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Karin R. Jongsma [12]Karin Rolanda Jongsma [9]Karin Roland Jongsma [1]
  1.  54
    Who is Afraid of Black Box Algorithms? On the Epistemological and Ethical Basis of Trust in Medical AI.Juan Manuel Durán & Karin Rolanda Jongsma - 2021 - Journal of Medical Ethics 47 (5):medethics-2020-106820.
    The use of black box algorithms in medicine has raised scholarly concerns due to their opaqueness and lack of trustworthiness. Concerns about potential bias, accountability and responsibility, patient autonomy and compromised trust transpire with black box algorithms. These worries connect epistemic concerns with normative issues. In this paper, we outline that black box algorithms are less problematic for epistemic reasons than many scholars seem to believe. By outlining that more transparency in algorithms is not always necessary, and by explaining that (...)
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  2.  23
    A Mobile Revolution for Healthcare? Setting the Agenda for Bioethics.Federica Lucivero & Karin R. Jongsma - 2018 - Journal of Medical Ethics 44 (10):685-689.
    Mobile health is rapidly being implemented and changing our ways of doing, understanding and organising healthcare. mHealth includes wearable devices as well as apps that track fitness, offer wellness programmes or provide tools to manage chronic conditions. According to industry and policy makers, these systems offer efficient and cost-effective solutions for disease prevention and self-management. While this development raises many ethically relevant questions, so far mHealth has received only little attention in medical ethics. This paper provides an overview of bioethical (...)
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  3.  36
    Dementia and Advance Directives: Some Empirical and Normative Concerns.Karin R. Jongsma, Marijke C. Kars & Johannes J. M. van Delden - 2019 - Journal of Medical Ethics 45 (2):92-94.
    The authors of the paper ‘Advance euthanasia directives: a controversial case and its ethical implications’ articulate concerns and reasons with regard to the conduct of euthanasia in persons with dementia based on advance directives. While we agree on the conclusion that there needs to be more attention for such directives in the preparation phase, we disagree with the reasons provided by the authors to support their conclusions. We will outline two concerns with their reasoning by drawing on empirical research and (...)
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  4.  7
    Responsibility Beyond Design: Physicians’ Requirements for Ethical Medical AI.Martin Sand, Juan Manuel Durán & Karin Rolanda Jongsma - 2022 - Wiley: Bioethics 36 (2):162-169.
    Bioethics, Volume 36, Issue 2, Page 162-169, February 2022.
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  5.  32
    National Standards for Public Involvement in Research: Missing the Forest for the Trees.Matthew S. McCoy, Karin Rolanda Jongsma, Phoebe Friesen, Michael Dunn, Carolyn Plunkett Neuhaus, Leah Rand & Mark Sheehan - 2018 - Journal of Medical Ethics 44 (12):801-804.
    Biomedical research funding bodies across Europe and North America increasingly encourage—and, in some cases, require—investigators to involve members of the public in funded research. Yet there remains a striking lack of clarity about what ‘good’ or ‘successful’ public involvement looks like. In an effort to provide guidance to investigators and research organisations, representatives of several key research funding bodies in the UK recently came together to develop the National Standards for Public Involvement in Research. The Standards have critical implications for (...)
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  6.  26
    Beyond Competence: Advance Directives in Dementia Research.Karin Roland Jongsma & Suzanne van de Vathorst - 2015 - Monash Bioethics Review 33 (2-3):167-180.
    Dementia is highly prevalent and incurable. The participation of dementia patients in clinical research is indispensable if we want to find an effective treatment for dementia. However, one of the primary challenges in dementia research is the patients’ gradual loss of the capacity to consent. Patients with dementia are characterized by the fact that, at an earlier stage of their life, they were able to give their consent to participation in research. Therefore, the phase when patients are still competent to (...)
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  7.  5
    Responsibility Beyond Design: Physicians’ Requirements for Ethical Medical AI.Martin Sand, Juan Manuel Durán & Karin Rolanda Jongsma - 2022 - Wiley: Bioethics 36 (2):162-169.
    Bioethics, Volume 36, Issue 2, Page 162-169, February 2022.
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  8.  11
    Digital Medicine: An Opportunity to Revisit the Role of Bioethicists.Karin R. Jongsma, Annelien L. Bredenoord & Federica Lucivero - 2018 - American Journal of Bioethics 18 (9):69-70.
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  9.  5
    Patient Representation: Mind the Gap Between Individual and Collective Claims.Karin R. Jongsma & Silke Schicktanz - 2020 - American Journal of Bioethics 20 (4):28-30.
    Volume 20, Issue 4, May 2020, Page 28-30.
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  10.  13
    Response to Our Reviewers.Juan Manuel Durán & Karin Rolanda Jongsma - 2021 - Journal of Medical Ethics 47 (7):514-514.
    We would like to thank the authors of the commentaries for their critical appraisal of our feature article, Who is afraid of black box algorithms?1 Their comments, suggestions and concerns are various, and we are glad that our article contributes to the academic debate about the ethical and epistemic conditions for medical Explanatory AI. We would like to bring to attention a few issues that are common worries across reviewers. Most prominently are the merits of computational reliabilism —in particular, when (...)
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  11.  6
    The Implausibility of Response Shifts in Dementia Patients.Karin Rolanda Jongsma, Mirjam A. G. Sprangers & Suzanne van de Vathorst - 2016 - Journal of Medical Ethics 42 (9):597-600.
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  12.  11
    Experts’ Moral Views on Gene Drive Technologies: A Qualitative Interview Study.Annelien L. Bredenoord, Karin R. Jongsma & N. de Graeff - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundGene drive technologies promote the rapid spread of a particular genetic element within a population of non-human organisms. Potential applications of GDTs include the control of insect vectors, invasive species and agricultural pests. Whether, and if so, under what conditions, GDTs should be deployed is hotly debated. Although broad stances in this debate have been described, the convictions that inform the moral views of the experts shaping these technologies and related policies have not been examined in depth in the academic (...)
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  13.  16
    Dementia Research and Advance Consent: It is Not About Critical Interests.Karin Rolanda Jongsma & Suzanne van de Vathorst - 2015 - Journal of Medical Ethics 41 (8):708-709.
  14.  29
    Autism, Autonomy, and Authenticity.Elisabeth M. A. Späth & Karin R. Jongsma - 2020 - Medicine, Health Care and Philosophy 23 (1):73-80.
    Autonomy of people on the autism-spectrum has only been very rarely conceptually explored. Autism spectrum is commonly considered a hetereogenous disorder, and typically described as a behaviorally-defined neurodevelopmental disorder associated with the presence of social-communication deficits and restricted and repetitive behaviors. Autism research mainly focuses on the behavior of autistic people and ways to teach them skills that are in line with social norms. Interventions such as therapies are being justified with the assumption that autists lack the capacity to be (...)
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  15.  13
    Ethics Parallel Research: An Approach for (Early) Ethical Guidance of Biomedical Innovation.Karin R. Jongsma & Annelien L. Bredenoord - 2020 - BMC Medical Ethics 21 (1):1-9.
    BackgroundOur human societies and certainly also medicine are more and more permeated with technology. There seems to be an increasing awareness among bioethicists that an effective and comprehensive approach to ethically guide these emerging biomedical innovations into society is needed. Such an approach has not been spelled out yet for bioethics, while there are frequent calls for ethical guidance of biomedical innovation, also by biomedical researchers themselves. New and emerging biotechnologies require anticipation of possible effects and implications, meaning the scope (...)
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  16.  8
    Responsible Research with Human Tissues: The Need for Reciprocity Toward Both Collectives and Individuals.Annelien L. Bredenoord, Johannes J. M. van Delden, Sarah N. Boers, Karin R. Jongsma & Michael A. Lensink - 2021 - American Journal of Bioethics 21 (4):75-78.
    Precision medicine research involving human biological material is becoming an increasingly central component of healthcare, and its potential is quickly growing due to rapid technological progress...
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  17.  14
    The Usual Suspects: Why Techno-Fixing Dementia is Flawed.Karin Rolanda Jongsma & Martin Sand - 2017 - Medicine, Health Care and Philosophy 20 (1):119-130.
    Dementia is highly prevalent and up until now, still incurable. If we may believe the narrative that is currently dominant in dementia research, in the future we will not have to suffer from dementia anymore, as there will be a simple techno-fix solution. It is just a matter of time before we can solve the growing public health problem of dementia. In this paper we take a critical stance towards overly positive narratives of techno-fixes by placing our empirical analysis of (...)
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  18.  11
    Fair Governance of Biotechnology: Patents, Private Governance, and Procedural Justice.Nienke de Graeff, Léon E. Dijkman, Karin R. Jongsma & Annelien L. Bredenoord - 2018 - American Journal of Bioethics 18 (12):57-59.
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  19.  3
    Governing Gene Drive Technologies: A Qualitative Interview Study.N. de Graeff, Karin R. Jongsma, Jeantine E. Lunshof & Annelien L. Bredenoord - 2022 - AJOB Empirical Bioethics 13 (2):107-124.
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  20.  3
    Agree to Disagree: The Symmetry of Burden of Proof in Human–AI Collaboration.Karin Rolanda Jongsma & Martin Sand - 2022 - Journal of Medical Ethics 48 (4):230-231.
    In their paper ‘Responsibility, second opinions and peer-disagreement: ethical and epistemological challenges of using AI in clinical diagnostic contexts’, Kempt and Nagel discuss the use of medical AI systems and the resulting need for second opinions by human physicians, when physicians and AI disagree, which they call the rule of disagreement.1 The authors defend RoD based on three premises: First, they argue that in cases of disagreement in medical practice, there is an increased burden of proof for the physician in (...)
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  21.  15
    Understanding (in) Consent for Governance.Michael A. Lensink, Sarah N. Boers, Karin R. Jongsma & Annelien L. Bredenoord - 2019 - American Journal of Bioethics 19 (5):43-45.
    Volume 19, Issue 5, May 2019, Page 43-45.
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  22.  9
    Geometry of Trust: Why We Need to Distinguish Between Horizontal and Vertical Trust.Karin R. Jongsma & Annelien L. Bredenoord - 2018 - American Journal of Bioethics 18 (4):48-50.
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