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Jeffrey P. Kahn [29]Jeffrey Kahn [20]Jeffrey Paul Kahn [1]
  1. Public Health Ethics: Mapping the Terrain.James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg - 2002 - Journal of Law, Medicine and Ethics 30 (2):170-178.
    Public health ethics, like the field of public health it addresses, traditionally has focused more on practice and particular cases than on theory, with the result that some concepts, methods, and boundaries remain largely undefined. This paper attempts to provide a rough conceptual map of the terrain of public health ethics. We begin by briefly defining public health and identifying general features of the field that are particularly relevant for a discussion of public health ethics.Public health is primarily concerned with (...)
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  2. Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.
    No consensus yet exists on how to handle incidental fnd-ings in human subjects research. Yet empirical studies document IFs in a wide range of research studies, where IFs are fndings beyond the aims of the study that are of potential health or reproductive importance to the individual research participant. This paper reports recommendations of a two-year project group funded by NIH to study how to manage IFs in genetic and genomic research, as well as imaging research. We conclude that researchers (...)
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  3.  18
    The BRAIN Initiative and Neuroethics: Enabling and Enhancing Neuroscience Advances for Society.James Eberwine & Jeffrey Kahn - 2020 - American Journal of Bioethics Neuroscience 11 (3):135-139.
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  4.  28
    Why the World Needs Bioethics Communication.Travis N. Rieder, Lauren Arora Hutchinson & Jeffrey P. Kahn - 2022 - Perspectives in Biology and Medicine 65 (4):629-636.
    ABSTRACT:This essay argues for the importance of formalizing public engagement efforts around bioethics as something we might call "bioethics communication," and it outlines the Johns Hopkins Berman Institute of Bioethics' plans for engaging in this effort. Because science is complex and difficult to explain to nonexperts, the field of science communication has arisen to meet this need. The field involves both a practice and a subject of empirical research. Like science, bioethics is also complex and difficult to explain, which is (...)
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  5. Research led by participants: a new social contract for a new kind of research.Effy Vayena, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake, Jeffrey P. Kahn, Navjoyt Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'Neill, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks & John Tasioulas - 2016 - Journal of Medical Ethics 42 (4):216-219.
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  6.  45
    A Conceptual Model for the Translation of Bioethics Research and Scholarship.Debra J. H. Mathews, D. Micah Hester, Jeffrey Kahn, Amy McGuire, Ross McKinney, Keith Meador, Sean Philpott-Jones, Stuart Youngner & Benjamin S. Wilfond - 2016 - Hastings Center Report 46 (5):34-39.
    While the bioethics literature demonstrates that the field has spent substantial time and thought over the last four decades on the goals, methods, and desired outcomes for service and training in bioethics, there has been less progress defining the nature and goals of bioethics research and scholarship. This gap makes it difficult both to describe the breadth and depth of these areas of bioethics and, importantly, to gauge their success. However, the gap also presents us with an opportunity to define (...)
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  7.  12
    Beyond Consent: Seeking Justice in Research.Jeffrey P. Kahn, Anna C. Mastroianni & Jeremy Sugarman (eds.) - 1998 - Oup Usa.
    Beyond Consent examines the concept of justice, and its application to human subject research, through the different lenses of various research populations: children, the vulnerable sick, captive and convenient populations, women, people of colour, and subjects in international settings. Separate chapters address the evolution of research policies, implications of the concept of justice for the future of human subject research, and the ramifications of this concept throughout the research enterprise.
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  8.  50
    The Task Force Responds.Baruch Brody, Nancy Dubler, Jeff Blustein, Arthur Caplan, Jeffrey P. Kahn, Nancy Kass, Bernard Lo, Jonathan Moreno, Jeremy Sugarman & Laurie Zoloth - 2002 - Hastings Center Report 32 (3):22-23.
  9.  61
    Recommendations for Nanomedicine Human Subjects Research Oversight: An Evolutionary Approach for an Emerging Field.Leili Fatehi, Susan M. Wolf, Jeffrey McCullough, Ralph Hall, Frances Lawrenz, Jeffrey P. Kahn, Cortney Jones, Stephen A. Campbell, Rebecca S. Dresser, Arthur G. Erdman, Christy L. Haynes, Robert A. Hoerr, Linda F. Hogle, Moira A. Keane, George Khushf, Nancy M. P. King, Efrosini Kokkoli, Gary Marchant, Andrew D. Maynard, Martin Philbert, Gurumurthy Ramachandran, Ronald A. Siegel & Samuel Wickline - 2012 - Journal of Law, Medicine and Ethics 40 (4):716-750.
    Nanomedicine is yielding new and improved treatments and diagnostics for a range of diseases and disorders. Nanomedicine applications incorporate materials and components with nanoscale dimensions where novel physiochemical properties emerge as a result of size-dependent phenomena and high surface-to-mass ratio. Nanotherapeutics and in vivo nanodiagnostics are a subset of nanomedicine products that enter the human body. These include drugs, biological products, implantable medical devices, and combination products that are designed to function in the body in ways unachievable at larger scales. (...)
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  10.  92
    Pharmacogenetics: Ethical issues and policy options.Allen E. Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John A. Robertson & Baruch A. Brody - 2002 - Kennedy Institute of Ethics Journal 12 (1):1-15.
    : Pharmacogenetics offers the prospect of an era of safer and more effective drugs, as well as more individualized use of drug therapies. Before the benefits of pharmacogenetics can be realized, the ethical issues that arise in research and clinical application of pharmacogenetic technologies must be addressed. The ethical issues raised by pharmacogenetics can be addressed under six headings: regulatory oversight, confidentiality and privacy, informed consent, availability of drugs, access, and clinicians' changing responsibilities in the era of pharmacogenetic medicine. We (...)
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  11.  30
    Oxford Handbook of Public Health Ethics.Anna C. Mastroianni, Jeffrey P. Kahn & Nancy E. Kass (eds.) - 2019 - Oup Usa.
    Public health raises critical ethics issues and concerns, making public heath ethics an essential topic for students and public health professionals. The 73 chapters in this volume examine public health ethics across a broad range of public health topics both in the U.S. and globally. It is the first ever comprehensive collection devoted to public health ethics.
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  12.  23
    (1 other version)Swinging on the Pendulum: Shifting Views of Justice in Human Subjects Research.Anna Mastroianni & Jeffrey Kahn - 2001 - Hastings Center Report 31 (3):22-24.
    Federal policies on human subjects research have undergone a progressive transformation. In the early decades of the twentieth century, federal policies largely relied on the discretion of investigators to decide when and how to conduct research. This approach gradually gave way to policies that augmented investigator discretion with externally imposed protections. We may now be entering an era of even more stringent external protections. Whether the new policies effectively absolve investigators of personal responsibility for conducting ethical research, and whether it (...)
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  13.  39
    CONCEPTION to Obtain Hematopoietic Stem Cells.John A. Robertson, Jeffrey P. Kahn & John E. Wagner - 2002 - Hastings Center Report 32 (3):34-40.
    A couple may have a child to provide stem cells for another child. They may also use preimplantation testing—even, troubling though it is, prenatal testing and selective abortion—to ensure a close tissue match.
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  14.  35
    Lessons learned: challenges in applying current constraints on research on chimpanzees to other animals.Jeffrey Kahn - 2014 - Theoretical Medicine and Bioethics 35 (2):97-104.
    The Institute of Medicine (IOM) Committee on the Necessity of the Use of Chimpanzees in Biomedical and Behavioral Research made a series of recommendations that, as of an announcement on June 26, 2013, the National Institutes of Health (NIH) is turning into implemented guidelines. Many advocates, including some researchers and scholars, have suggested that the Committee’s recommendations could be applied successfully to other animal species. This article examines, from my perspective as the IOM Committee’s chair, some of the most important (...)
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  15.  20
    Genetic harm: Bitten by the body that keeps you?Jeffrey P. Kahn - 1991 - Bioethics 5 (4):289–308.
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  16. Sunset on the RAC: When Is It Time to End Special Oversight of an Emerging Biotechnology?Jeffrey P. Kahn & Anna C. Mastroianni - 2018 - American Journal of Bioethics 18 (12):1-2.
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  17.  26
    (1 other version)What Happens When Politics Discovers Bioethics?Jeffrey P. Kahn - 2006 - Hastings Center Report 36 (3):10-10.
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  18.  20
    Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy.Susan M. Wolf & Jeffrey P. Kahn - 2007 - Journal of Law, Medicine and Ethics 35 (S2):6-32.
    Genetic testing poses fundamental questions for insurance. Testing can predict a low probability of future illness and disability, which can help promote the insurability of individuals with a family history of genetic risk, but it can also invite insurers to reject applicants, increase premiums, exclude people with certain illnesses and disabilities, and otherwise adjust the underwriting processes for individuals with certain genotypes. In the workplace, these issues may cause employers who offer or pay for insurance to alter their hiring behavior, (...)
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  19.  81
    Three Views of Organ Procurement Policy: Moving Ahead or Giving Up?Jeffrey P. Kahn - 2003 - Kennedy Institute of Ethics Journal 13 (1):45-50.
    : The supply of organs for transplant remains inadequate to meet the needs of waiting patients, in spite of many programs and approaches to increase rates of donation. Over the years there have been numerous proposals to introduce schemes that would move toward the outright sale of organs. Three articles in this issue of the Journal propose methods for increasing organ supply—two by moving toward a market approach and the third by advocating a change in social culture. All three suffer (...)
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  20.  57
    American college of epidemiology ethics guidelines: Foundations and dissemination.Robert E. McKeown, Douglas L. Weed, Jeffrey P. Kahn & Michael A. Stoto - 2003 - Science and Engineering Ethics 9 (2):207-214.
    Epidemiology is a core science of public health, focusing on research related to the distribution and determinants of both positive and adverse health states and events and on application of knowledge gained to improve public health. The American College of Epidemiology (ACE) is a professional organization devoted to the professional practice of epidemiology. As part of that commitment, and in response to concerns for more explicit attention to core values and duties of epidemiologists in light of emerging issues and increased (...)
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  21.  25
    The Implications of Public Health for Bioethics.Jeffrey Kahn & Anna Mastroianni - 2007 - In Bonnie Steinbock (ed.), The Oxford handbook of bioethics. New York: Oxford University Press.
    At its core, public health introduces tensions between individuals' autonomy and the need to account for the perspectives and needs of communities and populations. It further raises social justice issues, including fair allocation of limited resources. This article examines and elaborates on these tensions and their resolutions using specific public health examples. Experiences in the 1980s and 1990s with HIV/AIDS provide a particularly rich collection of issues that brought ethical issues in public health to the public's attention, and in so (...)
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  22.  84
    Creating a stem cell donor: A case study in reproductive genetics.Jeffrey P. Kahn & Anna C. Mastroianni - 2004 - Kennedy Institute of Ethics Journal 14 (1):81-96.
    : During the nearly 10 years since its introduction, preimplantation genetic diagnosis (PGD) has been used predominantly to avoid giving birth to a child with identified genetic disease. Recently, PGD was used by a couple not only to test IVF-created embryos for genetic disease, but also to test for a nondisease trait related to immune compatibility with a child in the family in need of an hematopoetic stem cell transplant. This article describes the case, raises some ethical and policy issues, (...)
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  23.  8
    Making the Most of Strangers' Altruism.Jeffrey Kahn - 2002 - Journal of Law, Medicine and Ethics 30 (3):446-447.
    Lainie Ross, in her article in this issue, criticizes on ethical grounds a number of factors in the University of Minnesota program that allows unrelated strangers to donate kidneys for transplant. I have to admit that when the transplant center at the University proposed allowing the practice of what came to be called nondirected donation, I was skeptical about a number of the same issues that trouble Dr. Ross. But as my colleagues and I examined and discussed the ethics of (...)
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  24.  19
    Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study.Brian Hutler, Alessandro Blasimme, Rachel Gur-Arie, Joseph Ali, Anne Barnhill, Amelia Hood, Jeffrey Kahn, Nancy L. Perkins, Alan Regenberg & Effy Vayena - 2022 - Journal of Law, Medicine and Ethics 50 (4):791-804.
    This paper describes the results of a multi-country survey of governance approaches for the use of digital contact tracing (DCT) in response to the COVID-19 pandemic. We argue that the countries in our survey represent two distinct models of DCT governance, both of which are flawed. The “data protection model” emphasizes privacy protections at the expense of public health benefit, while the “emergency response model” sacrifices transparency and accountability, prompting concerns about excessive governance surveillance. The ethical and effective use of (...)
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  25.  15
    Cross-Cultural Biotechnology: A Reader.Stella Gonzalez Arnal, Donald Chalmers, David Kum-Wah Chan, Margaret Coffey, Jo Ann T. Croom, Mylène Deschênes, Henrich Ganthaler, Yuri Gariev, Ryuichi Ida, Jeffrey P. Kahn, Martin O. Makinde, Anna C. Mastroianni, Katharine R. Meacham, Bushra Mirza, Michael J. Morgan, Dianne Nicol, Edward Reichman, Susan E. Wallace & Larissa P. Zhiganova (eds.) - 2004 - Rowman & Littlefield Publishers.
    This book is a rich blend of analyses by leading experts from various cultures and disciplines. A compact introduction to a complex field, it illustrates biotechnology's profound impact upon the environment and society. Moreover, it underscores the vital relevance of cultural values. This book empowers readers to more critically assess biotechnology's value and effectiveness within both specific cultural and global contexts.
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  26.  37
    By Author BAGHERI, Alireza. Criticism of “Brain.Tom L. Beauchamp, Howard Brody, Franklin G. Miller, Alexander S. Curtis, Martina Darragh, Patricia Milmoe, Ronald M. U. S. Green, Sharona Hoffman, Edmund G. Howe & Jeffrey P. Kahn - 2003 - Kennedy Institute of Ethics Journal 13 (4):407-09.
  27.  11
    Toward Justice in Human Subjects ResearchBeyond Consent: Seeking Justice in Research.Lisa Sowle Cahill, Jeffrey P. Kahn, Anna C. Mastroianni & Jeremy Sugarman - 2000 - Hastings Center Report 30 (4):45.
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  28.  26
    Docs on the Box Or, How We Learned to Stop Worrying and Love the Tube.Carl Elliott & Jeffrey Kahn - 1994 - Hastings Center Report 24 (6):22-23.
  29.  19
    Introduction.Jeffrey P. Kahn & Anna C. Mastroianni - 1996 - Kennedy Institute of Ethics Journal 6 (3):ix-xi.
    In lieu of an abstract, here is a brief excerpt of the content:IntroductionAnna Mastroianni (bio) and Jeffrey Kahn (bio)In this issue of the Kennedy Institute of Ethics Journal, we subject the work of the Advisory Committee on Human Radiation Experiments to examination from many angles. Nearly one year has passed since the release of the Committee’s final report and recommendations, and it seems an appropriate time to invite discourse and reflection on the influence and impact of the Committee and its (...)
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  30.  12
    A Multi-Faceted HistoryUseful Bodies: Humans in the Service of Medical Science in the Twentieth Century.Jeffrey Kahn, Jordan Goodman, Anthony McElligott & Laura Marks - 2005 - IRB: Ethics & Human Research 27 (5):19.
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  31.  11
    An unprotected public.Jeffrey Kahn - 2008 - American Journal of Bioethics 8 (6):3 – 4.
  32.  29
    Baseball, alcohol and public health.Jeffrey P. Kahn - 2007 - American Journal of Bioethics 7 (7):3.
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  33.  19
    Commentary on Zohar's "prospects for‘genetic therapy’- can a person benefit from being altered?".Jeffrey P. Kahn - 1991 - Bioethics 5 (4):312–317.
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  34.  6
    Commentary: Who's Afraid of the RAC? Lessons from the Oversight of Controversial Science.Jeffrey P. Kahn - 2009 - Journal of Law, Medicine and Ethics 37 (4):685-687.
    This commentary asks what we can learn from our oversight of controversial science and how can we do better in the future? After briefly examining the history of gene transfer research oversight, some observations are offered for the oversight of nanobiotechnology and other emerging areas of science.
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  35.  22
    Can we broker eggs without making omelets?Jeffrey Kahn - 2001 - American Journal of Bioethics 1 (4):14 – 15.
  36.  17
    Genetic Counselors' Impact on the Genetics Revolution: Recommendations of an Informed Outsider.Jeffrey Kahn - 2004 - Bioethics Examiner 8.
  37.  12
    It's a small world after all: ethics and the response to SARS.Jeffrey Kahn - 2003 - Hastings Center Report 33 (3):6-6.
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  38.  17
    Looking Forward in Bioethics.Jeffrey Kahn & Anna Mastroianni - 2004 - Journal of Law, Medicine and Ethics 32 (2):196-197.
  39.  14
    Letter to the Editor.Jeffrey P. Kahn - 2005 - American Journal of Bioethics 5 (3):W13-W13.
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  40.  35
    Organs and stem cells: Policy lessons and cautionary tales.Jeffrey P. Kahn - 2007 - Hastings Center Report 37 (2):11-12.
  41.  15
    Raising the Bar: The Implications of the IOM Report on the Use of Chimpanzees in Research.Jeffrey Kahn - 2012 - Hastings Center Report 42 (s1):27-30.
    I had the privilege of chairing the Institute of Medicine Committee on the Necessity of Chimpanzees in Biomedical and Behavioral Research in 2011, an effort that has lessons not only about the questions presented to it, but also about the policy and practice of the use of chimpanzees in research and about animal research policy in general. In this essay I will assess the impact and implications of the committee's work and at the same time clarify what I see as (...)
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  42.  5
    Understanding the Role of Genetics in Disability Insurance.Jeffrey P. Kahn & Susan M. Wolf - 2007 - Journal of Law, Medicine and Ethics 35 (S2):5-5.
  43.  13
    Why public health and politics don't mix.Jeffrey P. Kahn - 2007 - American Journal of Bioethics 7 (11):3 – 4.
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  44.  16
    What vaccination programs mean for research.Jeffrey Kahn - 2007 - American Journal of Bioethics 7 (3):3 – 4.
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  45.  14
    Remedies for Human Subjects of Cold War Research: Recommendations of the Advisory Committee.Anna Mastroianni & Jeffrey Kahn - 1996 - Journal of Law, Medicine and Ethics 24 (2):118-126.
    At a White House ceremony in October 1995, the Advisory Committee on Human Radiation Experiments presented its Final Report to President Bill Clinton. The 925-page report and the over 2,000 pages of supplemental volumes summarized eighteen months of investigative research, debate, and deliberation on historical and contemporary issues in human subjects research. The Advisory Committee's efforts were aided by unprecedented support from the highest levels of the executive branch, including the heads of eight cabinet-level agencies and their departments' resources. The (...)
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  46. Conception.John A. Robertson, Jeffrey P. Kahn & John E. Wagner - forthcoming - Hastings Center Report.
     
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  47.  36
    Bioethics Matures: The Field Faces the Future. [REVIEW]Susan M. Wolf & Jeffrey P. Kahn - 2012 - Hastings Center Report 35 (4):22-24.