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  1.  70
    Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?Judith Ac Rietjens, Paul J. van der Maas, Bregje D. Onwuteaka-Philipsen, Johannes Jm van Delden & Agnes van der Heide - 2009 - Journal of Bioethical Inquiry 6 (3):271-283.
    Two decades of research on euthanasia in the Netherlands have resulted into clear insights in the frequency and characteristics of euthanasia and other medical end-of-life decisions in the Netherlands. These empirical studies have contributed to the quality of the public debate, and to the regulating and public control of euthanasia and physician-assisted suicide. No slippery slope seems to have occurred. Physicians seem to adhere to the criteria for due care in the large majority of cases. Further, it has been shown (...)
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  2.  34
    The social value of clinical research.Michelle Gjl Habets, Johannes Jm van Delden & AnneLien L. Bredenoord - 2014 - BMC Medical Ethics 15 (1):66.
    International documents on ethical conduct in clinical research have in common the principle that potential harms to research participants must be proportional to anticipated benefits. The anticipated benefits that can justify human research consist of direct benefits to the research participant, and societal benefits, also called social value. In first-in-human research, no direct benefits are expected and the benefit component of the risks-benefit assessment thus merely exists in social value. The concept social value is ambiguous by nature and is used (...)
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  3.  58
    Clarifying appeals to dignity in medical ethics from an historical perspective.Rieke van der Graaf & Johannes Jm van Delden - 2008 - Bioethics 23 (3):151-160.
    ABSTRACT Over the past few decades the concept of (human) dignity has deeply pervaded medical ethics. Appeals to dignity, however, are often unclear. As a result some prefer to eliminate the concept from medical ethics, whereas others try to render it useful in this context. We think that appeals to dignity in medical ethics can be clarified by considering the concept from an historical perspective. Firstly, on the basis of historical texts we propose a framework for defining the concept in (...)
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  4.  61
    Reflective Equilibrium as a Normative Empirical Model.Ghislaine Jmw| van Delden van Thiel & Johannes Jm van Delden - 2010 - Ethical Perspectives 17 (2):183.
    People who work and live in a certain moral practice usually possess a specific form of moral wisdom. If we manage to incorporate their moral intuitions in ethical reasoning, we can arrive at judgements and theories that grasp a moral experience that generally cannot be found outside the said practice. To achieve this goal, we need a legitimate way to balance moral intuitions, ethical principles and general theories. In the present contribution, we describe a version of the model of Reflective (...)
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  5. News media coverage of euthanasia: a content analysis of Dutch national newspapers.Judith Ac Rietjens, Natasja Jh Raijmakers, Pauline Sc Kouwenhoven, Clive Seale, Ghislaine Jmw van Thiel, Margo Trappenburg, Johannes Jm van Delden & Agnes van der Heide - 2013 - BMC Medical Ethics 14 (1):1-7.
    The Netherlands is one of the few countries where euthanasia is legal under strict conditions. This study investigates whether Dutch newspaper articles use the term ‘euthanasia’ according to the legal definition and determines what arguments for and against euthanasia they contain. We did an electronic search of seven Dutch national newspapers between January 2009 and May 2010 and conducted a content analysis. Of the 284 articles containing the term ‘euthanasia’, 24% referred to practices outside the scope of the law, mostly (...)
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  6.  67
    The fiduciary obligation of the physician-researcher in phase IV trials.Rosemarie Dlc Bernabe, Ghislaine Jmw van Thiel, Jan Am Raaijmakers & Johannes Jm van Delden - 2014 - BMC Medical Ethics 15 (1):11.
    BackgroundIn this manuscript, we argue that within the context of phase IV, physician-researchers retain their fiduciary obligation to treat the patient-participants.DiscussionWe first clarify why the perspective that research ethics ought to be differentiated from clinical ethics is not applicable in phase IV, and therefore, why therapeutic orientation is most convivial in this phase. Next, assuming that ethics guidelines may be representative of common morality, we show that ethics guidelines see physician-researchers primarily as physicians and only secondarily as researchers. We then (...)
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  7.  42
    Disclosing Individual Genetic Research Results to Deceased Participants' Relatives by Means of a Qualified Disclosure Policy.Annelien L. Bredenoord & Johannes Jm van Delden - 2012 - American Journal of Bioethics 12 (10):10-12.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 10-12, October 2012.
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  8.  11
    Learning accountable governance: Challenges and perspectives for data-intensive health research networks.Ghislaine Jmw van Thiel, Thomas Schillemans, Johannes Jm van Delden, Menno Mostert & Sam Ha Muller - 2022 - Big Data and Society 9 (2).
    Current challenges to sustaining public support for health data research have directed attention to the governance of data-intensive health research networks. Accountability is hailed as an important element of trustworthy governance frameworks for data-intensive health research networks. Yet the extent to which adequate accountability regimes in data-intensive health research networks are currently realized is questionable. Current governance of data-intensive health research networks is dominated by the limitations of a drawing board approach. As a way forward, we propose a stronger focus (...)
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