4 found
  1.  77
    Clinical ethics consultations: a scoping review of reported outcomes.Ann M. Heesters, Ruby R. Shanker, Kevin Rodrigues, Daniel Z. Buchman, Andria Bianchi, Claudia Barned, Erica Nekolaichuk, Eryn Tong, Marina Salis & Jennifer A. H. Bell - 2022 - BMC Medical Ethics 23 (1):1-65.
    BackgroundClinical ethics consultations can be complex interventions, involving multiple methods, stakeholders, and competing ethical values. Despite longstanding calls for rigorous evaluation in the field, progress has been limited. The Medical Research Council proposed guidelines for evaluating the effectiveness of complex interventions. The evaluation of CEC may benefit from application of the MRC framework to advance the transparency and methodological rigor of this field. A first step is to understand the outcomes measured in evaluations of CEC in healthcare settings. ObjectiveThe primary (...)
    No categories
    Direct download (3 more)  
    Export citation  
    Bookmark   3 citations  
  2.  35
    Relational Autonomy as a Theoretical Lens for Qualitative Health Research.Jennifer A. H. Bell - 2020 - International Journal of Feminist Approaches to Bioethics 13 (2):69-92.
    As scholars integrate empirical approaches to ethical questions in healthcare, relational autonomy theory must inform research design and change practice. Qualitative approaches are well suited to issues where patient values play a central role, and they can be combined with relational autonomy theory to investigate the factors influencing autonomy-rich experiences. This paper draws upon my experience conducting bioethics research related to clinical trial decision-making to develop a systematic method for applying relational autonomy as a theoretical lens to qualitative health research. (...)
    Direct download (3 more)  
    Export citation  
    Bookmark   1 citation  
  3.  57
    A risk screening tool for ethical appraisal of evidence-generating initiatives.Nancy K. Ondrusek, Donald J. Willison, Vinita Haroun, Jennifer A. H. Bell & Catherine C. Bornbaum - 2015 - BMC Medical Ethics 16 (1):1-8.
    BackgroundThe boundaries between health-related research and practice have become blurred as initiatives traditionally considered to be practice increasingly use the same methodology as research. Further, the application of different ethical requirements based on this distinction raises concerns because many initiatives commonly labelled as “non-research” are associated with risks to patients, participants, and other stakeholders, yet may not be subject to any ethical oversight. Accordingly, we sought to develop a tool to facilitate the systematic identification of risks to human participants and (...)
    Direct download (4 more)  
    Export citation  
    Bookmark   1 citation  
  4.  49
    Power of Attorney for Research: The Need for a Clear Legal Mechanism.Ann M. Heesters, Daniel Z. Buchman, Kyle W. Anstey, Jennifer A. H. Bell, Barbara J. Russell & Linda Wright - 2017 - Public Health Ethics 10 (1).
    A recent article in this journal described practical and conceptual difficulties faced by public health researchers studying scabies outbreaks in British residential care facilities. Their study population was elderly, decisionally incapacitated residents, many of whom lacked a legally appropriate decision-maker for healthcare decisions. The researchers reported difficulties securing Research Ethics Committee approval. As practicing healthcare ethicists working in a large Canadian research hospital, we are familiar with this challenge and welcomed the authors’ invitation to join the discussion of the ‘outstanding (...)
    Direct download (2 more)  
    Export citation