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  1.  46
    The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.Gail E. Henderson, Susan M. Wolf, Kristine J. Kuczynski, Steven Joffe, Richard R. Sharp, D. Williams Parsons, Bartha M. Knoppers, Joon-Ho Yu & Paul S. Appelbaum - 2014 - Journal of Law, Medicine and Ethics 42 (3):344-355.
    Large-scale sequencing tests, including whole-exome and whole-genome sequencing, are rapidly moving into clinical use. Sequencing is already being used clinically to identify therapeutic opportunities for cancer patients who have run out of conventional treatment options, to help diagnose children with puzzling neurodevelopmental conditions, and to clarify appropriate drug choices and dosing in individuals. To evaluate and support clinical applications of these technologies, the National Human Genome Research Institute and National Cancer Institute have funded studies on clinical and research sequencing under (...)
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  2.  4
    Solidarity in the Absence of Sovereignty: Expanding Group Protections in New Research Contexts.Joon-Ho Yu - 2021 - American Journal of Bioethics 21 (10):22-24.
    In “Extending Research Protections to Tribal Communities,” Saunkeah et. al. argue that sovereignty and solidarity are necessary to extend research protections under the Belmont principles and deriv...
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  3.  2
    Do Groups Have Moral Standing in Unregulated mHealth Research?Joon-Ho Yu & Eric Juengst - 2020 - Journal of Law, Medicine and Ethics 48 (S1):122-128.
    Biomedical research using data from participants’ mobile devices borrows heavily from the ethos of the “citizen science” movement, by delegating data collection and transmission to its volunteer subjects. This engagement gives volunteers the opportunity to feel like partners in the research and retain a reassuring sense of control over their participation. These virtues, in turn, give both grass-roots citizen science initiatives and institutionally sponsored mHealth studies appealing features to flag in recruiting participants from the public. But while grass-roots citizen science (...)
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  4.  70
    Race-Based Medicine and Justice as Recognition: Exploring the Phenomenon of BiDil.Joon-ho Yu, Sara Goering & Stephanie M. Fullerton - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (1):57.
    In the United States, health disparities have been framed by categories of race. Racial health disparities have been documented for cardiovascular disease, cancer, diabetes, HIV/AIDS, and numerous other diseases and measures of health status. Although such disparities can be read as symptoms of disparities in healthcare access, pervasive social and economic inequities, and discrimination, some have suggested that the disparities might be due, at least in part, to biological differences based on race. Or, to be more precise, if race itself (...)
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  5.  13
    A Content Analysis of the Views of Genetics Professionals on Race, Ancestry, and Genetics.Sarah C. Nelson, Joon-Ho Yu, Jennifer K. Wagner, Tanya M. Harrell, Charmaine D. Royal & Michael J. Bamshad - forthcoming - Ajob Empirical Bioethics:1-13.
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  6.  1
    Leveraging Academic Institutional Structures to Support Asian American Community Organizations’ Engagement in Research: The Korean Community Service Center.Joon-Ho Yu - 2021 - American Journal of Bioethics 21 (10):49-51.
    My research partnership with the Korean Community Service Center of Seattle is the deepest research relationship I have had since transitioning from working with a national “minority health”...
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  7.  20
    Policy and the Inevitability of Sharing: GINA and Social Media.Joon-Ho Yu & Rebecca S. Engrav - 2014 - American Journal of Bioethics 14 (11):57-59.
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