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  1.  98
    Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden (with and without (...)
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  2.  34
    What parents find important when participating in longitudinal studies: results from a questionnaire.Gert Helgesson, Mats G. Hansson, Johnny Ludvigsson & Ulrica Swartling - 2010 - Clinical Ethics 5 (1):28-34.
    The objective of the present paper is to explore parents' views on safety and confidentiality, information and consent, the importance of different kinds of research, and their responsibilities regarding children's participation. A questionnaire was distributed to 2500 families in south-east Sweden with children born during the years 1997–1999; 1302 responded. The sample was chosen to include views of families with and without earlier research experience. A clear majority of responding parents stated that parents have a moral responsibility to let their (...)
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    Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden we explored parents' (...)
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