26 found
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  1.  16
    IRB Practices and Policies Regarding the Secondary Research Use of Biospecimens.Aaron J. Goldenberg, Karen J. Maschke, Steven Joffe, Jeffrey R. Botkin, Erin Rothwell, Thomas H. Murray, Rebecca Anderson, Nicole Deming, Beth F. Rosenthal & Suzanne M. Rivera - 2015 - BMC Medical Ethics 16 (1):32.
    As sharing and secondary research use of biospecimens increases, IRBs and researchers face the challenge of protecting and respecting donors without comprehensive regulations addressing the human subject protection issues posed by biobanking. Variation in IRB biobanking policies about these issues has not been well documented.
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  2.  40
    Are There Characteristics of Infectious Diseases That Raise Special Ethical Issues?Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek & Beverly Hawkins - 2004 - Developing World Bioethics 4 (1):1–16.
    This paper examines the characteristics of infectious diseases that raise special medical and social ethical issues, and explores ways of integrating both current bioethical and classical public health ethics concerns. Many of the ethical issues raised by infectious diseases are related to these diseases' powerful ability to engender fear in individuals and panic in populations. We address the association of some infectious diseases with high morbidity and mortality rates, the sense that infectious diseases are caused by invasion or attack on (...)
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  3.  4
    Are There Characteristics of Infectious Diseases That Raise Special Ethical Issues?1.Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek & Beverly Hawkins - 2004 - Developing World Bioethics 4 (1):1-16.
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  4.  23
    Expanding Newborn Screening: Process, Policy, and Priorities.A. Moyer Virginia, Calonge Ned, M. Teutsch Steven & R. Botkin Jeffrey - 2008 - Hastings Center Report 38 (3):32-39.
    In the 1960s, newborn screening programs tested for a single very rare but serious disorder. In recent years, thanks to the development of new screening technology, they have expanded into panels of tests; a federally sponsored expert group has recommended that states test for twenty-nine core disorders and twenty-five secondary disorders. By the standards used to decide whether to introduce new preventive health services into clinical use, the decision-making in newborn screening policy has been lax.
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  5.  7
    Fetal Privacy and Confidentiality.Jeffrey R. Botkin - 1995 - Hastings Center Report 25 (5):32-39.
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  6.  11
    Concerns About Justification for Fetal Genome Sequencing.Jeffrey R. Botkin, Leslie P. Francis & Nancy C. Rose - 2017 - American Journal of Bioethics 17 (1):23-25.
  7.  38
    Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis.Jeffrey R. Botkin - 1998 - Journal of Law, Medicine and Ethics 26 (1):17-28.
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  8.  19
    Preventing Exploitation in Pediatric Research.Jeffrey R. Botkin - 2003 - American Journal of Bioethics 3 (4):31-32.
  9.  9
    The Bane of “Boilerplate” Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization.Jeffrey R. Botkin - 2019 - American Journal of Bioethics 19 (4):83-84.
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  10.  2
    Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis.Jeffrey R. Botkin - 1998 - Journal of Law, Medicine and Ethics 26 (1):17-28.
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  11.  12
    Confusion in the Determination of Death: Distinguishing Philosophy From Physiology.Jeffrey R. Botkin & Stephen G. Post - 1991 - Perspectives in Biology and Medicine 36 (1):129-138.
  12. Expanding Newborn Screening.Virgina A. Moyer, Ned Calonge, Steven M. Teutsch & Jeffrey R. Botkin - forthcoming - Hastings Center Report. Us Preventive Services Task Force.
     
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  13.  15
    An Empirical Assessment of the Short-Term Impacts of a Reading of Deborah Zoe Laufer's Drama Informed Consent on Attitudes and Intentions to Participate in Genetic Research.Erin Rothwell, Jeffrey R. Botkin, Sydney Cheek-O'Donnell, Bob Wong, Gretchen A. Case, Erin Johnson, Trent Matheson, Alena Wilson, Nicole R. Robinson, Jared Rawlings, Brooke Horejsi, Ana Maria Lopez & Carrie L. Byington - 2018 - Ajob Empirical Bioethics 9 (2):69-76.
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  14.  5
    Genetic Contextualism and the Value of a Structured Process.Jeffrey R. Botkin - 2019 - American Journal of Bioethics 19 (1):72-73.
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  15.  15
    Decedents' Reported Preferences for Physician-Assisted Death: A Survey of Informants Listed on Death Certificates in Utah.Jay A. Jacobson, Evelyn M. Kasworm, Margaret P. Battin, Jeffrey R. Botkin, Leslie P. Francis & David Green - 1995 - Journal of Clinical Ethics 6 (2):149.
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  16.  29
    "Ethical Considerations in Clinical Care of the" VIP".Thomas Schenkenberg, Neil K. Kochenour & Jeffrey R. Botkin - 2007 - Journal of Clinical Ethics 18 (1):56.
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  17.  42
    Virginia Moyer, Steven M. Teutsch, and Jeffrey R. Botkin Reply.Virginia Moyer, Steven M. Teutsch & Jeffrey R. Botkin - 2009 - Hastings Center Report 39 (1):7-8.
  18.  29
    Genetic Dilemmas: Reproductive Technology, Parental Choices, and Children's Futures, by Dena Davis. London: Routledge, 2000. 224 Pp. $22.95. [REVIEW]Jeffrey R. Botkin - 2002 - Cambridge Quarterly of Healthcare Ethics 11 (1):102-105.
    Imagine a genetic counselor working with a young couple pregnant with their first child. The explosion of genetic knowledge and technology in recent years is complicating this professional relationship as a host of new choices brings a few clients with atypical needs. This couple is deaf. They seek not to avoid a child with their disability but rather to assure that the child too will be deaf—a child to share their culture and perspectives on the world. If prenatal diagnosis indicates (...)
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  19. Vertical Transmission of Infectious Diseases and Genetic Disorder: Are the Medical and Public Responses Consistent?Jay A. Jackson, Margaret P. Battin, Jeffrey R. Botkin, Leslie Francis, James Mason & Charles B. Smith - 2007 - In Angus Dawson & Marcel Verweij (eds.), Ethics, Prevention, and Public Health. Clarendon Press.
     
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  20.  8
    Crushing Consent Under the Weight of Expectations.Jeffrey R. Botkin - 2015 - American Journal of Bioethics 15 (9):47-49.
  21.  6
    Waving Goodbye to Waivers of Consent.Jeffrey R. Botkin - 2015 - Hastings Center Report 45 (6):inside back cover-inside back co.
    The Common Rule governs research on human subjects and attempts to balance respect for individual decision-making with efficiency when research risks are low. The regulations allow research to be conducted without consent if the data or biospecimens collected in a study are deidentified, and consent can be waived for identifiable data and biospecimens if the risks of the research are minimal and consent is deemed impracticable. These approaches have been widely used for research using clinical databases and residual clinical and (...)
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  22.  5
    The Irregular Terrain of Human Subjects Research Regulations.David Forster, Daniel K. Nelson, David Borasky & Jeffrey R. Botkin - 2014 - Hastings Center Report 44 (s3):S29-S30.
  23.  11
    Wrongful Birth: Medical, Legal, and Philosophical Issues.Jeffrey R. Botkin & Maxwell J. Mehlman - 1994 - Journal of Law, Medicine and Ethics 22 (1):21-28.
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  24.  6
    Bette Anton, MLS, is the Head Librarian of the Optometry Library/Health Sciences Information Service. This Library Serves the University of California at Berkeley–University of California at San Francisco Joint Medical Program and the University of California at Berkeley School of Optometry.David A. Asch, Jeffrey R. Botkin, Katrina A. Bramstedt, Arthur L. Caplan, H. Tristram Engelhardt Jr, D. Micah Hester, Kenneth V. Iserson & Mark G. Kuczewski - 2002 - Cambridge Quarterly of Healthcare Ethics 11:4-5.
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  25.  4
    Wrongful Birth: Medical, Legal, and Philosophical Issues.Jeffrey R. Botkin & Maxwell J. Mehlman - 1994 - Journal of Law, Medicine and Ethics 22 (1):21-28.
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  26.  4
    Genetic Counseling: Making Room for Beneficence.Jeffrey R. Botkin - 1995 - Journal of Clinical Ethics 6 (2):182.
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