018 - Ajob Empirical Bioethics 9 (2):69-76.
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  30.  33
    "Ethical Considerations in Clinical Care of the" VIP".Thomas Schenkenberg, Neil K. Kochenour & Jeffrey R. Botkin - 2007 - Journal of Clinical Ethics 18 (1):56.
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