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    The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.Gail E. Henderson, Susan M. Wolf, Kristine J. Kuczynski, Steven Joffe, Richard R. Sharp, D. Williams Parsons, Bartha M. Knoppers, Joon-Ho Yu & Paul S. Appelbaum - 2014 - Journal of Law, Medicine and Ethics 42 (3):344-355.
    As exome and genome sequencing move into clinical application, questions surround how to elicit consent and handle potential return of individual genomic results. This study analyzes nine consent forms used in NIH-funded sequencing studies. Content analysis reveals considerable heterogeneity, including in defining results that may be returned, identifying potential benefits and risks of return, protecting privacy, addressing placement of results in the medical record, and data-sharing. In response to lack of consensus, we offer recommendations.
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  2.  66
    Race-Based Medicine and Justice as Recognition: Exploring the Phenomenon of BiDil.Joon-ho Yu, Sara Goering & Stephanie M. Fullerton - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (1):57.
    In the United States, health disparities have been framed by categories of race. Racial health disparities have been documented for cardiovascular disease, cancer, diabetes, HIV/AIDS, and numerous other diseases and measures of health status. Although such disparities can be read as symptoms of disparities in healthcare access, pervasive social and economic inequities, and discrimination, some have suggested that the disparities might be due, at least in part, to biological differences based on race. Or, to be more precise, if race itself (...)
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  3.  7
    A Content Analysis of the Views of Genetics Professionals on Race, Ancestry, and Genetics.Sarah C. Nelson, Joon-Ho Yu, Jennifer K. Wagner, Tanya M. Harrell, Charmaine D. Royal & Michael J. Bamshad - forthcoming - Ajob Empirical Bioethics:1-13.
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    Policy and the Inevitability of Sharing: GINA and Social Media.Joon-Ho Yu & Rebecca S. Engrav - 2014 - American Journal of Bioethics 14 (11):57-59.
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